The DOI matches its Crossref record; 65 of the 65 references it cites were found in a registry or an index.
Social Functioning, Psychological Functioning, and Quality of Life in Epilepsy
Open accessAbstract
Summary: Purpose: Part of our research intended to explain “ Q uality o f Life” ( QoL ) differences between people with epilepsy. To this end, a series of already existing generic and disease‐specific health status measures were used. In this study, they were considered as determinants of people's QoL, whereas QoL itself was conceived as a general “value judgment” about one's life. Methods: From the records of four outpatient clinics, 210 persons with epilepsy were randomly selected. During their visit to the outpatient clinic, they completed a questionnaire assessing, among other things, health perceptions and social and psychological functioning. Additional information about their medical and psychosocial status was gathered from the patient files. Data were analysed by using a hierarchical regression analysis. Results: In decreasing order of importance, “psychological distress,”“loneliness,”“adjustment and coping,” and “stigma perception” appeared to contribute most significantly to the outcome QoL as judged by the patients themselves, regardless of their physical status. In the final model, none of the clinical variables (onset, seizure frequency, side effects of antiepileptic drugs) contributed significantly anymore to the patients' “quality‐of‐life judgement.” Apparently the effect of other variables such as seizure frequency and health perceptions, medication and side effects, life fulfilment, self‐esteem, and mastery is mediated by these variables. Conclusions: Because all of the variance in QoL of the patients was explained by the psychosocial variables included in this study, health professionals should be aware of the significance of the psychosocial functioning of the patients and the role it plays in the achievement of a good QoL. Both informal and professional support may be an adjunct to conventional treatment. In future research, this issue should be given high priority.
Overview
Integrity signals
Registry
Cites
Statistics
Verification
Claims the paper makes
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
In the citing paper
“Unlike in patients with psychogenic nonepileptic seizures, there remains a significant relationship between HRQoL and epilepsy severity markers when psychopathology is introduced as a covariate. 11”
From Cochrane systematic review and meta-analysis of the impact of psychological treatments for people with epilepsy on health-related quality of life (2018) · cites this paper as [11]
Citations
Cites
Society and the Adolescent Self-Image
Rosenberg, M. (1965) · doi:10.1515/9781400876136 · Cited by 30,126
- STATISTICAL PACKAGE FOR SOCIAL SCIENCES
Reddy, M. V. (2014) · Apple Academic Press eBooks · doi:10.1201/b17560-26 · Cited by 12,121
Pearlin, L. I., & Schooler, C. (1978) · Journal of Health and Social Behavior · doi:10.2307/2136319 · Cited by 7,791
(1995) · Social Science & Medicine · doi:10.1016/0277-9536(95)00112-k · Cited by 7,643
(1988) · NFER-Nelson eBooks · Cited by 5,560
Caregiving and the stress process: an overview of concepts and their measures
Pearlin, L. I., Mullan, J. T., Semple, S. J., & Skaff, M. M. (1990) · The Gerontologist · doi:10.1093/geront/30.5.583 · Cited by 4,810
The MOS Short-form General Health Survey: Reliability and Validity in a Patient Population
Stewart, A. L., Hays, R. D., & Ware, J. E. (1988) · Medical Care · doi:10.1097/00005650-198807000-00007 · Cited by 3,339
Verbrugge, L. M., & Jette, A. M. (1994) · Social Science & Medicine · doi:10.1016/0277-9536(94)90294-1 · Cited by 3,310
Resilience in the Face of Catastrophe: Optimism, Personality, and Coping in the Kosovo Crisis
Riolli, L., Savicki, V., & Cepani, A. (2002) · Journal of Applied Social Psychology · doi:10.1111/j.1559-1816.2002.tb02765.x · Cited by 2,166
Social support as coping assistance.
