Cited by 65Infant Development and Preterm CareEconomic and Financial Impacts of CancerHealthcare Policy and Management

The financial burden experienced by families of preterm infants after NICU discharge

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Lakshmanan, Ashwini, Song, Ashley Y., Belfort, Mandy B., Yieh, Leah, Dukhovny, Dmitry, Friedlich, Philippe S., Gong, Cynthia L.·2022·Journal of Perinatology

Abstract

Background and objectives Describe the financial burden and worry that families of preterm infants experience after discharge from the neonatal intensive care unit (NICU).Methods We surveyed 365 parents of preterm infants in a cross-sectional study regarding socio-demographics, supplemental security income (SSI), and financial worry. We completed a multivariable logistic regression model to examine the adjusted association of financial worry with modifiable factors.Results We found that 53% of participants worried about healthcare costs after NICU discharge. After adjusting for socio-demographic and infant characteristics, we identified that, aOR (95% CI), out-of-pocket costs from the NICU index hospitalization, 3.51 (1.7, 7.26) and durable medical equipment use, 2.41 (1.11, 5.23) was associated with increased financial worry while enrollment in SSI, 0.38 (0.19, 0.76) was associated with decreased financial worry.Conclusions We identified factors that could contribute to financial burden after NICU discharge that may advise future work to target financial support systems.

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  • Severity of medical issues, functional impairments, financial strain, and parental role alteration exacerbate family distress during and following a NICU admission.

    “Severity of medical issues, functional impairments, financial strain, and parental role alteration all play a role in exacerbating family distress during and following a NICU admission (Grunberg et al., 2020; Lakshmanan et al., 2022; Siva et al., 2023).”

    From “NICU Doesn’t Stop in the NICU”: Maternal Perspectives of the Impact of a NICU Experience over Time (2026) · cites this paper as Lakshmanan et al., 2022

    The Results and Discussion (page numbers unavailable in our copy) link NICU-related out-of-pocket costs and durable medical equipment use with increased financial worry after discharge; the Discussion says these costs may contribute to parental and family strain. The paper does not establish that severity of medical issues, functional impairments, or parental role alteration exacerbate family distress, nor does it assess distress during admission. Its measured outcome is financial worry, not family distress generally. (LLM, conf=0.85)

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Authors
Lakshmanan, A., Song, A. Y., Belfort, M. B., Yieh, L., Dukhovny, D., Friedlich, P. S., & Gong, C. L.
Affiliations
  • University of Southern California (US)
  • Johns Hopkins University (US)
  • Brigham and Women's Hospital (US)
  • Oregon Health & Science University (US)
Corresponding author
Lakshmanan, Ashwini
Venue
Journal of Perinatology
Published
2021-09-24
Volume
42
Issue
2
Pages
223-230
ISSN
  • 0743-8346 (ISSN-L)
  • 1476-5543
OpenAlex
W3201456923
Cited by
64
References
46
Citations by year
2026: 19 · 2025: 20 · 2024: 12 · 2023: 11 · 2022: 2
FWCI
6.17
Type
journal article
Language
en
Open access
Locations
  • Journal of Perinatology (publishedVersion)
  • PubMed Central (publishedVersion)
  • PubMed (publishedVersion)
Funders
David and Lucile Packard Foundation (Foundation Fund_Packard)
Topics
  • Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Infant Development and Preterm Care
  • Social Sciences › Economics, Econometrics and Finance › Economics and Econometrics › Economic and Financial Impacts of Cancer
  • Social Sciences › Economics, Econometrics and Finance › Economics and Econometrics › Healthcare Policy and Management
Keywords
financial burden, preterm infants, neonatal intensive care unit discharge, health care costs, out-of-pocket costs, durable medical equipment, Supplemental Security Income, family caregivers
MeSH terms
Financial Stress, Cross-Sectional Studies, Humans, Infant, Infant, Newborn, Infant, Premature, Intensive Care Units, Neonatal, Patient Discharge

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