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Vaccine misinformation and social media
Open accessAbstract
On Aug 19, 2019, British Prime Minister Boris Johnson outlined plans for a summit of social media firms to discuss how to promote accurate information about vaccination. The announcement accompanied the news that WHO no longer considers the UK to have eliminated measles. Coverage of the second dose of the measles–mumps– rubella (MMR) vaccine in the country has fallen to 87%, lower than the 95% required for herd immunity. “I am afraid people have just been listening to that superstitious mumbo-jumbo on the Internet, all that antivax stuff, and thinking that the MMR vaccine is a bad idea”, commented Johnson on a visit to a hospital in southwest England.
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“Reaching these required vaccination levels should not be assumed given well-documented evidence of vaccine hesitancy across the world 17 , which is often fuelled by online and offline misinformation surrounding the importance, safety or effectiveness of vaccines 18-20 .”
From Measuring the impact of COVID-19 vaccine misinformation on vaccination intent in the UK and USA (2021) · cites this paper as [19]
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Characterizing User Susceptibility to COVID-19 Misinformation on Twitter
Teng, X., Lin, Y., Chung, W., Li, A., & Kovashka, A. (2022) · Proceedings of the International AAAI Conference on Web and Social Media · doi:10.1609/icwsm.v16i1.19353 · Cited by 12
“In public health domain, the interlinking among misinformation and infectious diseases, such as the relationship with anti-vaccine attitude and other misconception, has been examined in other epidemics (Burki 2019).”
BackgroundMiyazaki, K., Uchiba, T., Tanaka, K., An, J., Kwak, H., & Sasahara, K. (2023) · Proceedings of the International AAAI Conference on Web and Social Media · doi:10.1609/icwsm.v17i1.22176 · Cited by 12
Vaccine Assemblages on Three HPV Vaccine-Critical Facebook Pages in Denmark from 2012 to 2019
Agergaard, T. E., Smith, M. E., & Nielsen, K. H. (2020) · Media and Communication · doi:10.17645/mac.v8i2.2858 · Cited by 9
“Medical authorities, expert groups, and individual researchers worry that vaccine misinformation flourishing in media environments may lead to vaccine hesitancy and ill-informed political or juridical decisions (e.g., Burki, 2019; Ghebreyesus, 2019; Larson, 2018).”
BackgroundHohmeier, K. C., Barenie, R. E., Hagemann, T. M., Renfro, C. P., Xing, K., Phillips, A. M., Allen, R., Fiscus, M. D., Chisholm‐Burns, M. A., & Gatwood, J. D. (2021) · Journal of the American Pharmacists Association · doi:10.1016/j.japh.2021.11.028 · Cited by 10
Ethical Conflicts Among the Leading Medical and Healthcare Leaders
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Chopra, H., Vashishtha, A., Pal, R., Ashima, Tyagi, A., & Sethi, T. (2022) · JMIR Infodemiology · doi:10.2196/34315 · Cited by 17
“Widespread misinformation being articulated through social media creates panic among users [38].”
Online misinformation is linked to COVID-19 vaccination hesitancy and refusal (Preprint)Preprint
Pierri, F., Perry, B. L., DeVerna, M., Yang, K.-C., Flammini, A., Menczer, F., & Bryden, J. (2021) · doi:10.2196/preprints.32237 · Cited by 9
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“Given the increasing role of misinformation spread through social media, healthcare professionals must be equipped with accurate knowledge to address vaccine hesitancy (Burki, 2019; Shakeel et al., 2022; Trzebiński et al., 2021; Lazarus et al., 2021).”
Pervane, V. D., Bucaktepe, P. G. E., Yıldız, İ., Kardaş, S., Tekay, S. E., Atik, Y., Baran, E., Baran, M., & Çelepkolu, T. (2025) · Medicina · doi:10.3390/medicina61030421 · Cited by 9
“Social media is a powerful tool for the dissemination of misinformation, and the increase in misinformation and disinformation of unknown origin during the pandemic has led to the need for major social media platforms to impose restrictions on anti-vaccine and unreliable sources of information [55].”
Vaccine Hesitancy: Where Are We Now?
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Characterizing the Anti-Vaxxers’ Reply Behavior on Social Media
Miyazaki, K., Uchiba, T., Tanaka, K., & Sasahara, K. (2021) · IEEE/WIC/ACM International Conference on Web Intelligence · doi:10.1145/3498851.3498934 · Cited by 8
“This argument has also been made in the literature; for example, Johnson et al. [23] showed that the presence of pro-vaxxers is less to neutral people than one of anti-vaxxers, and Burki [10] cited that the medical community needs to be more proactive.”
