The DOI matches its Crossref record; 6 of the 6 references it cites were found in a registry or an index.
Focus group study of endometriosis: Struggle, loss and the medical merry‐go‐round
Abstract
Women with endometriosis experience a range of problems for which they may or may not be adequately supported. This paper reports on one aspect of a study conducted at the Epworth Hospital, Melbourne, to identify the information needs of women facing laparoscopy for endometriosis. A number of focus groups were conducted that provided women with a forum for communicating their experiences of endometriosis and laparoscopy. The findings include the experiences of 61 women who described the lack of support, the struggles and the losses involved in living with endometriosis. By far the worst experience that these women described was the encounter with health professionals and the ways in which their symptoms were trivialised and dismissed. There is a great deal for nurses to learn about the experience of living with endometriosis if they are to support women with this chronic illness in their search for well‐being.
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In the citing paper
“Qualitative studies have shown that endometriosis symptoms have a substantial impact on the physical, emotional, and social wellbeing of patients, who are affected during the most productive years of their lives (5-12).”
From Patients’ report on how endometriosis affects health, work, and daily life (2010) · cites this paper as [8]
In the citing paper
“This study thus confirms a worrisome trend and worldwide public health problem: patients with endometriosis endure symptoms for years without being diagnosed (8-12, 27-29).”
From Patients’ report on how endometriosis affects health, work, and daily life (2010) · cites this paper as [8]
In the citing paper
“This study supports previous findings showing that patients with endometriosis commonly endure both painful symptoms and infertility, both of which could negatively affect the quality of life and mental health of the affected women at rates that are higher than those reported by healthy women or women with other gynecological disorders (6-12,35,36).”
From Patients’ report on how endometriosis affects health, work, and daily life (2010) · cites this paper as [8]
Citations
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Ballweg, M. L. (1997) · Obstetrics and Gynecology Clinics of North America · doi:10.1016/s0889-8545(05)70312-0 · Cited by 36
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Redwine, D. B. (2001) · The Journal of the American Association of Gynecologic Laparoscopists · doi:10.1016/s1074-3804(05)60603-2 · Cited by 8
Research works printed but not linked: 4
- Endometriosis Association (Vic)., 2000, What Is Endometriosis?
- Carlton D, 1996, Awareness of endometriosis, Practice Nurse, 12, 514
- Montague M, 1997, Report to the Department of Health and Family Services General Practice Evaluation Program 1997, 358
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Cited by
Sorted by citations
The social and psychological impact of endometriosis on women's lives: a critical narrative review
Culley, L. A., Law, C., Hudson, N., Denny, E., Mitchell, H., Baumgarten, M. N., & Raine‐Fenning, N. (2013) · Human Reproduction Update · doi:10.1093/humupd/dmt027 · Cited by 732
Impact of endometriosis on quality of life and mental health:Pelvic pain makes the difference
Facchin, F., Barbara, G., Saita, E., Mosconi, P., Roberto, A., Fedele, L., & Vercellini, P. (2015) · Journal of Psychosomatic Obstetrics & Gynecology · doi:10.3109/0167482x.2015.1074173 · Cited by 468
Anxiety and depression in patients with endometriosis: impact and management challenges
Laganà, A. S., La Rosa, V. L., Rapisarda, A. M. C., Valenti, G., Sapia, F., Chiofalo, B., Rossetti, D., Ban Frangež, H., Vrtačnik Bokal, E., & Giovanni Vitale, S. (2017) · International Journal of Women's Health · doi:10.2147/ijwh.s119729 · Cited by 405
Fourquet, J., Báez, L., Figueroa, M., Iriarte, R. I., & Flores, I. (2011) · Fertility and Sterility · doi:10.1016/j.fertnstert.2011.04.095 · Cited by 262
“Endometriosis is common during the reproductive years, what should be the most productive time of women’s lives (2-10).”
BackgroundPatients’ report on how endometriosis affects health, work, and daily life
Fourquet, J., Gao, X., Zavala, D., Orengo, J. C., Abac, S., Ruiz, A., Laboy, J., & Flores, I. (2010) · Fertility and Sterility · doi:10.1016/j.fertnstert.2009.09.017 · Cited by 252
“This study thus confirms a worrisome trend and worldwide public health problem: patients with endometriosis endure symptoms for years without being diagnosed (8-12,27-29).”
Metadata
- Authors
- Cox, H., Henderson, L., Andersen, N., Cagliarini, G., & Ski, C.
- Affiliations
- Deakin University (AU)
- Epworth Hospital (AU)
- Corresponding author
- Cox, Helen
- Venue
- International Journal of Nursing Practice
- Publisher
- Wiley
- Published
- 2003-02
- Volume
- 9
- Issue
- 1
- Pages
- 2-9
- ISSN
- 1322-7114 (ISSN-L)
- 1440-172X
- OpenAlex
- W2030858367
- Cited by
- 181
- References
- 6
- Citations by year
- 2026: 9 · 2025: 15 · 2024: 16 · 2023: 14 · 2022: 15 · 2021: 10 · 2020: 9 · 2019: 11 · 2018: 10 · 2017: 5 · 2016: 5 · 2015: 5 · 2014: 6 · 2013: 3 · 2012: 6
- FWCI
- 1.84
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- International Journal of Nursing Practice (publishedVersion)
- PubMed (publishedVersion)
- Funders
- Australian Government
- Topics
- Health Sciences › Medicine › Reproductive Medicine › Endometriosis Research and Treatment
- Health Sciences › Medicine › Obstetrics and Gynecology › Gynecological conditions and treatments
- Health Sciences › Health Professions › General Health Professions › Health Literacy and Information Accessibility
- Keywords
- endometriosis, lived experience, patient support, information needs, laparoscopy, health professional-patient relationship, chronic disease, women's health, nursing support
- MeSH terms
- Adaptation, Psychological, Communication, Endometriosis, Female, Humans, Health Knowledge, Attitudes, Practice, Pain, Laparoscopy, Physician-Patient Relations, Focus Groups
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