Cited by 1,371Palliative Care and End-of-Life IssuesPalliative and Oncologic CareEthics and bioethics in healthcare

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Definition and recommendations for advance care planning: an international consensus supported by the European Association for Palliative Care

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Rietjens, Judith A C, Sudore, Rebecca L, Connolly, Michael, van Delden, Johannes J, Drickamer, Margaret A, Droger, Mirjam, van der Heide, Agnes, Heyland, Daren K, Houttekier, Dirk, Janssen, Daisy J A, Orsi, Luciano, Payne, Sheila, Seymour, Jane, Jox, Ralf J, Korfage, Ida J·2017·The Lancet Oncology

DOI 10.1016/s1470-2045(17)30582-x

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Abstract

Advance care planning (ACP) is increasingly implemented in oncology and beyond, but a definition of ACP and recommendations concerning its use are lacking. We used a formal Delphi consensus process to help develop a definition of ACP and provide recommendations for its application. Of the 109 experts (82 from Europe, 16 from North America, and 11 from Australia) who rated the ACP definitions and its 41 recommendations, agreement for each definition or recommendation was between 68-100%. ACP was defined as the ability to enable individuals to define goals and preferences for future medical treatment and care, to discuss these goals and preferences with family and health-care providers, and to record and review these preferences if appropriate. Recommendations included the adaptation of ACP based on the readiness of the individual; targeting ACP content as the individual's health condition worsens; and, using trained non-physician facilitators to support the ACP process. We present a list of outcome measures to enable the pooling and comparison of results of ACP studies. We believe that our recommendations can provide guidance for clinical practice, ACP policy, and research.

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Authors: Rietjens, J. A. C., Sudore, R. L., Connolly, M., van Delden, J. J., Drickamer, M. A., Droger, M., van der Heide, A., Heyland, D. K., Houttekier, D., Janssen, D. J. A., Orsi, L., Payne, S., Seymour, J., Jox, R. J., & Korfage, I. J.
Affiliations: Erasmus MC (NL)
San Francisco VA Medical Center (US)
University College Dublin (IE)
University Medical Center Utrecht (NL)
University of North Carolina at Chapel Hill (US)
Queen's University (CA)
Vrije Universiteit Brussel (BE)
Maastricht University Medical Centre (NL)
Azienda Ospedaliera Carlo Poma (IT)
Lancaster University (GB)
University of Sheffield (GB)
Centre Hospitalier Universitaire Vaudois (CH)
Corresponding author: Rietjens, Judith A C
ORCID: Rietjens, Judith A C
Sudore, Rebecca L
Connolly, Michael
van Delden, Johannes J
van der Heide, Agnes
Heyland, Daren K
Houttekier, Dirk
Janssen, Daisy J A
Payne, Sheila
Seymour, Jane
Jox, Ralf J
Korfage, Ida J
Venue: The Lancet Oncology
Publisher: Elsevier BV
Published: 2017-09
Volume: 18
Issue: 9
Pages: e543-e551
ISSN: 1470-2045 (ISSN-L)
DOI: 10.1016/s1470-2045(17)30582-x
OpenAlex: W2753659610
Semantic Scholar: 38cd35443a6a79c86ac2c3e1a23163ce968fc593
Cited by: 1,371
References: 77
Citations by year: 2026: 164 · 2025: 176 · 2024: 230 · 2023: 166 · 2022: 158 · 2021: 160 · 2020: 157 · 2019: 104 · 2018: 54 · 2017: 2
FWCI: 81.27
Type: journal article
Language: en
Open access: bronze
doi.org
Licence: www.elsevier.com/tdm/userlicense/1.0/ (tdm)
www.elsevier.com/legal/tdmrep-license (tdm)
Locations: The Lancet Oncology (publishedVersion)
PubMed (publishedVersion)
Research Publications (Maastricht University) (publishedVersion, other-oa)
EUR Research Repository (Erasmus University Rotterdam) (publishedVersion)
Lancaster EPrints (Lancaster University) (acceptedVersion)
White Rose Research Online (University of Leeds, The University of Sheffield, University of York) (acceptedVersion)
EUR Research Repository (Erasmus University Rotterdam) (submittedVersion)
Ghent University Academic Bibliography (Ghent University) (submittedVersion)
Utrecht University Repository (Utrecht University) (submittedVersion, other-oa)
eScholarship (California Digital Library) (submittedVersion)
IRIS (submittedVersion)
SERVAL (Université de Lausanne) (submittedVersion)
VUBIR (Vrije Universiteit Brussel) (submittedVersion)
Research Publications (Maastricht University) (submittedVersion, other-oa)
Utrecht University Repository (Utrecht University) (submittedVersion)
Funders: L'Oreal USA
Japanese Association of Cardiac Rehabilitation
Topics: Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative and Oncologic Care
Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Ethics and bioethics in healthcare
Keywords: advance care planning, clinical guidelines, patient preferences, goals of care, outcome measures, palliative care, end-of-life care
MeSH terms: Attitude of Health Personnel, Delphi Technique, Humans, Palliative Care, Advance Care Planning

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Definition and recommendations for advance care planning: an international consensus supported by the European Association for Palliative Care

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