BackgroundInfluentialThe politics and profit of disinformation in public health
Maani, N., Kim, K., van Schalkwyk, M. C. I., Petticrew, M., & Zenone, M. (2026) · Annual Review of Public Health · doi:10.1146/annurev-publhealth-071723-124408 · Cited by 8
(Media Attention to) Misinformation Can Undermine Trust in Scientists
Hoes, E., von Hohenberg, B. C., Gessler, T., Qian, S., & Wojcieszak, M. (2025) · Political Behavior · doi:10.1007/s11109-025-10090-y · Cited by 7
“…World Health Organization and Commission 2019), linked to increased vaccine hesitancy, decline in vaccine uptake, and outbreaks of vaccine-preventable diseases (e.g., it was widely reported that there were around 2,000 cases of measles in 2019, compared to 372 in 2018 in the U.S. (Burki 2019)).”
Ilesanmi, M. M., Abonyi, S., Pahwa, P., Gerdts, V., Scwandt, M., & Neudorf, C. (2022) · PLoS ONE · doi:10.1371/journal.pone.0277876 · Cited by 7
“The scale of hesitancy and resistance is more pronounced in some religious communities [79] but are also amplified by access to social media where ‘pseudo-science’ circulate more easily [80, 81].”
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“[26] Other factors associated with vaccine hesitancy include public health policies, social factors, previous experience, educational and income levels, and the messages spread by the media [28].”
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“They can be regarded as the division of society, which creates a bad atmosphere in society, raises the cost of policy-making, and makes the governmental operations less smooth, e.g., the delay of vaccinations [1].”
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“There was a significant problem with misinformation about the virus, and the vaccine, in the UK, particularly on social media (Burki, 2019; Van Der Linden, 2022).”
Misinformation, Anticipated Regret, and Vaccine-Related Behaviors
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“A proportion of the U.S. public eschew vaccination, citing concerns about the dangerous side effects of the vaccines (Burki, 2019; Machado et al., 2021).”
BackgroundLack of evidence for correlation between COVID-19 infodemic and vaccine acceptancePreprint
Valensise, C. M., Cinelli, M., Nadini, M., Galeazzi, A., Peruzzi, A., Etta, G., Zollo, F., Baronchelli, A., & Quattrociocchi, W. (2021) · arXiv (Cornell University) · doi:10.48550/arxiv.2107.07946 · Cited by 18
“The first states that infodemic has a substantial impact on orienting individual decisions [1, 2].”
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Miyazaki, K., Uchiba, T., Tanaka, K., et al. (2022) · Research Square · doi:10.21203/rs.3.rs-1289044/v1 · Cited by 6
Misinformation Due to Asymmetric Information SharingPreprint
Buechel, B., Kloessner, S., Meng, F., et al. (2022) · SSRN Electronic Journal · doi:10.2139/ssrn.4174209 · Cited by 6
“These beliefs may then generate various socially harmful outcomes, such as lower vaccination coverage or political riots (Pennycook and Rand, 2021; Burki, 2019).”
Enhancing trust and transparency for public health programs
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“The situation was such that video platforms were overwhelmed with low-quality and misleading content (41, 44, 45).”
CovidTrak: A Vision on Social Intelligence-Empowered COVID-19 Contact Tracing
Rashid, M. T., & Wang, D. (2022) · IEEE Transactions on Computational Social Systems · doi:10.1109/tcss.2022.3195103 · Cited by 5
“For example, people might exaggerate the state of their health on social media and raise false alarms about being infected by COVID-19 [139].”
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“These results support the suggestion that the traditional media played a moderating role, filtering in scientific information and fact-checking, albeit imperfectly, for its audience.(20) On the other hand, exposure to anti-vaccine information on social media is widespread, as evidenced by the fact that in the United K…”
ResultTwitter discussions on breastfeeding during the COVID-19 pandemic
Jagarapu, J., Diaz, M. I., Lehmann, C. U., & Medford, R. J. (2023) · International Breastfeeding Journal · doi:10.1186/s13006-023-00593-x · Cited by 6
“While social media is beneficial for instant information dissemination, the threat of vaccine misinformation on social media to public health is real [27].”
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“Topics related to misinformation, such as “vaccine” or “the relationship between coronavirus and 5G” have gained scientific interest across social media platforms like Twitter and Instagram [14-16] and among various countries [17].”
