The DOI matches its Crossref record; 72 of the 73 references it cites were found in a registry or an index.
A systematic review of psychological interventions for adolescents and young adults living with chronic illness
Abstract
OBJECTIVE: There is increasing recognition that adolescents and young adults (AYAs) with chronic illnesses experience common psychological challenges. This article reviewed published psychological interventions for AYAs with cancer, diabetes, juvenile idiopathic arthritis, sickle cell disease, and asthma. Common, efficacious intervention components were examined to generate clearer recommendations for future age-appropriate, evidence-based intervention development. METHODS: Five databases including MEDLINE, MEDLINE In Process & Non-Indexed Citations, PsycINFO, EMBASE, and CINAHL, were searched for studies involving AYAs aged 10-30 years, using quantitative two-group methods, published from 1979-2010. Of 1,233 abstracts, 87 were extracted for further analysis and a final 25 studies were eligible for inclusion. Thirteen of these studies included AYAs with diabetes, 7 studies involved AYAs with cancer, and 5 included AYAs with other illnesses. RESULTS: Educational interventions showed some significant positive results, particularly when targeted knowledge outcomes were measured. Several skills-based programs, some including parents, showed positive results, with moderate effect sizes. Interventions which taught communication skills, incorporated practical components (e.g., role-plays, homework), involved ≥6 sessions, and spanned at least 3 months in length, appeared more likely to achieve positive outcomes. CONCLUSIONS: Skills-based interventions delivered over multiple sessions may yield the most positive results in AYAs with chronic illness. Given the few peer-support groups eligible for review, their efficacy remains unclear. This review points to the need for intervention development that teaches adaptive coping skills, is grounded in theoretical frameworks, and adheres to strict randomization and independent assessments to evaluate efficacy in assisting AYAs adjust to chronic illness.
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“Our inclusion of an attention control (the peer-support group) was novel and aligned with recent calls in the field [81].”
From Providing psychological support to parents of childhood cancer survivors: ‘cascade’ intervention trial results and lessons for the future (2021) · cites this paper as [81]
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“The findings from a systematic literature review on psychological interventions for adolescents and young adults living with a chronic illness have shown these to have a positive impact (42).”
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“In addition, most systematic reviews have focused on general health variables such as QoL (Sansom-Daly et al., 2012), psychological well-being or adjustment (Beale, 2006; Plante et al., 2001) without examining underlying processes which could explain the success or the shortcomings of those…”
InfluentialMedication adherence in adolescents: physiological, psychosocial, and clinical perspectives
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“Medication use in this period cannot be guided solely by pharmacological principles but must also consider individual autonomy, psychosocial dynamics, and everyday treatment contexts (Kyngas et al. 2000; Taddeo et al. 2008; Sansom-Daly et al. 2012; Campagna et al. 2020; Farre et al. 2025).”
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“…or cancer) suggest that adaptive coping interventions can enhance adaptation or self-regulation in the face of adversity or severe distress, which can reduce anxiety and depression, or improve QoL by developing and training adaptive coping strategies (Kim et al., 2019; Sansom-Daly et al., 2012).”
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“Consistent with previous research (Sansom-Daly et al., 2012 ), this study found that chronic physical illness is strongly associated with poor mental health.”
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Assessing and Enhancing Psychosocial Functioning
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“…supporting the use of psychological support for specific conditions, such as chronic illness (e.g., Hossain et al. , 2021; Reynolds et al. , 2018; Sansom-Daly et al. , 2012), life events that cause sudden changes (e.g., pandemics, bereavement; e.g., Bertuzzi et al. , 2021; Johannsen et al. ,…”
BackgroundAssessing and Enhancing Psychosocial Functioning
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“Therefore, youth with chronic medical conditions would likely bene fi t from evidence-based psychological intervention to support functioning, mood, and quality of life (Sansom-Daly et al., 2012).”
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“Online psychological treatment has shown promising results for the psychological comorbidities of chronic diseases (Dear et al., 2022; Maisto et al., 2021; White et al., 2022), even in a population of Adolescents and Young Adults (AYAs) (Clarke et al., 2015,; Sansom-Daly et al., 2012).”
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“To advance the field, future research should prioritise rigorous evaluation of both psychosocial interventions (prehabilitation) and rehabilitation (during and post treatment) strategies and could include future explorations around the appropriateness of multimodal designs [78].”
Self-citationKittos, T., & Muscat, D. M. (2026) · Health Expectations · doi:10.1111/hex.70863
“Connecting with others with shared experience also facilitated empowerment, reinforcing prior research [26] and serving multiple purposes, including providing self‐ management tips [44] and validation [45].”
Carraway, M. (2014) · The Scholarship East Carolina University's Institutional Repository (East Carolina University)
Metadata
- Authors
- Sansom-Daly, U. M., Peate, M., Wakefield, C. E., Bryant, R. A., & Cohn, R. J.
- Affiliations
- UNSW Sydney (AU)
- Sydney Children's Hospital (AU)
- Venue
- Health Psychology
- Published
- 2012
- Volume
- 31
- Issue
- 3
- Pages
- 380-393
- ISSN
- 0278-6133 (ISSN-L)
- 1930-7810
- OpenAlex
- W1979918262
- Cited by
- 157
- References
- 73
- Citations by year
- 2026: 5 · 2025: 12 · 2024: 3 · 2023: 9 · 2022: 7 · 2021: 20 · 2020: 8 · 2019: 11 · 2018: 17 · 2017: 9 · 2016: 18 · 2015: 14 · 2014: 11 · 2013: 9 · 2012: 4
- FWCI
- 17.99
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Health Psychology (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Adolescent and Pediatric Healthcare
- Social Sciences › Psychology › Clinical Psychology › Family Support in Illness
- Health Sciences › Medicine › Endocrinology, Diabetes and Metabolism › Diabetes Management and Education
- Keywords
- adolescents and young adults, chronic disease, psychological intervention, cancer, diabetes mellitus, juvenile idiopathic arthritis, sickle cell disease, asthma, skills-based intervention, communication skills training, coping strategies, peer support groups, educational intervention, intervention efficacy
- MeSH terms
- Adaptation, Psychological, Adolescent, Chronic Disease, Humans, Male, Parents, Patient Education as Topic, Peer Group, Young Adult
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