Adolescents with a chronic condition: challenges living, challenges treating
Abstract
In this review, we aim to focus attention on the interaction between adolescents with chronic conditions and the health systems that support them. At least 12% of adolescents live with a chronic condition. Some conditions are characterised by increasing incidence (eg, diabetes) or improving survival rates (eg, cystic fibrosis), while others are concerning because of differentially poorer outcomes in adolescents in comparison to both children and adults (eg cancer). Growing evidence suggests that young people with chronic conditions are doubly disadvantaged--engaging in risky behaviours to at least similar if not higher rates as healthy peers, while having the potential for greater adverse health outcomes from these behaviours. In addition to efforts at improving survival, in order to improve their life chances, we need to better understand how the social and emotional outcomes of young people with a chronic disease can be improved, and better support young people's emerging capacity for self-management.
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The present findings are in accordance with prior evidence derived from studies focusing on chronic medical conditions in AYA (Sawyer et al., 2007).
“The present findings are in accordance to prior evidence derived from studies focusing on chronic medical conditions in AYA (Sawyer et al., 2007).”
From Involving patients' perspective in the development of an internet- and mobile-based CBT intervention for adolescents with chronic medical conditions: Findings from a qualitative study (2021) · cites this paper as Sawyer et al., 2007
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Youngblade, L. (2003) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/jsg029 · Cited by 22 · see citing works
Pregnancy in women with cystic fibrosis
Edenborough, F. P. (2002) · Acta Obstetricia Et Gynecologica Scandinavica · doi:10.1034/j.1600-0412.2002.810801.x · Cited by 21 · see citing works
Smoking‐related beliefs and behaviour of South Australians with diabetes
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Nursing competence in adolescent health: Anticipating the future needs of youth
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Psychological comorbidity in children with chronic conditions.
Vessey, J. A. (2000) · PubMed · Cited by 11 · see citing works
Perrin, J. M. (2002) · Ambulatory Pediatrics · doi:10.1367/1539-4409(2002)002
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Gravholt, C. H., Andersen, N. H., Conway, G. S., Dekkers, O. M., Geffner, M. E., Klein, K. O., Lin, A. E., Mauras, N., Quigley, C. A., Rubin, K., et al. (2017) · European Journal of Endocrinology · doi:10.1530/eje-17-0430 · Cited by 1,101 · see citing works
Vaccination of special populations: Protecting the vulnerable
Doherty, M., Schmidt-Ott, R., Santos, J. I., Stanberry, L. R., Hofstetter, A. M., Rosenthal, S. L., & Cunningham, A. L. (2016) · Vaccine · doi:10.1016/j.vaccine.2016.11.015 · Cited by 208 · see citing works
Chronic illness and disordered eating: a discussion of the literature
Quick, V. M., Byrd-Bredbenner, C., & Neumark-Sztainer, D. (2013) · Advances in Nutrition · doi:10.3945/an.112.003608 · Cited by 171 · see citing works
Sansom-Daly, U. M., Peate, M., Wakefield, C. E., Bryant, R. A., & Cohn, R. J. (2012) · Health Psychology · doi:10.1037/a0025977 · Cited by 157 · see citing works
Chu, P. Y., Maslow, G. R., von Isenburg, M., & Chung, R. J. (2015) · Journal of Pediatric Nursing · doi:10.1016/j.pedn.2015.05.022 · Cited by 149 · see citing works
The associations of chronic condition type and individual characteristics with transition readiness
Beal, S. J., Riddle, I. K., Kichler, J. C., Duncan, A., Houchen, A., Casnellie, L., Woodward, J., & Corathers, S. D. (2016) · Academic Pediatrics · doi:10.1016/j.acap.2016.06.007 · Cited by 117 · see citing works
Chronic conditions in adolescents
Jin, M., An, Q., & Wang, L. (2017) · Experimental and Therapeutic Medicine · doi:10.3892/etm.2017.4526 · Cited by 65 · see citing works
Bar, C., Ghobeira, R., Azzi, R., Ville, D., Riquet, A., Touraine, R., Chemaly, N., & Nabbout, R. (2019) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2019.04.027 · Cited by 49 · see citing works
Drew, S. (2007) · Chronic Illness · doi:10.1177/1742395307085236 · Cited by 37 · see citing works
Self-citationPickles, K., Eassey, D., Reddel, H. K., Locock, L., Kirkpatrick, S., & Smith, L. (2018) · Health Expectations · doi:10.1111/hex.12605 · Cited by 28 · see citing works
Geirhos, A., Lunkenheimer, F., Holl, R. W., Minden, K., Schmitt, A., Temming, S., Baumeister, H., & Domhardt, M. (2021) · Internet Interventions · doi:10.1016/j.invent.2021.100383 · Cited by 23 · see citing works
- Authors
- Sawyer, S. M., Drew, S., Yeo, M. S., & Britto, M. T.
- Affiliations
- Royal Children's Hospital (AU)
- Cincinnati Children's Hospital Medical Center (US)
- Corresponding author
- Sawyer, Susan M
- Venue
- The Lancet
- Publisher
- Elsevier BV
- Published
- 2007-04
- Volume
- 369
- Issue
- 9571
- Pages
- 1481-1489
- ISSN
- 0099-5355 (ISSN-L)
- 0140-6736
- OpenAlex
- W2096061227
- Cited by
- 656
- References
- 112
- Citations by year
- 2026: 24 · 2025: 24 · 2024: 38 · 2023: 34 · 2022: 29 · 2021: 46 · 2020: 40 · 2019: 39 · 2018: 36 · 2017: 36 · 2016: 56 · 2015: 46 · 2014: 38 · 2013: 32 · 2012: 28
- FWCI
- 6.01
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- The Lancet (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Health Professions › Speech and Hearing › Adolescent and Pediatric Healthcare
- Social Sciences › Sociology and Political Science › Family Support in Illness
- Health Sciences › Health Professions › General Health Professions › Child and Adolescent Health
- Keywords
- adolescents with chronic conditions, health care system, diabetes mellitus, cystic fibrosis, adolescent cancer, risk-taking, social-emotional outcomes, self-management, health outcomes
- MeSH terms
- Adolescent, Adolescent Behavior, Chronic Disease, Female, Humans, Male, Quality of Life, Self Care, Adolescent Health Services
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
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