Cited by 160Grief, Bereavement, and Mental HealthNursing care and researchDementia and Cognitive Impairment Research

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Long-term caregiving: What happens when it ends?

Robinson-Whelen, Susan, Tada, Yuri, MacCallum, Robert C., McGuire, Lynanne, Kiecolt-Glaser, Janice K.·2001·Journal of Abnormal Psychology

DOI 10.1037/0021-843x.110.4.573

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Abstract

Data from a longitudinal study were used to examine what happens to caregivers in the years after their cognitively impaired spouse dies. Comparisons of 42 current caregivers, 49 former caregivers, and 52 noncaregivers over a 4-year period showed that former caregivers did not improve on several measures of psychological well-being. Although former caregivers experienced decreases in stress and negative affect, their scores on depression, loneliness, and positive affect did not rebound to levels comparable to noncaregivers and, in fact, remained similar to those of current caregivers up to 3 years after caregiving had ceased. The most consistent predictors of postcaregiving outcomes were social support and intrusive-avoidant thinking about caregiving. The data suggest that some consequences of long-term caregiving may be long-term as well. The needs of former spousal caregivers warrant greater attention both in research and in practice.

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Authors: Robinson-Whelen, S., Tada, Y., MacCallum, R. C., McGuire, L., & Kiecolt-Glaser, J. K.
Venue: Journal of Abnormal Psychology
Publisher: American Psychological Association (APA)
Published: 2001-11
Volume: 110
Issue: 4
Pages: 573-584
ISSN: 0021-843X (ISSN-L)
1939-1846
DOI: 10.1037/0021-843x.110.4.573
OpenAlex: W2014129467
Cited by: 160
References: 64
Citations by year: 2026: 2 · 2025: 9 · 2024: 6 · 2023: 7 · 2022: 4 · 2021: 12 · 2020: 4 · 2019: 6 · 2018: 5 · 2017: 5 · 2016: 14 · 2015: 6 · 2014: 7 · 2013: 5 · 2012: 7
FWCI: 7.14
Type: journal article
Language: en
Open access: closed
Locations: Journal of Abnormal Psychology (publishedVersion)
PubMed (publishedVersion)
Funders: National Institutes of Health (5r01mh050538-05, 5k02mh001467-05, 5r37mh042096-15)
National Institute on Aging (P01AG011585, P01-AG 11585)
National Institute of Mental Health (K02 MH01467, R37 MH42096, R01 MH50538)
Topics: Social Sciences › Psychology › Clinical Psychology › Grief, Bereavement, and Mental Health
Health Sciences › Nursing › Research and Theory › Nursing care and research
Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
Keywords: spousal caregiving, long-term caregiving, caregiver bereavement, death of a spouse, cognitive impairment, psychological well-being, depression, loneliness, social support, caregiver stress
MeSH terms: Aged, Alzheimer Disease, Family Health, Female, Humans, Long-Term Care, Longitudinal Studies, Male, Social Support, Caregivers

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Long-term caregiving: What happens when it ends?

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