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Surveillance of cerebral palsy in Europe: a collaboration of cerebral palsy surveys and registers
Abstract
Although cerebral palsy (CP) is the most common cause of motor deficiency in young children, it occurs in only 2 to 3 per 1000 live births. In order to monitor prevalence rates, especially within subgroups (birthweight, clinical type), it is necessary to study large populations. A network of CP surveys and registers was formed in 14 centres in eight countries across Europe. Differences in prevalence rates of CP in the centres prior to any work on harmonization of data are reported. The subsequent process to standardize the definition of CP, inclusion/exclusion criteria, classification, and description of children with CP is outlined. The consensus that was reached on these issues will make it possible to monitor trends in CP rate, to provide a framework for collaborative research, and a basis for services planning among European countries.
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Citations
Cited by
Clinical Prognostic Messages from a Systematic Review on Cerebral Palsy
Novak, I., Hines, M., Goldsmith, S., & Barclay, R. (2012) · Pediatrics · doi:10.1542/peds.2012-0924 · Cited by 608
Sadowska, M., Sarecka-Hujar, B., & Kopyta, I. (2020) · Neuropsychiatric Disease and Treatment · doi:10.2147/ndt.s235165 · Cited by 601
Pierrat, V., Marchand-Martin, L., Arnaud, C., Kaminski, M., Resche-Rigon, M., Lebeaux, C., Bodeau-Livinec, F., Morgan, A. S., Goffinet, F., Marret, S., et al. (2017) · BMJ · doi:10.1136/bmj.j3448 · Cited by 482
Ancel, P.-Y., Livinec, F., Larroque, B., Marret, S., Arnaud, C., Pierrat, V., Dehan, M., N′Guyen, S., Escande, B., Burguet, A., et al. (2006) · Pediatrics · doi:10.1542/peds.2005-0091 · Cited by 389
Oromotor dysfunction and communication impairments in children with cerebral palsy: a register study
PARKES, J., HILL, N., PLATT, M. J., & DONNELLY, C. (2010) · Developmental Medicine & Child Neurology · doi:10.1111/j.1469-8749.2010.03765.x · Cited by 274
Metadata
- Authors
- (SCPE), S. O. C. P. I. E.
- Venue
- Developmental Medicine and Child Neurology
- Publisher
- Wiley
- Published
- 2001-02-13
- Volume
- 42
- Issue
- 12
- Pages
- 816
- ISSN
- 0012-1622 (ISSN-L)
- 1469-8749
- OpenAlex
- W4251332714
- Cited by
- 908
- References
- 0
- FWCI
- 4.46
- Type
- journal article
- Language
- en
- Open access
- closed
- Licence
- doi.wiley.com/10.1002/tdm_license_1 (tdm, 5313 d)
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- (SCPE), S. O. C. P. I. E. (2001). Surveillance of cerebral palsy in Europe: a collaboration of cerebral palsy surveys and registers. Developmental Medicine and Child Neurology. https://doi.org/10.1017/s0012162200001511
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Contains information from the Semantic Scholar Academic Graph Datasets, made available under the ODC Attribution License (ODC-BY 1.0).
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