The DOI matches its Crossref record; 23 of the 23 references it cites were found in a registry or an index.
Opening doors to clinical trial participation among Hispanics: Lessons learned from the Spanish translation of ResearchMatch
Open accessAbstract
Introduction: Clinical trial participation among US Hispanics remains low, despite a significant effort by research institutions nationwide. ResearchMatch, a national online platform, has matched 113,372 individuals interested in participating in research with studies conducted by 8778 researchers. To increase accessibility to Spanish speakers, we translated the ResearchMatch platform into Spanish by implementing tenets of health literacy and respecting linguistic and cultural diversity across the US Hispanic population. We describe this multiphase process, preliminary results, and lessons learned. Methods: Translation of the ResearchMatch site consisted of several activities including: (1) improving the English language site’s reading level, removing jargon, and using plain language; (2) obtaining a professional Spanish translation of the site and incorporating iterative revisions by a panel of bilingual community members from diverse Hispanic backgrounds; (3) technical development and launch; and (4) initial promotion. Results: The Spanish language version was launched in August 2018, after 11 months of development. Community input improved the initial translation, and early registration and use by researchers demonstrate the utility of Spanish ResearchMatch in engaging Hispanics. Over 12,500 volunteers in ResearchMatch self-identify as Hispanic (8.5%). From August 2018 to March 2020, 162 volunteers registered through the Spanish language version of ResearchMatch, and over 500 new and existing volunteers have registered a preference to receive messages about studies in Spanish. Conclusion: By applying the principles of health literacy and cultural competence, we developed a Spanish language translation of ResearchMatch. Our multiphase approach to translation included key principles of community engagement that should prove informative to other multilingual web-based platforms.
Overview
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Integrity signals
Registry
Cites
Statistics
Verification
Claims the paper makes
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
Seven included studies centred on the recruitment of Hispanic or Latin American individuals.
“Although 7 studies centred on the recruitment of Hispanic or Latin American individuals [12, 15, 36, 50, 51, 57, 66], most of them did not differentiate between the terms Hispanic”
From Enablers and barriers of clinical trial participation in adult patients from minority ethnic groups: a systematic review (2025) · cites this paper as [36]
Self-check
Percentages, sums and reported differences re-computed from the paper’s own numbers.
The self-check needs the paper’s full text.
Citations
Cites
George, S., Duran, N., & Norris, K. (2014) · American Journal of Public Health · doi:10.2105/ajph.2013.301706 · Cited by 1,603
Are Racial and Ethnic Minorities Less Willing to Participate in Health Research?
Wendler, D. S., Kington, R. S., Madans, J. H., Wye, G. V., Christ‐Schmidt, H., Pratt, L. A., Brawley, O. W., Gross, C. P., & Emanuel, E. J. (2005) · PLoS Medicine · doi:10.1371/journal.pmed.0030019 · Cited by 874
ResearchMatch: A National Registry to Recruit Volunteers for Clinical Research
Harris, P. A., Scott, K. W., Lebo, L. A., Hassan, N. N., Lightner, C., & Pulley, J. M. (2011) · Academic Medicine · doi:10.1097/acm.0b013e31823ab7d2 · Cited by 390
Self-citationIntegrating Literacy, Culture, and Language to Improve Health Care Quality for Diverse Populations
Andrulis, D. P., & Brach, C. (2007) · American Journal of Health Behavior · doi:10.5993/ajhb.31.s1.16 · Cited by 251
Integrating literacy, culture, and language to improve health care quality for diverse populations.
Andrulis, D. P., & Brach, C. (2007) · PubMed · doi:10.5555/ajhb.2007.31.supp.s122 · Cited by 232
Ford, M., Siminoff, L., Pickelsimer, E., Mainous, A., Smith, D. W., Diaz, V., Soderstrom, L. H., Jefferson, M., & Tilley, B. (2013) · Health & Social Work · doi:10.1093/hsw/hlt001 · Cited by 141
Rethinking the Vulnerability of Minority Populations in Research
Rogers, W., & Lange, M. M. (2013) · American Journal of Public Health · doi:10.2105/ajph.2012.301200 · Cited by 85
Development of the Initial Surveys for the All of Us Research Program
Cronin, R. M., Jerome, R. N., Mapes, B. M., Andrade, R., Johnston, R., Ayala, J., Schlundt, D. G., Bonnet, K. R., Kripalani, S. B., Goggins, K. M., et al. (2019) · Epidemiology · doi:10.1097/ede.0000000000001028 · Cited by 82
Self-citationGordon, E., Feinglass, J., Carney, P., Vera, K., Olivero, M., Black, A., O'Connor, K., MacLean, J., Nichols, S., Sageshima, J., et al. (2016) · Transplantation · doi:10.1097/tp.0000000000000932 · Cited by 75
Solomon, F. M., Eberl-Lefko, A. C., Michaels, M., et al. (2005) · Health Promotion Practice · doi:10.1177/1524839905278447 · Cited by 72
Wallington, S. F., Luta, G., Noone, A., Caicedo, L., Lopez‐Class, M., Sheppard, V. B., Spencer, C., & Mandelblatt, J. S. (2011) · Journal of Community Health · doi:10.1007/s10900-011-9450-y · Cited by 64
Mexican-American perspectives on participation in clinical trials: A qualitative study
Arévalo, M., Heredia, N. I., Krasny, S., Rangel, M. L., Gatus, L. A., McNeill, L. H., & Fernández, M. E. (2016) · Contemporary Clinical Trials Communications · doi:10.1016/j.conctc.2016.06.009 · Cited by 56
Garza, M. A., Quinn, S. C., Li, Y., Assini‐Meytin, L. C., Casper, E. T., Fryer, C. S., Butler, J. T., Brown, N. A., Kim, K. H., & Thomas, S. B. (2017) · Contemporary Clinical Trials Communications · doi:10.1016/j.conctc.2017.05.009 · Cited by 56
Rhodes, S. D., Alonzo, J., Mann‐Jackson, L., Tanner, A. E., Vissman, A. T., Martínez, O., Rodriguez-Celedon, R., Garcia, J. M., Hall, J. E. A., Song, E., et al. (2018) · Journal of Clinical and Translational Science · doi:10.1017/cts.2018.314 · Cited by 53
Brelsford, K. M., Ruiz, E., & Beskow, L. M. (2018) · Clinical Trials · doi:10.1177/1740774518801591 · Cited by 39
Issues in Biomedical Research: What Do Hispanics Think?
