Service support to people in Wales with severe intellectual disability and the most severe challenging behaviours: processes, outcomes and costs
Open accessAbstract
A survey of people with severe intellectual disability and the most severe challenging behaviour in Wales identified five adults living in family homes, 17 in new specialist community housing and 19 in traditional services. With the omission of two people from the latter group and with a restricted collection of data for people living in the family home, the present study explored service input, outcome and costs across the three setting types. Process and outcome indicators for the family home group, who received little service input, were better than those for the traditional service group, although less good than those for the community house group. The specialist community home model produced significant gains over the traditional services in virtually all areas. Across the residential data set as a whole, there was no association between staff:resident ratios and severity of disability or between costs and severity of disability. This was largely true of the service types separately. There was a relationship between costs and service quality. However, this association was underpinned by gross differences between community houses and traditional settings. Costs, processes and outcomes ceased to be related when the two residential types were considered separately. Although higher costs of new community services compared to traditional services may be set against improved outcomes, high costs within the former could not be related to benefit. Outcome indicators were generally related to each other, suggesting that high quality in one sense was matched by high quality in other senses. Outcome was significantly associated with the ability of residents. Outcome indicators also tended to be related to observed staff performance, which was independent of resident ability. Therefore, outcome may be considered as dually determined by differences in resident ability and in what staff did.
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Managing challenging behaviour comes at a high cost and often results in a significant burden of care, for example requiring special education and training for caregivers, and involvement of specialized health services.
“Furthermore, managing CB comes at a high cost and often results in a significant burden of care, for example requiring special education and training for caregivers, and involvement of specialized health services (4, 7, 8).”
From ProVIA-Kids - outcomes of an uncontrolled study on smartphone-based behaviour analysis for challenging behaviour in children with intellectual and developmental disabilities or autism spectrum disorder (2024) · cites this paper as [8]
The Introduction (page not supplied) describes services for people with challenging behaviour as staff-intensive and identifies staff qualifications, training, and professional support as aspects of specialist services. Care package costs (page not supplied) documents substantial costs, but notes low involvement of specialist challenging-behaviour teams. The paper does not establish that managing challenging behaviour often requires special education for caregivers or specialized health services. (LLM, conf=0.86)
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Self-citation
- Authors
- Felce, D., Lowe, K., Perry, J., Baxter, H., Jonesna, E., Hallam, A., & Beecham, J.
- Affiliations
- Cardiff University (GB)
- University of Kent (GB)
- Corresponding author
- Felce, D.
- Venue
- Journal of Intellectual Disability Research
- Publisher
- Wiley
- Published
- 1998-10
- Volume
- 42
- Issue
- 5
- Pages
- 390-408
- ISSN
- 0964-2633 (ISSN-L)
- 1365-2788
- OpenAlex
- W1968848324
- Cited by
- 85
- References
- 0
- Citations by year
- 2025: 1 · 2024: 1 · 2023: 2 · 2022: 3 · 2020: 3 · 2017: 3 · 2016: 3 · 2015: 1 · 2014: 1 · 2013: 3 · 2012: 1
- FWCI
- 6.51
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Locations
- Journal of Intellectual Disability Research (publishedVersion)
- PubMed (publishedVersion)
- ORCA Online Research @Cardiff (Cardiff University) (submittedVersion)
- Kent Academic Repository (University of Kent) (submittedVersion)
- Funders
- Office of Research and Development
- Topics
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Down syndrome and intellectual disability research
- Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
- Social Sciences › Psychology › Developmental and Educational Psychology › Behavioral and Psychological Studies
- Keywords
- severe intellectual disability, behavioral problems, community service, family house, residential care, service costs, service quality, employee performance, process and outcome indicators, Wales
- MeSH terms
- Adult, Behavior Therapy, Mental Disorders, Community Mental Health Services, Female, Humans, Male, Intellectual Disability, Middle Aged, Outcome and Process Assessment, Health Care, Severity of Illness Index, Social Support, Wales, Health Care Costs
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