The financial burden experienced by families of preterm infants after NICU discharge
Open accessAbstract
Background and objectives Describe the financial burden and worry that families of preterm infants experience after discharge from the neonatal intensive care unit (NICU).Methods We surveyed 365 parents of preterm infants in a cross-sectional study regarding socio-demographics, supplemental security income (SSI), and financial worry. We completed a multivariable logistic regression model to examine the adjusted association of financial worry with modifiable factors.Results We found that 53% of participants worried about healthcare costs after NICU discharge. After adjusting for socio-demographic and infant characteristics, we identified that, aOR (95% CI), out-of-pocket costs from the NICU index hospitalization, 3.51 (1.7, 7.26) and durable medical equipment use, 2.41 (1.11, 5.23) was associated with increased financial worry while enrollment in SSI, 0.38 (0.19, 0.76) was associated with decreased financial worry.Conclusions We identified factors that could contribute to financial burden after NICU discharge that may advise future work to target financial support systems.
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Severity of medical issues, functional impairments, financial strain, and parental role alteration exacerbate family distress during and following a NICU admission.
“Severity of medical issues, functional impairments, financial strain, and parental role alteration all play a role in exacerbating family distress during and following a NICU admission (Grunberg et al., 2020; Lakshmanan et al., 2022; Siva et al., 2023).”
From “NICU Doesn’t Stop in the NICU”: Maternal Perspectives of the Impact of a NICU Experience over Time (2026) · cites this paper as Lakshmanan et al., 2022
The Results and Discussion (page numbers unavailable in our copy) link NICU-related out-of-pocket costs and durable medical equipment use with increased financial worry after discharge; the Discussion says these costs may contribute to parental and family strain. The paper does not establish that severity of medical issues, functional impairments, or parental role alteration exacerbate family distress, nor does it assess distress during admission. Its measured outcome is financial worry, not family distress generally. (LLM, conf=0.85)
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Biomechanical function of the murine cervix with elastic fiber deficiency
Domingo, M. J. E., Fisk, A., Zhou, Q., Franques, A. G., Bersi, M. R., & Miller, K. S. (2026) · Journal of the mechanical behavior of biomedical materials/Journal of mechanical behavior of biomedical materials · doi:10.1016/j.jmbbm.2026.107562
Government-administered benefit programs: missed opportunities to address poverty in the NICU
Feister, J., Miller, E. R., Unaka, N. I., & Beck, A. F. (2025) · Journal of Perinatology · doi:10.1038/s41372-025-02409-8
Prevalence, predictors, and patterns of residential mobility by the parents of preterm infants
Murosko, D. C., Nelin, T. D., Sharma, P., Tam, V. W., Volkova, E., Scott, K. A., Gregory, E. F., & Lorch, S. A. (2025) · Journal of Perinatology · doi:10.1038/s41372-025-02414-x
Maternal Exit from Employment after Premature Birth
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Moreira, B. C., Souza, M. L. S. P., de Sousa, I. M. G., Machado, R. R., Fernandes, I. T., Beinner, M. A., Simão, D. A. D. S., & Oliveira, S. B. V. (2026) · Journal of Health Psychology · doi:10.1177/13591053251399024
The NICU doula: family-centered support in the neonatal intensive care unit
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Optimizing developmental outcomes in premature infants through a multidisciplinary approach to care
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Hu, J., Liu, J., Qin, J., & Pan, Z. (2026) · Frontiers in Pediatrics · doi:10.3389/fped.2026.1943786
Differential Take-Up of Supplemental Security Income in Florida for Very Low Birth Weight Infants
Guldi, M., Hawkins, A., & Schmidt, L. (2026) · PEDIATRICS · doi:10.1542/peds.2025-075633
Subramaniam, T., Gill, S., Chung, L., Hiskens, M. I., Hariharan, G., & Kumar, A. (2026) · Frontiers in Pediatrics · doi:10.3389/fped.2026.1907001
- Authors
- Lakshmanan, A., Song, A. Y., Belfort, M. B., Yieh, L., Dukhovny, D., Friedlich, P. S., & Gong, C. L.
- Affiliations
- University of Southern California (US)
- Johns Hopkins University (US)
- Brigham and Women's Hospital (US)
- Oregon Health & Science University (US)
- Corresponding author
- Lakshmanan, Ashwini
- ORCID
- Venue
- Journal of Perinatology
- Published
- 2021-09-24
- Volume
- 42
- Issue
- 2
- Pages
- 223-230
- ISSN
- 0743-8346 (ISSN-L)
- 1476-5543
- PMC
- PMC8460846
- OpenAlex
- W3201456923
- Cited by
- 64
- References
- 46
- Citations by year
- 2026: 19 · 2025: 20 · 2024: 12 · 2023: 11 · 2022: 2
- FWCI
- 6.17
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Licence
- Locations
- Journal of Perinatology (publishedVersion)
- PubMed Central (publishedVersion)
- PubMed (publishedVersion)
- Funders
- David and Lucile Packard Foundation (Foundation Fund_Packard)
- Topics
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Infant Development and Preterm Care
- Social Sciences › Economics, Econometrics and Finance › Economics and Econometrics › Economic and Financial Impacts of Cancer
- Social Sciences › Economics, Econometrics and Finance › Economics and Econometrics › Healthcare Policy and Management
- Keywords
- financial burden, preterm infants, neonatal intensive care unit discharge, health care costs, out-of-pocket costs, durable medical equipment, Supplemental Security Income, family caregivers
- MeSH terms
- Financial Stress, Cross-Sectional Studies, Humans, Infant, Infant, Newborn, Infant, Premature, Intensive Care Units, Neonatal, Patient Discharge
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