Cited by 181Endometriosis Research and TreatmentGynecological conditions and treatmentsHealth Literacy and Information Accessibility

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Focus group study of endometriosis: Struggle, loss and the medical merry‐go‐round

Cox, Helen, Henderson, Lorraine, Andersen, Natalie, Cagliarini, Glenda, Ski, Chantal·2003·International Journal of Nursing Practice

DOI 10.1046/j.1440-172x.2003.00396.x

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Abstract

Women with endometriosis experience a range of problems for which they may or may not be adequately supported. This paper reports on one aspect of a study conducted at the Epworth Hospital, Melbourne, to identify the information needs of women facing laparoscopy for endometriosis. A number of focus groups were conducted that provided women with a forum for communicating their experiences of endometriosis and laparoscopy. The findings include the experiences of 61 women who described the lack of support, the struggles and the losses involved in living with endometriosis. By far the worst experience that these women described was the encounter with health professionals and the ways in which their symptoms were trivialised and dismissed. There is a great deal for nurses to learn about the experience of living with endometriosis if they are to support women with this chronic illness in their search for well‐being.

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Authors: Cox, H., Henderson, L., Andersen, N., Cagliarini, G., & Ski, C.
Affiliations: Deakin University (AU)
Epworth Hospital (AU)
Corresponding author: Cox, Helen
ORCID: Cox, Helen
Ski, Chantal
Venue: International Journal of Nursing Practice
Publisher: Wiley
Published: 2003-02
Volume: 9
Issue: 1
Pages: 2-9
ISSN: 1322-7114 (ISSN-L)
1440-172X
DOI: 10.1046/j.1440-172x.2003.00396.x
OpenAlex: W2030858367
Cited by: 181
References: 6
Citations by year: 2026: 9 · 2025: 15 · 2024: 16 · 2023: 14 · 2022: 15 · 2021: 10 · 2020: 9 · 2019: 11 · 2018: 10 · 2017: 5 · 2016: 5 · 2015: 5 · 2014: 6 · 2013: 3 · 2012: 6
FWCI: 1.84
Type: journal article
Language: en
Open access: closed
Licence: onlinelibrary.wiley.com/termsAndConditions#vor (vor, 27 d)
Locations: International Journal of Nursing Practice (publishedVersion)
PubMed (publishedVersion)
Funders: Australian Government
Topics: Health Sciences › Medicine › Reproductive Medicine › Endometriosis Research and Treatment
Health Sciences › Medicine › Obstetrics and Gynecology › Gynecological conditions and treatments
Health Sciences › Health Professions › General Health Professions › Health Literacy and Information Accessibility
Keywords: endometriosis, lived experience, patient support, information needs, laparoscopy, health professional-patient relationship, chronic disease, women's health, nursing support
MeSH terms: Adaptation, Psychological, Communication, Endometriosis, Female, Humans, Health Knowledge, Attitudes, Practice, Pain, Laparoscopy, Physician-Patient Relations, Focus Groups

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Focus group study of endometriosis: Struggle, loss and the medical merry‐go‐round

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