Hope in the family caregiver of terminally ill people
Abstract
This longitudinal study explored the meaning of hope, the influence of specific background characteristics on hope, and identified strategies that are used to foster hope in a convenience sample of 25 family caregivers of terminally ill family members from two hospice programmes using the technique of methodological triangulation (interview, Herth Hope Index and Background Data Form) Hope was denned as a dynamic inner power that enables transcendence of the present situation and fosters a positive new awareness of being Six hope‐fostering categories and three hope‐hindering categories were identified based on the interview responses With the exception of those providing care to a family member diagnosed with AIDS and those caregivers experiencing poor personal health, a high fatigue level, severe sleep deprivation and more than two concurrent losses, overall hope levels among participants were found to remain stable across the background variables Across time, hope levels were found to be low at interview tune one, rise significantly by time two and then level off for the remainder of the time An understanding of hope from the perspective of the family caregiver could provide a basis upon which to develop interventions that foster hope
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The Herth Hope Index is a reliable (α = 0.97) validated instrument developed for people confronting terminal illness and their families.
“hopefulness assessed with the Herth Hope Index [24,25], a reliable (α = 0.97) validated instrument developed for people confronting terminal illness and their families with a score ranging from 12–48 and where higher scores indicate more hopefulness”
From Feasibility, acceptability and potential effectiveness of dignity therapy for family carers of people with motor neurone disease (2014) · cites this paper as [25]
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“Secondary outcomes were: 1) hopefulness assessed with the Herth Hope Index [24,25], a reliable (α = 0.97) validated instrument developed for people confronting terminal illness and their families with a score ranging from 12–48 and where higher scores indicate more hopefulness; 2) anxiety and 3) depression, measured w…”
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- Authors
- Herth, K.
- Affiliations
- Northern Illinois University (US)
- Corresponding author
- Herth, Kaye
- ORCID
- Herth, Kaye
- Venue
- Journal of Advanced Nursing
- Publisher
- Wiley
- Published
- 1993-04
- Volume
- 18
- Issue
- 4
- Pages
- 538-548
- ISSN
- 0309-2402 (ISSN-L)
- 1365-2648
- OpenAlex
- W1981751778
- Cited by
- 188
- References
- 53
- Citations by year
- 2026: 1 · 2025: 4 · 2024: 4 · 2023: 1 · 2022: 3 · 2021: 7 · 2020: 3 · 2019: 3 · 2018: 1 · 2017: 1 · 2016: 5 · 2015: 5 · 2014: 12 · 2013: 5 · 2012: 6
- FWCI
- 6.77
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Journal of Advanced Nursing (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Social Sciences › Psychology › Applied Psychology › Optimism, Hope, and Well-being
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative and Oncologic Care
- Keywords
- hope, family caregivers, dying patients, hospice care, caregiver fatigue, sleep deprivation, caregiver health, Herth Hope Index, caregiver interventions
- MeSH terms
- Adaptation, Psychological, Adult, Aged, Family, Female, Health Status, Hospices, Humans, Longitudinal Studies, Middle Aged, Models, Psychological, Morale, Surveys and Questionnaires, Role, Terminal Care, Time Factors, Nursing Methodology Research, Caregivers
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