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Cited by 364Epilepsy research and treatmentHealth and Well-being StudiesCancer survivorship and care

The DOI matches its Crossref record; 65 of the 65 references it cites were found in a registry or an index.

Social Functioning, Psychological Functioning, and Quality of Life in Epilepsy

Open access
Suurmeijer, Theo P. B. M., Reuvekamp, Marieke F., Aldenkamp, Bert P.·2001·Epilepsia
DOI 10.1046/j.1528-1157.2001.37000.x
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Abstract

Summary: Purpose: Part of our research intended to explain “ Q uality o f Life” ( QoL ) differences between people with epilepsy. To this end, a series of already existing generic and disease‐specific health status measures were used. In this study, they were considered as determinants of people's QoL, whereas QoL itself was conceived as a general “value judgment” about one's life. Methods: From the records of four outpatient clinics, 210 persons with epilepsy were randomly selected. During their visit to the outpatient clinic, they completed a questionnaire assessing, among other things, health perceptions and social and psychological functioning. Additional information about their medical and psychosocial status was gathered from the patient files. Data were analysed by using a hierarchical regression analysis. Results: In decreasing order of importance, “psychological distress,”“loneliness,”“adjustment and coping,” and “stigma perception” appeared to contribute most significantly to the outcome QoL as judged by the patients themselves, regardless of their physical status. In the final model, none of the clinical variables (onset, seizure frequency, side effects of antiepileptic drugs) contributed significantly anymore to the patients' “quality‐of‐life judgement.” Apparently the effect of other variables such as seizure frequency and health perceptions, medication and side effects, life fulfilment, self‐esteem, and mastery is mediated by these variables. Conclusions: Because all of the variance in QoL of the patients was explained by the psychosocial variables included in this study, health professionals should be aware of the significance of the psychosocial functioning of the patients and the role it plays in the achievement of a good QoL. Both informal and professional support may be an adjunct to conventional treatment. In future research, this issue should be given high priority.

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Research works printed but not linked: 10

  1. Ravnik IM, 1997, What should you say before you say seizures., Int Epilepsy News, 129, 17
  2. Conrad P, 1987, Research in the sociology of health care. Vol. 6: the experience and management of chronic illness, 1
  3. Troster H, 1998, Coping with stigma in people with epilepsy., Gruppendynamik-Z Angew Sozial, 29, 189
  4. Baker GA, 1994, Epilepsy and quality of life, 135
  5. Shumaker SA, 1990, Quality of life assessments in clinical trials, 95
  6. Glossary Committee of the American College of Rheumatology, 1988, Volume III of the Health Status Measurement, 1
  7. Central Bureau for Statistics, 1994, Statistical yearbook
  8. Krol B, 1994, A Comparison of the General Health Questionnaire‐28 between patients with rheumatoid arthritis from The Netherlands, France, Sweden and Norway., Eur J Psychol Assess, 10, 93
  9. Deeg DJH, 1997, De dwang van de analysemethode bij het gebruik van longitudinale gegevens: het geval van ervaren gezondheid en depressie. (The pressure of methods of analysis when using longitudinal data: the case of self‐reported health and depression)., Tijdschr Soc Geneesk, 3, 129
  10. König‐Zahn C, 1993, Het meten van de gezondheidstoestand: beschrijving en evaluatie van vragenlijsten, 1: algemene gezondheid

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Metadata

Authors
Suurmeijer, T. P. B. M., Reuvekamp, M. F., & Aldenkamp, B. P.
Affiliations
University of Groningen (NL)
Venue
Epilepsia
Publisher
Wiley
Published
2001-09
Volume
42
Issue
9
Pages
1160-1168
ISSN
  • 0013-9580 (ISSN-L)
  • 1528-1167
DOI
10.1046/j.1528-1157.2001.37000.x
OpenAlex
W2033674445
Cited by
364
References
65
Citations by year
2026: 9 · 2025: 6 · 2024: 16 · 2023: 10 · 2022: 5 · 2021: 19 · 2020: 14 · 2019: 13 · 2018: 21 · 2017: 20 · 2016: 19 · 2015: 19 · 2014: 16 · 2013: 16 · 2012: 18
FWCI
4.74
Type
journal article
Language
en
Open access
Licence
onlinelibrary.wiley.com/termsAndConditions#vor (vor, 133 d)
Locations
  • Epilepsia (publishedVersion)
  • PubMed (publishedVersion)
  • University of Groningen research database (University of Groningen / Centre for Information Technology) (publishedVersion, other-oa)
  • University of Groningen research database (University of Groningen / Centre for Information Technology) (submittedVersion, other-oa)
Topics
  • Health Sciences › Medicine › Clinical Neurology › Epilepsy research and treatment
  • Social Sciences › Psychology › Clinical Psychology › Health and Well-being Studies
  • Health Sciences › Medicine › Oncology › Cancer survivorship and care
Keywords
epilepsy, quality of life, social functioning, psychological functioning, psychological distress, loneliness, coping, perceived stigma, psychosocial functioning, health perception, antiepileptic drug adverse effects, seizure frequency, self-esteem, mastery
MeSH terms
Adaptation, Psychological, Adult, Ambulatory Care, Anticonvulsants, Attitude to Health, Epilepsy, Female, Health Status, Humans, Male, Netherlands, Quality of Life, Regression Analysis, Research Design, Social Adjustment, Social Support, Stress, Psychological, Thiocarbamates, Comorbidity, Sickness Impact Profile, Self Efficacy

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