Ulrich, A. K., Thompson, B., Livaudais, J. C., et al. (2012) · American Journal of Health Behavior · doi:10.5993/ajhb.37.1.9 · Cited by 30
Developing and Pilot Testing a Spanish Translation of CollaboRATE for Use in the United States
Forcino, R. C., Bustamante, N., Thompson, R., Percac‐Lima, S., Elwyn, G. J., Pérez-Arechaederra, D., & Barr, P. J. (2016) · PLoS ONE · doi:10.1371/journal.pone.0168538 · Cited by 25
Taylor, H. A. (2009) · Journal of Empirical Research on Human Research Ethics · doi:10.1525/jer.2009.4.2.65 · Cited by 22
Butler, S. F., Zacharoff, K. L., Budman, S. H., Jamison, R. N., Black, R. A., Dawsey, R., & Ondarza, A. B. (2013) · Pain Medicine · doi:10.1111/pme.12098 · Cited by 13
Semantic transference for enriching multilingual biomedical knowledge resources
Pérez, M., & Berlanga, R. (2015) · Journal of Biomedical Informatics · doi:10.1016/j.jbi.2015.08.026 · Cited by 7
Hellrich, J., & Hahn, U. (2014) · PubMed · Cited by 4
Jerome, R. N., Dunkel, L., Kennedy, N., Olson, E. J., Pulley, J. M., Bernard, G. R., Wilkins, C. H., & Harris, P. A. (2019) · Journal of Clinical and Translational Science · doi:10.1017/cts.2019.404 · Cited by 3
Self-citationUser study of a Spanish-language ClinicalTrials.gov prototype system.
Rosemblat, G., & Tse, T. (2006) · PubMed · Cited by 1
Flagged first, then by citations
Cited by
Sorted by citations
Alarcón Garavito, G. A., Gilchrist, K., Ciurtin, C., Khanna, S., Chambers, P., McNally, N., Merivale, E., Carr, E., Yu, R., & Vindrola-Padros, C. (2025) · Trials · doi:10.1186/s13063-025-08769-y · Cited by 42
“T h e a b s e n c e o f a w o r k a b l e m e t h o d t o t r a n s l a t e r e s e a r c h m a t e r i a l s l i k e q u a l i t y ‑ o f ‑ l i f e m e a s u r e m e n t t oo l s a n d i n f o r m e d c o n s e n t d o c u m e n t s [ 36 ] –”
Metadata
- Authors
- Byrne, L. M., Cook, S. K., Kennedy, N., Russell, M., Jerome, R. N., Tan, J., Barajas, C., Wilkins, C. H., & Harris, P. A.
- Affiliations
- Vanderbilt University Medical Center (US)
- Vanderbilt-Ingram Cancer Center (US)
- Meharry Medical College (US)
- Corresponding author
- Harris, Paul A.
- ORCID
- Venue
- Journal of Clinical and Translational Science
- Publisher
- Cambridge University Press (CUP)
- Published
- 2020-09-11
- Volume
- 5
- Issue
- 1
- Pages
- e46-e46
- ISSN
- 2059-8661 (ISSN-L)
- PMC
- PMC8057389
- OpenAlex
- W3084718121
- Cited by
- 21
- References
- 23
- Citations by year
- 2026: 2 · 2025: 7 · 2024: 3 · 2023: 4 · 2022: 4 · 2021: 1
- FWCI
- 1.69
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Locations
- Journal of Clinical and Translational Science (publishedVersion, cc-by)
- PubMed Central (publishedVersion, cc-by)
- PubMed (publishedVersion)
- DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion)
- Funders
- Vanderbilt University
- Vanderbilt Institute for Clinical and Translational Research (UL1-TR002243)
- Vanderbilt University Medical Center (U24TR001579, UL1 TR002243)
- National Institutes of Health (U24TR001579, UL1TR002243)
- U.S. National Library of Medicine
- National Center for Advancing Translational Sciences
- Topics
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Ethics in Clinical Research
- Health Sciences › Health Professions › General Health Professions › Health Literacy and Information Accessibility
- Health Sciences › Health Professions › General Health Professions › Interpreting and Communication in Healthcare
- Keywords
- clinical trial participation, Hispanic population, Spanish translation, health literacy, cultural competence, community participation, plain language
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review