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Potential determinants of vaccine hesitancy among celiac disease patients: a single cohort analysis
Rehman, S., Rehman, E., & Holý, O. (2023) · Frontiers in Public Health · doi:10.3389/fpubh.2023.1061617 · Cited by 4
“With the strength of its impact, social media has helped to mainstream not only vaccination advocacy but also healthcare misconceptions, resulting in rising vaccine hesitation over the last decades (30).”
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Zhang, B., Naderi, N., Mishra, R., & Teodoro, D. (2023) · medRxiv · doi:10.1101/2023.04.11.22281038 · Cited by 4
“Recently, health misinformation-related topics, like “vaccine” or “the relationship between coronavirus and 5G”, on social media platforms, such as Twitter and Instagram[13–15], and across countries [16] have gained scientific interest.”
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Buturoiu, R., Udrea, G., Dumitrache, A. C., & Corbu, N. (2021) · Central European Journal of Communication · doi:10.51480/1899-5101.14.2(29).3 · Cited by 3
Individuals’ perceptions and information sources on vaccination in Greece
Skarpa, P. E., & Garoufallou, E. (2022) · Population Medicine · doi:10.18332/popmed/146003 · Cited by 3
Misinformation in Social Media Platforms and Web Articles: a Dataset to Infer User Stance
Abeysinghe, B., Vulupala, G. R., & Sunderraman, R. (2022) · IEEE International Conference on Semantic Computing (ICSC) · doi:10.1109/icsc52841.2022.00051 · Cited by 3
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“56 Nevertheless, research has supported the idea that in fl uenza and pneumococcal vaccines are generally well tolerated by patients with cancer and those undergoing systemic therapy.”
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“Recently, health researchers, medical professionals, and health care authorities have worried about the spread of all sorts of vaccination information online and the potential threat it represents to global health (Larson, 2018; Burki, 2019; Ghebreyesus, 2019).”
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Miyazaki, K., Uchiba, T., Tanaka, K., & Sasahara, K. (2021) · arXiv (Cornell University) · Cited by 3
Youth COVID-19 Vaccine Engagement in Ealing, London, United Kingdom
Schmidt-Sane, M. M., Hrynick, T. A., Southall Community Alliance SCA, Forgacz-Cooper, C., & Curtis, S. (2022) · doi:10.19088/ids.2022.039 · Cited by 3
Structural equation modeling of factors influencing childhood vaccination in Saudi Arabia
Hobani, F., Alharthi, A., & Alharbi, M. F. (2025) · BMC Public Health · doi:10.1186/s12889-025-23657-5 · Cited by 2
“Additionally, social media platforms such as Facebook and X (formerly known as Twitter) have further amplified misinformation, including false claims about vaccine safety and exaggerated risks of side effects, that influenced parental decisions [14–16].”
ACCEPTANCE, CONCERNS AND KNOWLEDGE OF COVID-19 VACCINE: AN EARLY BATTLE AGAINST THE PANDEMIC
Malaysia, U. S. I., Ismail, S., Mohamad, S. F. S., Malaysia, U. S. I., Mohamad, S. N. S., Malaysia, U. S. I., Rosli, F. A., & Malaysia, U. S. I. (2022) · Journal of Sustainability Science and Management · doi:10.46754/jssm.2022.05.001 · Cited by 2
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“Misinformation and antivaccination sentiments have been widespread and infrequently moderated on social media platforms [7], despite the growing rate of people acquiring their news through platforms such as Facebook and Twitter [8,9].”
BackgroundLack of influence of social media on vaccine decision-making by university students in Ireland
Moore, L. E., Vučen, S. R., & Moore, A. (2023) · Human Vaccines & Immunotherapeutics · doi:10.1080/21645515.2023.2287279 · Cited by 2
“12,33 Overall, these results suggest that vaccine hesitant students do not unfollow discordant views.”
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“These interactions are useful for identifying how children’s health topics are discussed and how perceptions, risk awareness, and (mis)information about children’s health propagate through social media [22].”
BackgroundInformation and vaccine hesitancy: The role of broadband Internet
Amaral‐Garcia, S., Nardotto, M., Propper, C., & Valletti, T. (2024) · Health Economics · doi:10.1002/hec.4856 · Cited by 2
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“The WHO defines vaccine hesi-tancy as a “delay in the acceptance of vaccines, despite the availability of vaccination services” [16].”
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“Thus, the targeted use of social media campaigns and emails may provide a meaningful strategy to combat knowledge barriers among vaccine-hesitant individuals, thereby addressing imprecise information online [66].”
