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Cited by 279Fibromyalgia and Chronic Fatigue Syndrome ResearchIdentity, Memory, and TherapyNursing care and research

The DOI matches its Crossref record; 28 of the 31 references it cites were found in a registry or an index.

Chronic illness – a disruption in life: identity‐transformation among women with chronic fatigue syndrome and fibromyalgia

Asbring, Pia·2001·Journal of Advanced Nursing
DOI 10.1046/j.1365-2648.2001.01767.x
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Abstract

Chronic illness – a disruption in life: identity‐transformation among women with chronic fatigue syndrome and fibromyalgia Background. People with chronic illnesses often suffer from identity‐loss. Empirical research concerning patients with chronic fatigue syndrome (CFS) or fibromyalgia has not, however, adequately addressed the consequences of these illnesses for identity. Aim. The aim of this article is to describe how women with CFS and fibromyalgia create new concepts of identity after the onset of illness, and how they come to terms with their newly arisen identities. I aim to illuminate the biographical work done by these individuals, which includes a re‐evaluation of their former identity and life. This process is illustrated by the following themes: An earlier identity partly lost and Coming to terms with a new identity. Method. The study is based on interviews with 25 women in Sweden, 12 with the diagnosis of CFS and 13 diagnosed with fibromyalgia. A grounded theory orientated approach was used when collecting and analysing the data. Findings. The main findings are that: (1) the illnesses can involve a radical disruption in the women’s biography that has profound consequences for their identity, particularly in relation to work and social life, (2) biographical disruptions are partial rather than total, calling for different degrees of identity transformation, (3)␣many of the women also experience illness gains in relation to the new identity. Conclusions. Thus, the biographical disruption and illness experience comprised both losses and illness gains that had consequences for identity.

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Research works printed but not linked: 6

  1. Charmaz K., 1987, Struggling for a self: identity levels of the chronically ill, Research in the Sociology of Health Care, 6, 283
  2. Conrad P., 1987, The experience of illness: recent and new directions, Research in the Sociology of Health Care, 6, 1
  3. GullacksenA. ‐C.(1998)När smärtan blir en del av livet. Livsomställning vid kronisk sjukdom och funktionshinder[When pain becomes a part of life. Readjusting life to chronic illness and disability]. PhD Thesis Gyllene Snittet Helsingborg.
  4. KomaroffA.(1994)Clinical presentation and evaluation of fatigue and chronic fatigue syndrome. InChronic Fatigue Syndrome(Straus S. ed.) Marcel Dekker New York pp. 61–84.
  5. NärrvänenA.(1994)Temporalitet och social ordning [Temporality␣and Social Order].PhD Thesis Linköping University Linköping.
  6. Olin R., 1995, Fibromyalgi – ett neuroendokrinologiskt syndrom? [Fibromyalgia – a neuroendocrinological syndrome], Läkartidningen, 92, 755

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Metadata

Authors
Asbring, P.
Venue
Journal of Advanced Nursing
Publisher
Wiley
Published
2001-05-09
Volume
34
Issue
3
Pages
312-319
ISSN
  • 0309-2402 (ISSN-L)
  • 1365-2648
DOI
10.1046/j.1365-2648.2001.01767.x
OpenAlex
W2133289097
Cited by
277
References
31
Citations by year
2026: 13 · 2025: 7 · 2024: 9 · 2023: 6 · 2022: 12 · 2021: 9 · 2020: 12 · 2019: 13 · 2018: 15 · 2017: 9 · 2016: 16 · 2015: 20 · 2014: 13 · 2013: 6 · 2012: 13
FWCI
3.20
Type
journal article
Language
en
Open access
closed
Licence
onlinelibrary.wiley.com/termsAndConditions#vor (vor, 225 d)
Locations
  • Journal of Advanced Nursing (publishedVersion)
  • PubMed (publishedVersion)
Topics
  • Health Sciences › Medicine › Psychiatry and Mental health › Fibromyalgia and Chronic Fatigue Syndrome Research
  • Social Sciences › Psychology › Developmental and Educational Psychology › Identity, Memory, and Therapy
  • Health Sciences › Nursing › Research and Theory › Nursing care and research
Keywords
chronic fatigue syndrome, fibromyalgia, identity transformation, women, biographical disruption, identity loss, work and social life, lived experience of chronic illness
MeSH terms
Adaptation, Psychological, Adult, Aged, Chronic Disease, Female, Fibromyalgia, Grief, Humans, Life Change Events, Middle Aged, Quality of Life, Surveys and Questionnaires, Self Concept, Sick Role, Social Behavior, Social Isolation, Sweden, Women, Work, Nursing Methodology Research, Fatigue Syndrome, Chronic, Cost of Illness

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