Cited by 159Central Venous Catheters and HemodialysisDialysis and Renal Disease ManagementParathyroid Disorders and Treatments

Patients’ Perspectives on Hemodialysis Vascular Access: A Systematic Review of Qualitative Studies

Casey, Jordan R., Hanson, Camilla S., Winkelmayer, Wolfgang C., Craig, Jonathan C., Palmer, Suetonia, Strippoli, Giovanni F.M., Tong, Allison·2014·American Journal of Kidney Diseases

Abstract

Background Delayed creation of vascular access may be due in part to patient refusal and is associated with adverse outcomes. Concerns about vascular access are prevailing treatment-related stressors for patients on hemodialysis therapy. This study aims to describe patients' perspectives on vascular access initiation and maintenance in hemodialysis. Study design Systematic review and thematic synthesis of qualitative studies. Setting & population Patients with chronic kidney disease who express opinions about vascular access for hemodialysis. Search strategy & sources MEDLINE, EMBASE, PsycINFO, CINAHL, reference lists, and PhD dissertations were searched to October 2013. Analytical approach Thematic synthesis was used to analyze the findings. Results From 46 studies involving 1,034 patients, we identified 6 themes: heightened vulnerability (bodily intrusion, fear of cannulation, threat of complications and failure, unpreparedness, dependence on a lifeline, and wary of unfamiliar providers), disfigurement (preserving normal appearance, visual reminder of disease, and avoiding stigma), mechanization of the body (bonded to a machine, internal abnormality, and constant maintenance), impinging on way of life (physical incapacitation, instigating family tension, wasting time, and added expense), self-preservation and ownership (task-focused control, advocating for protection, and acceptance), and confronting decisions and consequences (imminence of dialysis therapy and existential…

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Crossref · 10.1053/j.ajkd.2014.06.024

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  • Non-attendance at clinical appointments is linked to fears about cannulation and dialysis access site generation.

    “A qualitative systematic review showed non-attendance at clinical appointments was linked to fears about cannulation and dialysis access site generation (Casey et al . 2014).”
  • Behaviours described by haemodialysis patients as helpful for negotiating the complex self-management challenges of ESKD included acceptance of their appearance and the potential for health complications to occur and self-assertion with medical professionals.

    “Behaviours described by haemodialysis patients as helpful for negotiating the complex self-management challenges of ESKD included: acceptance of their appearance and the potential for health complications to occur and selfassertion with medical professionals (Casey et al . 2014).”
  • Avoidance of social situations that had the potential to damage dialysis access sites and repeated checking behaviours for access site functionality were commonly initiated in response to concerns about future health complications.

    “Likewise, avoidance of social situations that had the potential to damage dialysis access sites and repeated checking behaviours for access site functionality, were commonly initiated in response to concerns about future health complications (Casey et al . 2014).”
  • Qualitative reviews emphasise that ESKD diagnosis and procedures used to gain dialysis access are particularly anxiety provoking.

    “Qualitative reviews emphasise ESKD diagnosis (Tong et al . 2013) and procedures used to gain dialysis access (Casey et al . 2014) are particularly anxiety provoking.”
  • Qualitative research identifies specific concerns in ESKD about pain and needles, the threat of complications at the dialysis access site, mistrust of unfamiliar health providers administering painful procedures, uncertainty whilst waiting for a transplant, and the 'unseen burden of ESKD' and its impact on social interactions with others.

    “Other themes identified by qualitative research highlight specific concerns about pain and needles, the threat of complications at the dialysis access site, and mistrust of unfamiliar health providers administering painful procedures, uncertainty whilst waiting for a transplant, and the 'unseen burden of ESKD' and its impact on social interactions with others (Moran et al . 2011; Tong et al . 2013”

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Authors
Casey, J. R., Hanson, C. S., Winkelmayer, W. C., Craig, J. C., Palmer, S., Strippoli, G. F. M., & Tong, A.
Affiliations
  • The University of Sydney (AU)
  • University of Otago (NZ)
Corresponding author
Tong, Allison
Venue
American Journal of Kidney Diseases
Publisher
Elsevier BV
Published
2014-12
Volume
64
Issue
6
Pages
937-953
ISSN
0272-6386 (ISSN-L)
OpenAlex
W2060966612
Cited by
159
References
5
Citations by year
2026: 18 · 2025: 13 · 2024: 12 · 2023: 14 · 2022: 19 · 2021: 17 · 2020: 7 · 2019: 17 · 2018: 12 · 2017: 11 · 2016: 13 · 2015: 3 · 2014: 1
FWCI
2.03
Type
journal article
Language
en
Open access
closed
Locations
  • American Journal of Kidney Diseases (publishedVersion)
  • PubMed (publishedVersion)
  • CINECA IRIS Institutional Research Information System (University of Bari Aldo Moro) (submittedVersion)
Topics
  • Health Sciences › Health Professions › Emergency Medical Services › Central Venous Catheters and Hemodialysis
  • Health Sciences › Medicine › Nephrology › Dialysis and Renal Disease Management
  • Health Sciences › Medicine › Nephrology › Parathyroid Disorders and Treatments
Keywords
hemodialysis vascular access, patient perspectives, chronic kidney disease, vascular access maintenance, patient refusal, body image, stigma, existential concerns, physician-patient trust, quality of life, patient education
MeSH terms
Catheterization, Renal Dialysis, Humans, Health Knowledge, Attitudes, Practice, Renal Insufficiency, Chronic, Patient Preference, Vascular Access Devices

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