Thoits, P. A. (1986) · Journal of Consulting and Clinical Psychology · doi:10.1037//0022-006x.54.4.416 · Cited by 1,868
Loss of self: a fundamental form of suffering in the chronically ill
Charmaz, K. (1983) · Sociology of Health & Illness · doi:10.1111/1467-9566.ep10491512 · Cited by 1,794
Thoits, P. A. (1982) · Journal of Health and Social Behavior · doi:10.2307/2136511 · Cited by 1,513
The Development of a Rasch-Type Loneliness Scale
de Jong-Gierveld, J., & Kamphuls, F. (1985) · Applied Psychological Measurement · doi:10.1177/014662168500900307 · Cited by 1,291
Measuring Health: A Review of Quality of Life Measurement Scales
Bowling, A. (1991) · Cited by 1,022
Disability in America: toward a national agenda for prevention
(1992) · Choice Reviews Online · doi:10.5860/choice.29-2740 · Cited by 895
The sociology of chronic illness: a review of research and prospects
Bury, M. R. (1991) · Sociology of Health & Illness · doi:10.1111/j.1467-9566.1991.tb00522.x · Cited by 869
Measuring Health. A Review of Quality of Life Measurement Scales.
Thorpe, K. J. (1992) · Paediatric and Perinatal Epidemiology · doi:10.1111/j.1365-3016.1992.tb00744.x · Cited by 850
Being epileptic: coming to terms with stigma
Scambler, G., & Hopkins, A. P. (1986) · Sociology of Health & Illness · doi:10.1111/1467-9566.ep11346455 · Cited by 777
Quality of life assessments in clinical trials
(1991) · Comparative Biochemistry and Physiology Part A Physiology · doi:10.1016/0300-9629(91)90459-p · Cited by 698
Development of the Quality of Life in Epilepsy Inventory
Devinsky, O., Vickrey, B. G., Cramer, J., Perrine, K., Hermann, B., Meador, K., & Hays, R. D. (1995) · Epilepsia · doi:10.1111/j.1528-1157.1995.tb00467.x · Cited by 634
Quantitative Data Analysis for Social Scientists
Brown, G. P., Bryman, A. E., & Cramer, D. (1996) · The Canadian Journal of Sociology · doi:10.2307/3341778 · Cited by 627
The Forms and Mechanisms of Stress Proliferation: The Case of AIDS Caregivers
Pearlin, L. I., Aneshensel, C. S., & LeBlanc, A. J. (1997) · Journal of Health and Social Behavior · doi:10.2307/2955368 · Cited by 506
Quality of Life, Health Status, and Clinical Research
Bergner, M. (1989) · Medical Care · doi:10.1097/00005650-198903001-00012 · Cited by 398
manual De Jong GIerveld Loneliness Scale
van Tilburg, T. (2023) · Data Archiving and Networked Services (DANS) · doi:10.17605/osf.io/u6gck · Cited by 381
Patient‐Validated Content of Epilepsy‐Specific Quality‐of‐Life Measurement
Gilliam, F. G., Kuzniecky, R., Faught, E., Black, L., Carpenter, G., & Schrodt, R. (1997) · Epilepsia · doi:10.1111/j.1528-1157.1997.tb01102.x · Cited by 380
The stigma of epilepsy: a European perspective
Baker, G. A., Brooks, J., Buck, D., & Jacoby, A. (2000) · Epilepsia · doi:10.1111/j.1528-1157.2000.tb01512.x · Cited by 357
Ebrahim, S. B. J. (1995) · Social Science & Medicine · doi:10.1016/0277-9536(95)00116-o · Cited by 319
In the Closet with Illness: Epilepsy, Stigma Potential and Information Control
Schneider, J. W., & Conrad, P. (1980) · Social Problems · doi:10.2307/800379 · Cited by 307
