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Definition and recommendations for advance care planning: an international consensus supported by the European Association for Palliative Care
Open accessAbstract
Advance care planning (ACP) is increasingly implemented in oncology and beyond, but a definition of ACP and recommendations concerning its use are lacking. We used a formal Delphi consensus process to help develop a definition of ACP and provide recommendations for its application. Of the 109 experts (82 from Europe, 16 from North America, and 11 from Australia) who rated the ACP definitions and its 41 recommendations, agreement for each definition or recommendation was between 68-100%. ACP was defined as the ability to enable individuals to define goals and preferences for future medical treatment and care, to discuss these goals and preferences with family and health-care providers, and to record and review these preferences if appropriate. Recommendations included the adaptation of ACP based on the readiness of the individual; targeting ACP content as the individual's health condition worsens; and, using trained non-physician facilitators to support the ACP process. We present a list of outcome measures to enable the pooling and comparison of results of ACP studies. We believe that our recommendations can provide guidance for clinical practice, ACP policy, and research.
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Yang, J., Kim, H. J., Heo, S., An, M., Park, S., Ounpraseuth, S., & Kim, J. (2022) · Japan Journal of Nursing Science · doi:10.1111/jjns.12508 · Cited by 4
Shah, K. M., Janssen, A. L., Donnelly, C., & Shaw, T. J. (2022) · Journal of Continuing Education in the Health Professions · doi:10.1097/ceh.0000000000000460 · Cited by 4
Actual vs Documented Advance Care Planning in a Primary Care Clinic
Bowen, G. S., Szkwarko, D., Brown, M., & Wilkinson, J. E. (2022) · PRiMER · doi:10.22454/primer.2022.495262 · Cited by 4
Ihle‐Hansen, H., Pedersen, R., Westbye, S. F., Sævareid, T. J. L., Brøderud, L., Larsen, M. H., Hermansen, K. B., Rostoft, S., & Romøren, M. (2024) · European Geriatric Medicine · doi:10.1007/s41999-023-00922-7 · Cited by 4
Yamamoto, K. (2024) · Cureus · doi:10.7759/cureus.54175 · Cited by 4
Advance care planning with older Norwegian adults in their homes: a narrative ethnographic study
Festvåg, L. E., Sverre, B. L., Paulsen, Ø., & Eilertsen, G. (2024) · BMC Palliative Care · doi:10.1186/s12904-024-01378-7 · Cited by 4
Wang, S., Hu, W., & Chang, Y. (2024) · Supportive Care in Cancer · doi:10.1007/s00520-024-08432-3 · Cited by 5
Biesmans, J. M. A., Bolt, S., Janssen, D. J. A., Wintjens, T., Khemai, C., Schols, J. M. G. A., van der Steen, J. T., Zwakhalen, S. M. G., & Meijers, J. M. M. (2024) · Journal of Advanced Nursing · doi:10.1111/jan.16285 · Cited by 4
Self-citationQuality of Advance Care Planning in Long-Term Care and Transfers to Hospital at the End Of Life
Turcotte, L., Scott, M., Petrcich, W., Tanuseputro, P., & Kobewka, D. M. (2024) · Journal of the American Medical Directors Association · doi:10.1016/j.jamda.2024.105259 · Cited by 4
Metadata
- Authors
- Rietjens, J. A. C., Sudore, R. L., Connolly, M., van Delden, J. J., Drickamer, M. A., Droger, M., van der Heide, A., Heyland, D. K., Houttekier, D., Janssen, D. J. A., Orsi, L., Payne, S., Seymour, J., Jox, R. J., & Korfage, I. J.
- Affiliations
- Erasmus MC (NL)
- San Francisco VA Medical Center (US)
- University College Dublin (IE)
- University Medical Center Utrecht (NL)
- University of North Carolina at Chapel Hill (US)
- Queen's University (CA)
- Vrije Universiteit Brussel (BE)
- Maastricht University Medical Centre (NL)
- Azienda Ospedaliera Carlo Poma (IT)
- Lancaster University (GB)
- University of Sheffield (GB)
- Centre Hospitalier Universitaire Vaudois (CH)
- Corresponding author
- Rietjens, Judith A C
- ORCID
- Venue
- The Lancet Oncology
- Publisher
- Elsevier BV
- Published
- 2017-09
- Volume
- 18
- Issue
- 9
- Pages
- e543-e551
- ISSN
- 1470-2045 (ISSN-L)
- OpenAlex
- W2753659610
- Semantic Scholar
- 38cd35443a6a79c86ac2c3e1a23163ce968fc593
- Cited by
- 1,371
- References
- 77
- Citations by year
- 2026: 164 · 2025: 176 · 2024: 230 · 2023: 166 · 2022: 158 · 2021: 160 · 2020: 157 · 2019: 104 · 2018: 54 · 2017: 2
- FWCI
- 81.27
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Locations
- The Lancet Oncology (publishedVersion)
- PubMed (publishedVersion)
- Research Publications (Maastricht University) (publishedVersion, other-oa)
- EUR Research Repository (Erasmus University Rotterdam) (publishedVersion)
- Lancaster EPrints (Lancaster University) (acceptedVersion)
- White Rose Research Online (University of Leeds, The University of Sheffield, University of York) (acceptedVersion)
- EUR Research Repository (Erasmus University Rotterdam) (submittedVersion)
- Ghent University Academic Bibliography (Ghent University) (submittedVersion)
- Utrecht University Repository (Utrecht University) (submittedVersion, other-oa)
- eScholarship (California Digital Library) (submittedVersion)
- IRIS (submittedVersion)
- SERVAL (Université de Lausanne) (submittedVersion)
- VUBIR (Vrije Universiteit Brussel) (submittedVersion)
- Research Publications (Maastricht University) (submittedVersion, other-oa)
- Utrecht University Repository (Utrecht University) (submittedVersion)
- Funders
- L'Oreal USA
- Japanese Association of Cardiac Rehabilitation
- Topics
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative and Oncologic Care
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Ethics and bioethics in healthcare
- Keywords
- advance care planning, clinical guidelines, patient preferences, goals of care, outcome measures, palliative care, end-of-life care
- MeSH terms
- Attitude of Health Personnel, Delphi Technique, Humans, Palliative Care, Advance Care Planning
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