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Effect of computer support on younger women with breast cancer
Open accessAbstract
Objective Assess impact of a computer-based patient support system on quality of life in younger women with breast cancer, with particular emphasis on assisting the underserved.Design Randomized controlled trial conducted between 1995 and 1998.Setting Five sites: two teaching hospitals (Madison, Wis, and Chicago, Ill), two nonteaching hospitals (Chicago), and a cancer resource center (Indianapolis, Ill). The latter three sites treat many underserved patients.Participants Newly diagnosed breast cancer patients (N = 246) under age 60.Interventions Experimental group received Comprehensive Health Enhancement Support System (CHESS), a home-based computer system providing information, decision-making, and emotional support.Measurements and main results Pretest and two post-test surveys (at two- and five-month follow-up) measured aspects of participation in care, social/information support, and quality of life. At two-month follow-up, the CHESS group was significantly more competent at seeking information, more comfortable participating in care, and had greater confidence in doctor(s). At five-month follow-up, the CHESS group had significantly better social support and also greater information competence. In addition, experimental assignment interacted with several indicators of medical underservice (race, education, and lack of insurance), such that CHESS benefits were greater for the disadvantaged than the advantaged group.Conclusions Computer-based patient support systems such as CHESS may benefit patients by providing information and social support, and increasing their participation in health care. These benefits may be largest for currently underserved populations.
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Metadata
- Authors
- Gustafson, D. H., Hawkins, R., Pingree, S., McTavish, F., Arora, N. K., Mendenhall, J., Cella, D. F., Serlin, R. C., Apantaku, F. M., Stewart, J., & Salner, A.
- Affiliations
- University of Wisconsin–Madison (US)
- National Institutes of Health (US)
- University of Illinois Chicago (US)
- Hartford Hospital (US)
- Corresponding author
- Gustafson, David H.
- Venue
- Journal of General Internal Medicine
- Published
- 2001-07
- Volume
- 16
- Issue
- 7
- Pages
- 435-445
- ISSN
- 0884-8734 (ISSN-L)
- 1525-1497
- PMC
- PMC1495237
- OpenAlex
- W1964160869
- Cited by
- 387
- References
- 46
- Citations by year
- 2026: 3 · 2025: 5 · 2024: 4 · 2023: 6 · 2022: 3 · 2021: 12 · 2020: 10 · 2019: 6 · 2018: 14 · 2017: 18 · 2016: 18 · 2015: 21 · 2014: 22 · 2013: 28 · 2012: 19
- FWCI
- 31.75
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Locations
- Journal of General Internal Medicine (publishedVersion)
- PubMed Central (publishedVersion)
- PubMed (publishedVersion)
- Funders
- National Institutes of Health (5r01hd032922-02)
- National Cancer Institute
- National Institute of Child Health and Human Development
- Eunice Kennedy Shriver National Institute of Child Health and Human Development (5R01HD32922)
- Topics
- Health Sciences › Health Professions › General Health Professions › Health Literacy and Information Accessibility
- Health Sciences › Medicine › Oncology › Cancer survivorship and care
- Health Sciences › Health Professions › General Health Professions › Mobile Health and mHealth Applications
- Keywords
- breast cancer, chess, quality of life, young women, underserved populations, social support, information literacy, patient participation in care, health information seeking, racial disparities, insurance status, educational attainment, emotional support
- MeSH terms
- Adult, Black or African American, Breast Neoplasms, Female, Follow-Up Studies, Humans, Information Services, Medically Underserved Area, Middle Aged, Patient Education as Topic, Patient Participation, Quality of Life, Social Support, Multivariate Analysis, Linear Models
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