Epilepsy and the quality of everyday life
Jacoby, A. (1992) · Social Science & Medicine · doi:10.1016/0277-9536(92)90193-t · Cited by 305
Quantitative data analysis for social scientists
(1990) · Choice Reviews Online · doi:10.5860/choice.28-1015 · Cited by 273
The problem of quality of life
Hunt, S. M. (1997) · Quality of Life Research · doi:10.1023/a:1026402519847 · Cited by 270
Quality of life in breast cancer
Ferrell, B. R., GRANT, M. M., Funk, B., Otis‐Green, S., & Garcia, N. (1998) · Cancer Nursing · doi:10.1097/00002820-199802000-00001 · Cited by 237
Psychosocial Weil‐Being and Epilepsy: An Empirical Study
COLLINGS, J. A. (1990) · Epilepsia · doi:10.1111/j.1528-1157.1990.tb05497.x · Cited by 216
Quality of life in breast cancer
Ferrell, B. R., GRANT, M. M., Funk, B., Otis‐Green, S., & Garcia, N. (1997) · Cancer Nursing · doi:10.1097/00002820-199712000-00003 · Cited by 190
The burden of rheumatoid arthritis: Tolerating the uncertainty
Wiener, C. L. (1975) · Social Science & Medicine (1967) · doi:10.1016/0037-7856(75)90101-8 · Cited by 187
Suurmeijer, T. P. B. M., Doeglas, D. M., Briançon, S., Krijnen, W. P., Krol, B., Sanderman, R., Moum, T., BJELLE, A. O., & van den Heuvel, W. J. (1995) · Social Science & Medicine · doi:10.1016/0277-9536(94)00253-p · Cited by 145
Self-citationThe Stigma of Epilepsy as a Self‐Concept
Ryan, R. E., Kempner, K., & Emlen, A. C. (1980) · Epilepsia · doi:10.1111/j.1528-1157.1980.tb04091.x · Cited by 143
An international study on measuring social support: Interactions and satisfaction
Doeglas, D. M., Suurmeijer, T. P. B. M., Briançon, S., Moum, T., Krol, B., BJELLE, A. O., Sanderman, R., & van den Heuvel, W. J. (1996) · Social Science & Medicine · doi:10.1016/0277-9536(96)00036-6 · Cited by 142
Self-citationEnvironmental and health-related quality of life: Conceptual and methodological similarities
Rogerson, R. (1995) · Social Science & Medicine · doi:10.1016/0277-9536(95)00122-n · Cited by 139
Psychosocial Dimensions of Epilepsy: A Review of the Literature
Levin, R., Banks, S., & Berg, B. (1988) · Epilepsia · doi:10.1111/j.1528-1157.1988.tb04238.x · Cited by 132
Hermann, B. P. (1992) · Journal of Epilepsy · doi:10.1016/s0896-6974(05)80134-3 · Cited by 119
The impact of chronic epilepsy on the family
Thompson, P. J., & Upton, D. (1992) · Seizure · doi:10.1016/1059-1311(92)90054-5 · Cited by 117
COLLINGS, J. A. (1990) · Social Science & Medicine · doi:10.1016/0277-9536(90)90058-z · Cited by 104
Krupiński, J. (1980) · Social Science & Medicine Part A Medical Sociology · doi:10.1016/s0271-7123(80)91661-2 · Cited by 97
Structural relationships between social support and coping
McColl, M. A., Lei, H., & Skinner, H. A. (1995) · Social Science & Medicine · doi:10.1016/0277-9536(94)00338-t · Cited by 89
Chaplin, J. E., LASSO, R. Y., Shorvon, S. D., & Floyd, M. (1992) · BMJ · doi:10.1136/bmj.304.6839.1416 · Cited by 85
Quality of life: A process view
Leventhal, H., & Colman, S. (1997) · Psychology and Health · doi:10.1080/08870449708406737 · Cited by 80
Stability and determinants of psychosocial well-being in multiple sclerosis.
