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Cited by 127Dementia and Cognitive Impairment ResearchGeriatric Care and Nursing HomesNursing care and research

The DOI matches its Crossref record; 45 of the 45 references it cites were found in a registry or an index.

Needs of informal caregivers during transition from home towards institutional care in dementia: a systematic review of qualitative studies

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Afram, Basema, Verbeek, Hilde, Bleijlevens, Michel H.C., Hamers, Jan P.H.·2015·International Psychogeriatrics
DOI 10.1017/s1041610214002154
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Abstract

BACKGROUND: Alongside providing care, informal caregivers of people with dementia often need support and guidance themselves, especially during difficult periods such as the care-transition from home towards a nursing home. Knowledge on needs of informal caregivers during this period is sparse. This study aims to provide insight into problems and needs of informal caregivers caring for people with dementia during care-transition from home-based care to institutional long-term care. METHODS: A systematic electronic search in CINAHL, Cochrane, Medline, PsycINFO, Pubmed and Web of Knowledge. All qualitative articles up to September 2013 were considered. The included articles underwent a quality appraisal. Thematic analysis was used to analyze problems and needs described in the articles. RESULTS: Thirteen publications were included providing 14 topics comprising needs and problems of informal caregivers during the care-transition period. The most stated topics were: "emotional concerns" (e.g. grief and shame about the decision), "knowledge/information" (e.g. understanding the care system) and "support" (e.g. need for counseling). Similar topics were found prior and after admission, with examples specific to the either the home or nursing home situation. CONCLUSIONS: The care-transition period should be considered a continuum, as similar needs and problems were identified prior and after admission. This should be kept in mind in developing support and guidance for informal caregivers during this process. Whereas currently the situation prior and post admission are seen and treated as adjacent stages, they should be considered one integrated stage. Multicomponent programmes should be offered that are designed in a continuous way, starting prior to admission, and continuing after.

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Crossref · 10.1017/s1041610214002154

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Research works printed but not linked: 1

  1. Paun, 2006, Hearing and healing the hurts of dementia, part 1: nursing home placement of persons with Alzheimer's disease, Alzheimer's Care Quarterly, 7, 104

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Metadata

Authors
Afram, B., Verbeek, H., Bleijlevens, M. H. C., & Hamers, J. P. H.
Affiliations
Maastricht University (NL)
Corresponding author
  • Afram, Basema
  • Hamers, Jan P.H.
ORCID
Venue
International Psychogeriatrics
Publisher
Elsevier BV
Published
2015-06
Volume
27
Issue
6
Pages
891-902
ISSN
1041-6102 (ISSN-L)
DOI
10.1017/s1041610214002154
OpenAlex
W2139101882
Cited by
127
References
45
Citations by year
2026: 8 · 2025: 14 · 2024: 13 · 2023: 15 · 2022: 14 · 2021: 15 · 2020: 12 · 2019: 11 · 2018: 8 · 2017: 8 · 2016: 5 · 2015: 3
FWCI
0.73
Type
journal article
Language
en
Open access
Licence
Locations
  • International Psychogeriatrics (publishedVersion, cc-by-nc-nd)
  • PubMed (publishedVersion)
  • Research Publications (Maastricht University) (publishedVersion, cc-by-nc-nd)
  • Research Publications (Maastricht University) (submittedVersion)
Topics
  • Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
  • Health Sciences › Medicine › Geriatrics and Gerontology › Geriatric Care and Nursing Homes
  • Health Sciences › Nursing › Research and Theory › Nursing care and research
Keywords
informal caregivers, dementia, care transitions, long-term care facilities, caregiver needs, caregiver support, grief and shame, counseling, caregiver knowledge
MeSH terms
Aged, Dementia, Health Services Needs and Demand, Home Care Services, Humans, Nursing Homes, Caregivers, Qualitative Research

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