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Cited by 481Cancer survivorship and careNursing care and researchFamily Caregiving in Mental Illness

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The Caregiver Quality of Life Index–Cancer (CQOLC) scale: development and validation of an instrument to measure quality of life of the family caregiver of patients with cancer

Weitzner, M. A., Jacobsen, P. B., Wagner, H., Friedland, J., Cox, C.·1999·Quality of Life Research
DOI 10.1023/a:1026407010614
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Abstract

Family caregivers have become increasingly responsible for providing home care for cancer patients. Research has documented the distress of family caregivers; however, little has been done to evaluate the broader impact of caregiving on quality of life (QoL). The objectives of this study were to evaluate the reliability and validity of the Caregiver Quality of Life Index-Cancer (CQOLC), a new self-report instrument. Two hundred and sixty-three family caregivers of patients with lung, breast or prostate neoplasms participated. Test-retest reliability was 0.95 and internal consistency was 0.91. As expected, there were moderate correlations with overall mental health (r = 0.64), emotional distress (r = -0.50 to -0.52), burden (r = -0.65) and patient's performance status (r = -0.47) and low correlations with overall physical health (r = 0.13), social support (r = 0.22) and social desirability (r = 0.08). These results show that increased overall mental health is associated with better QoL, while more emotional distress and worsening patient performance status are associated with poorer QoL. Thus, the CQOLC appears to possess adequate validity, test-retest reliability and internal consistency. Future directions include further evaluation of sensitivity to change and factor analysis to determine the principal health-related QoL domains evaluated by the CQOLC.

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  • The Caregiver Quality of Life-Cancer scale is a reliable and valid 35-item measure of quality of life in cancer caregivers.

    “The Caregiver Quality of Life – Cancer scale is a reliable and valid 35-item measure of quality of life in cancer caregivers (Weitzner et al. 1999; Edwards & Ung, 2002).”

    From Utilizing a Manualized Therapy to Provide Parallel Treatment to Older Adults With Cancer and Their Caregivers: A Case Study (2022) · cites this paper as Weitzner et al. 1999

  • Melissa's four-point quality-of-life change is well below the published standard deviations of 16.3 to 24.7 for the Caregiver Quality of Life-Cancer scale.

    “the four-point change she reported is well below published standard deviations for the scale that range from 16.3 to 24.7 (Weitzner, Jacobsen, Wagner, Friedland, & Cox, 1999).”

    From Utilizing a Manualized Therapy to Provide Parallel Treatment to Older Adults With Cancer and Their Caregivers: A Case Study (2022) · cites this paper as Weitzner, Jacobsen, Wagner, Friedland, & Cox, 1999

  • Otras publicaciones reportan características similares en términos de sexo, relación con el paciente, ingresos económicos bajos (menores a USD 500) y un alto grado de compromiso del cuidador manifestado por el número de horas al día dedicadas a su atención.

    “Otras publicaciones reportan características similares en términos de sexo, relación con el paciente, ingresos económicos bajos (menores a USD 500) (42-44) y un alto grado de compromiso del cuidador por atender a su familiar enfermo, manifestado por el número de horas al día dedicadas a su atención (45, 46).”

    From Factores relacionados con sobrecarga del cuidador informal de pacientes con cáncer avanzado (2024) · cites this paper as [44]

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Metadata

Authors
Weitzner, M. A., Jacobsen, P. B., Wagner, H., Friedland, J., & Cox, C.
Affiliations
Moffitt Cancer Center (US)
ORCID
Venue
Quality of Life Research
Publisher
Springer Science and Business Media LLC
Published
1999-01
Volume
8
Issue
1-2
Pages
55-63
ISSN
  • 0962-9343 (ISSN-L)
  • 1573-2649
DOI
10.1023/a:1026407010614
OpenAlex
W1994281331
Cited by
481
References
58
Citations by year
2026: 19 · 2025: 23 · 2024: 28 · 2023: 27 · 2022: 27 · 2021: 33 · 2020: 32 · 2019: 35 · 2018: 22 · 2017: 18 · 2016: 21 · 2015: 31 · 2014: 21 · 2013: 24 · 2012: 18
FWCI
1.22
Type
journal article
Language
en
Open access
closed
Licence
Locations
  • Quality of Life Research (publishedVersion)
  • PubMed (publishedVersion)
Topics
  • Health Sciences › Medicine › Oncology › Cancer survivorship and care
  • Health Sciences › Nursing › Research and Theory › Nursing care and research
  • Social Sciences › Psychology › Clinical Psychology › Family Caregiving in Mental Illness
Keywords
family caregivers, caregiver quality of life, cancer, home care, emotional distress, caregiver burden, mental health, performance status, lung cancer, breast cancer, prostate cancer, self-report measures, psychometric validation
MeSH terms
Activities of Daily Living, Adult, Aged, Aged, 80 and over, Family, Female, Health Status, Humans, Male, Mental Health, Middle Aged, Neoplasms, Quality of Life, Surveys and Questionnaires, Sensitivity and Specificity, Social Support, Stress, Psychological, Reproducibility of Results, Caregivers, Cost of Illness

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