Devins, G. M., Seland, T. P., Klein, G., Edworthy, S. M., & Saary, M. J. (1993) · Rehabilitation Psychology · doi:10.1037/h0080288 · Cited by 80
A Quantitative Approach to Measuring the Social Effects of Epilepsy
Chaplin, J. E., Yepez, R., Shorvon, S. D., & Floyd, M. (1990) · Neuroepidemiology · doi:10.1159/000110765 · Cited by 68
Vilhjálmsson, R. (1998) · Social Science & Medicine · doi:10.1016/s0277-9536(98)00119-1 · Cited by 60
Introduction: Quality of Life in Epilepsy
Devinsky, O., & Cramer, J. A. (1993) · Epilepsia · doi:10.1111/j.1528-1157.1993.tb05910.x · Cited by 46
Epilepsy in Children and Adolescents
Dreifuss, F. E., Renier, W. O., & Suurmeijer, T. P. B. M. (2012) · PsycEXTRA Dataset · doi:10.1037/e619402012-001 · Cited by 39
Self-citationMenken, M. (1995) · Archives of Neurology · doi:10.1001/archneur.1995.00540340020009 · Cited by 35
Schachter, S. C., Shafer, P. O., & Murphy, W. F. (1993) · Journal of Epilepsy · doi:10.1016/0896-6974(93)90005-u · Cited by 28
Guest Editorial Deconstructing quality of life
Oliver, N. (1995) · Journal of Mental Health · doi:10.1080/09638239550037785 · Cited by 25
Life fulfilment in an epilepsy sample from the United States
COLLINGS, J. A. (1995) · Social Science & Medicine · doi:10.1016/0277-9536(94)00328-q · Cited by 24
Moorer, P., & Suurmeijer, T. P. B. M. (1993) · Psychological Reports · doi:10.2466/pr0.1993.73.3f.1324 · Cited by 24
Self-citationBradley, L. A. (1989) · Arthritis & Rheumatism · doi:10.1002/anr.1780321220 · Cited by 20
Krupiński, J. (1980) · Social Science & Medicine Medical Psychology and Medical Sociology · doi:10.1016/0160-7979(80)90085-5 · Cited by 19
A Study of the Unidimensionality and Cumulativeness of the MOS Short-Form General Health Survey
Moorer, P., & Suurmeijer, T. P. B. M. (1994) · Psychological Reports · doi:10.2466/pr0.1994.74.2.467 · Cited by 18
Self-citationQuality of Life in Epilepsy: Multidimensional Profile and Underlying Latent Dimensions
Suurmeijer, T. P. B. M., Reuvekamp, M., Aldenkamp, A. P., Overweg, J., & Sie, O. G. (1998) · Journal of Epilepsy · doi:10.1016/s0896-6974(97)00141-2 · Cited by 14
Self-citationSocial support and emotional adjustment in people with chronic epilepsy
Upton, D. (1993) · Journal of Epilepsy · doi:10.1016/s0896-6974(05)80097-0 · Cited by 13
Community Aspects of Epilepsy – A Modern Re‐Appraisal
Boshes, L. D., & Kienast, H. W. (1972) · Epilepsia · doi:10.1111/j.1528-1157.1972.tb04546.x · Cited by 5
The Organization and Utilization of a Case Register on Epilepsy
Suurmeije, T. P. B. M., Aldenkamp, A. P., Heisen, T. W. H., Overweg, J., Renier, W. O., & Sie, O. G. (1994) · International Journal of Adolescent Medicine and Health · doi:10.1515/ijamh.1994.7.4.281 · Cited by 2
Kinderen met epilepsie: een onderzoek naar de invloed van een ziekte op kind en gezin
Suurmeijer, T. P. B. M. (1980) · University of Groningen research database (University of Groningen / Centre for Information Technology) · Cited by 2
Self-citation
Research works printed but not linked: 10
- Ravnik IM, 1997, What should you say before you say seizures., Int Epilepsy News, 129, 17
- Conrad P, 1987, Research in the sociology of health care. Vol. 6: the experience and management of chronic illness, 1
- Troster H, 1998, Coping with stigma in people with epilepsy., Gruppendynamik-Z Angew Sozial, 29, 189
- Baker GA, 1994, Epilepsy and quality of life, 135
- Shumaker SA, 1990, Quality of life assessments in clinical trials, 95
- Glossary Committee of the American College of Rheumatology, 1988, Volume III of the Health Status Measurement, 1