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Socio-technical context for insertable devices
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“Misinformation about the negative effects of vaccines (Burki, 2019) and recent unfounded claims that COVID-19 vaccines contain tracking microchips seem to have an extraordinary level of support (Goodman and Carmichael, 2020; Sallam et al., 2021).”
BackgroundThe Use of Blockchain in Fighting Medical Misinformation: A Concept Paper
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“Many conspiracy theories and misinformation that have circulated during the current pandemic undermine the importance, safety or effectiveness of COVID-19 vaccines, building on and extending pre-pandemic conspiracist ideas about vaccines in general (e.g., Burki, 2019).”
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“The spread of vaccine-related misinformation through social networks is a key driver of vaccine hesitancy (Burki 2019; Hotez et al. 2020; Pierri et al. 2022; Lee et al. 2022).”
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“Social media applications have thus contributed at least in part to the rapid growth of the antivaccine movement [2].”
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“For example, during pandemics, if the development and provision of vaccines are delayed owing to opposition, it could lead to major obstructions in people’s lives and economic operations [1].”
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Do the Most Cited Web Sources Provide Proper Information on Influenza Vaccination?
Sarıcaoğlu, E. M., Gholizadeh, A., Kırım, C., et al. (2021) · Infectious Diseases and Clinical Microbiology · doi:10.36519/10.36519/idcm.2021.71
The Challenges of the COVID-19 Infodemic
Mirek-Rogowska, A., & Gajdka, K. (2021) · Practice, progress, and proficiency in sustainability · doi:10.4018/978-1-7998-8339-5.ch003
Bae, J., Blumenthal, S. J., Dhaliwal, J., Bergin, S., Sarma, S. E., & Raskar, R. (2021) · doi:10.2196/preprints.26910
“Misinformation spread on social media has also been a significant contributor to anti-vaxer beliefs, and continues to proliferate in the setting of COVID-19 [56, 57, 58].”
BackgroundPushkar, K., Kapoor, S., Teli, P. T., Sahu, R., Bobdey, S., & Kaushik, S. K. (2022) · International Journal of Community Medicine and Public Health · doi:10.18203/2394-6040.ijcmph20220227
Wozniak, T. R. (2022) · Chapman University Digital Commons (Chapman University) · doi:10.36837/chapman.000357
Youth COVID-19 Vaccine Engagement in Cleveland, Ohio, United States
Schmidt-Sane, M. M., Benninger, E., Hrynick, T. A., & Ripoll, S. (2022) · doi:10.19088/ids.2022.040
Advocacy Efforts in Pediatrics
Kumar, A., & Shaw, P. (2022) · Springer eBooks · doi:10.1007/978-3-030-98222-5_13
Schmidt-Sane, M. M., Hrynick, T. A., Benninger, E., McGrath, J. W., Ripoll, S., Athreya, B., & Schulte, J. (2022) · doi:10.5871/c19-recovery/m-s-s-t-h-e-b-j-m-s-t-b-a-j-s
Wood, R. M., Juanchich, M., Ramirez, M., et al. (2022) · doi:10.5871/c19-recovery/m-j-m-r-s-z
What Happens in Vegas Stays in China
Kokas, A. (2022) · Oxford University Press eBooks · doi:10.1093/oso/9780197620502.003.0002
Kokas, A. (2022) · Oxford University Press eBooks · doi:10.1093/oso/9780197620502.002.0006
Kokas, A. (2022) · Oxford University Press eBooks · doi:10.1093/oso/9780197620502.002.0004
Metadata
- Authors
- Burki, T.
- Corresponding author
- Burki, Talha
- Venue
- The Lancet Digital Health
- Publisher
- Elsevier BV
- Published
- 2019-10
- Volume
- 1
- Issue
- 6
- Pages
- e258-e259
- ISSN
- 2589-7500 (ISSN-L)
- OpenAlex
- W2977219551
- Cited by
- 243
- References
- 0
- Citations by year
- 2026: 16 · 2025: 26 · 2024: 27 · 2023: 32 · 2022: 74 · 2021: 52 · 2020: 15 · 2019: 1
- FWCI
- 71.50
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Locations
- The Lancet Digital Health (publishedVersion, cc-by)
- Topics
- Social Sciences › Sociology and Political Science › Misinformation and Its Impacts
- Social Sciences › Health › Vaccine Coverage and Hesitancy
- Social Sciences › Health › Social Media in Health Education
- Keywords
- vaccine misinformation, social media, anti-vaccine movement, MMR vaccine, herd immunity, vaccination coverage, measles elimination, misinformation countermeasures, online health information
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
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