Cited by 292Research Data Management PracticesData Analysis and ArchivingScientific Computing and Data Management

The FAIR guiding principles for data stewardship: fair enough?

Open access
Boeckhout, Martin, Zielhuis, Gerhard A., Bredenoord, Annelien L.·2018·European Journal of Human Genetics

Abstract

The FAIR guiding principles for research data stewardship (findability, accessibility, interoperability, and reusability) look set to become a cornerstone of research in the life sciences. A critical appraisal of these principles in light of ongoing discussions and developments about data sharing is in order. The FAIR principles point the way forward for facilitating data sharing more systematically-provided that a number of ethical, methodological, and organisational challenges are addressed as well.

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Crossref · 10.1038/s41431-018-0160-0

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  • The Global Indigenous Data Alliance developed the CARE-Collective benefit, Authority to control, Responsibility, and Ethics-Principles as a response to a movement towards FAIR-Findable, Accessible, Interoperable, Reusable-Principles, which are based on universalized access to data.

    “The Global Indigenous Data Alliance developed the CARE—Collective benefit, Authority to control, Responsibility, and Ethics— Principles as a response to a movement towards FAIR—Findable, Accessible, Interoperable, Reusable—Principles, which are based on universalized access to data (Boeckhout, Zielhuis, & Bredenoord, 2018; GO FAIR, n.d.).”

    From Addressing the need for indigenous and decolonized quantitative research methods in Canada (2021) · cites this paper as Boeckhout, Zielhuis, & Bredenoord, 2018

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Authors
Boeckhout, M., Zielhuis, G. A., & Bredenoord, A. L.
Affiliations
  • University Medical Center Utrecht (NL)
  • Radboud University Medical Center (NL)
Corresponding author
Boeckhout, Martin
Venue
European Journal of Human Genetics
Published
2018-05-17
Volume
26
Issue
7
Pages
931-936
ISSN
  • 1018-4813 (ISSN-L)
  • 1476-5438
OpenAlex
W2804142383
Cited by
290
References
27
Citations by year
2026: 23 · 2025: 38 · 2024: 45 · 2023: 44 · 2022: 54 · 2021: 48 · 2020: 22 · 2019: 13 · 2018: 3
FWCI
3.96
Type
journal article
Language
en
Open access
Locations
  • European Journal of Human Genetics (publishedVersion, other-oa)
  • Europe PMC (PubMed Central) (publishedVersion)
  • PubMed Central (publishedVersion)
  • PubMed (publishedVersion)
  • Utrecht University Repository (Utrecht University) (submittedVersion, other-oa)
  • Radboud Repository (Radboud University) (submittedVersion)
  • Utrecht University Repository (Utrecht University) (submittedVersion)
Funders
Nederlandse Organisatie voor Wetenschappelijk Onderzoek (184.033.111)
Topics
  • Physical Sciences › Computer Science › Information Systems › Research Data Management Practices
  • Social Sciences › Sociology and Political Science › Data Analysis and Archiving
  • Social Sciences › Decision Sciences › Information Systems and Management › Scientific Computing and Data Management
Keywords
FAIR principles, research data stewardship, data sharing, discoverability, accessibility, interoperability, reusability, research data management, biology research, data ethics
MeSH terms
Biological Science Disciplines, Humans, Research, Databases, Factual, Information Dissemination

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