- Central Bureau for Statistics, 1994, Statistical yearbook
- Krol B, 1994, A Comparison of the General Health Questionnaire‐28 between patients with rheumatoid arthritis from The Netherlands, France, Sweden and Norway., Eur J Psychol Assess, 10, 93
- Deeg DJH, 1997, De dwang van de analysemethode bij het gebruik van longitudinale gegevens: het geval van ervaren gezondheid en depressie. (The pressure of methods of analysis when using longitudinal data: the case of self‐reported health and depression)., Tijdschr Soc Geneesk, 3, 129
- König‐Zahn C, 1993, Het meten van de gezondheidstoestand: beschrijving en evaluatie van vragenlijsten, 1: algemene gezondheid
Cited by
Sorted by citations
Epilepsy and social identity: the stigma of a chronic neurological disorder
Jacoby, A., Snape, D., & Baker, G. A. (2005) · The Lancet Neurology · doi:10.1016/s1474-4422(05)01014-8 · Cited by 518
Predictors of health-related quality of life and costs in adults with epilepsy: A systematic review
Taylor, R. S., Sander, J. W. A. S., Taylor, R. J., & Baker, G. A. (2011) · Epilepsia · doi:10.1111/j.1528-1167.2011.03213.x · Cited by 394
Luoni, C., Bisulli, F., Canevini, M. P., Sarro, G. D., Fattore, C., Galimberti, C. A., Gatti, G., Neve, A. L., Muscas, G., Specchio, L. M., et al. (2011) · Epilepsia · doi:10.1111/j.1528-1167.2011.03325.x · Cited by 286
Determinants of quality of life in epilepsy
Loring, D. W., Meador, K. J., & Lee, G. P. (2004) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2004.08.019 · Cited by 260
Molina, Y., Choi, S. W., Cella, D. F., & Rao, D. (2012) · International Journal of Behavioral Medicine · doi:10.1007/s12529-012-9243-4 · Cited by 296
Metadata
- Authors
- Suurmeijer, T. P. B. M., Reuvekamp, M. F., & Aldenkamp, B. P.
- Affiliations
- University of Groningen (NL)
- Venue
- Epilepsia
- Publisher
- Wiley
- Published
- 2001-09
- Volume
- 42
- Issue
- 9
- Pages
- 1160-1168
- ISSN
- 0013-9580 (ISSN-L)
- 1528-1167
- OpenAlex
- W2033674445
- Cited by
- 364
- References
- 65
- Citations by year
- 2026: 9 · 2025: 6 · 2024: 16 · 2023: 10 · 2022: 5 · 2021: 19 · 2020: 14 · 2019: 13 · 2018: 21 · 2017: 20 · 2016: 19 · 2015: 19 · 2014: 16 · 2013: 16 · 2012: 18
- FWCI
- 4.74
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Locations
- Epilepsia (publishedVersion)
- PubMed (publishedVersion)
- University of Groningen research database (University of Groningen / Centre for Information Technology) (publishedVersion, other-oa)
- University of Groningen research database (University of Groningen / Centre for Information Technology) (submittedVersion, other-oa)
- Topics
- Health Sciences › Medicine › Clinical Neurology › Epilepsy research and treatment
- Social Sciences › Psychology › Clinical Psychology › Health and Well-being Studies
- Health Sciences › Medicine › Oncology › Cancer survivorship and care
- Keywords
- epilepsy, quality of life, social functioning, psychological functioning, psychological distress, loneliness, coping, perceived stigma, psychosocial functioning, health perception, antiepileptic drug adverse effects, seizure frequency, self-esteem, mastery
- MeSH terms
- Adaptation, Psychological, Adult, Ambulatory Care, Anticonvulsants, Attitude to Health, Epilepsy, Female, Health Status, Humans, Male, Netherlands, Quality of Life, Regression Analysis, Research Design, Social Adjustment, Social Support, Stress, Psychological, Thiocarbamates, Comorbidity, Sickness Impact Profile, Self Efficacy
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review