Patients’ Perspectives on Hemodialysis Vascular Access: A Systematic Review of Qualitative Studies
Abstract
Background Delayed creation of vascular access may be due in part to patient refusal and is associated with adverse outcomes. Concerns about vascular access are prevailing treatment-related stressors for patients on hemodialysis therapy. This study aims to describe patients' perspectives on vascular access initiation and maintenance in hemodialysis. Study design Systematic review and thematic synthesis of qualitative studies. Setting & population Patients with chronic kidney disease who express opinions about vascular access for hemodialysis. Search strategy & sources MEDLINE, EMBASE, PsycINFO, CINAHL, reference lists, and PhD dissertations were searched to October 2013. Analytical approach Thematic synthesis was used to analyze the findings. Results From 46 studies involving 1,034 patients, we identified 6 themes: heightened vulnerability (bodily intrusion, fear of cannulation, threat of complications and failure, unpreparedness, dependence on a lifeline, and wary of unfamiliar providers), disfigurement (preserving normal appearance, visual reminder of disease, and avoiding stigma), mechanization of the body (bonded to a machine, internal abnormality, and constant maintenance), impinging on way of life (physical incapacitation, instigating family tension, wasting time, and added expense), self-preservation and ownership (task-focused control, advocating for protection, and acceptance), and confronting decisions and consequences (imminence of dialysis therapy and existential…
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Non-attendance at clinical appointments is linked to fears about cannulation and dialysis access site generation.
“A qualitative systematic review showed non-attendance at clinical appointments was linked to fears about cannulation and dialysis access site generation (Casey et al . 2014).”
From Improving Distress in Dialysis (iDiD): A tailored CBT self-management treatment for patients undergoing dialysis. (2016) · cites this paper as Casey et al . 2014
Behaviours described by haemodialysis patients as helpful for negotiating the complex self-management challenges of ESKD included acceptance of their appearance and the potential for health complications to occur and self-assertion with medical professionals.
“Behaviours described by haemodialysis patients as helpful for negotiating the complex self-management challenges of ESKD included: acceptance of their appearance and the potential for health complications to occur and selfassertion with medical professionals (Casey et al . 2014).”
From Improving Distress in Dialysis (iDiD): A tailored CBT self-management treatment for patients undergoing dialysis. (2016) · cites this paper as Casey et al . 2014
Avoidance of social situations that had the potential to damage dialysis access sites and repeated checking behaviours for access site functionality were commonly initiated in response to concerns about future health complications.
“Likewise, avoidance of social situations that had the potential to damage dialysis access sites and repeated checking behaviours for access site functionality, were commonly initiated in response to concerns about future health complications (Casey et al . 2014).”
From Improving Distress in Dialysis (iDiD): A tailored CBT self-management treatment for patients undergoing dialysis. (2016) · cites this paper as Casey et al . 2014
Qualitative reviews emphasise that ESKD diagnosis and procedures used to gain dialysis access are particularly anxiety provoking.
“Qualitative reviews emphasise ESKD diagnosis (Tong et al . 2013) and procedures used to gain dialysis access (Casey et al . 2014) are particularly anxiety provoking.”
From Improving Distress in Dialysis (iDiD): A tailored CBT self-management treatment for patients undergoing dialysis. (2016) · cites this paper as Casey et al . 2014
Qualitative research identifies specific concerns in ESKD about pain and needles, the threat of complications at the dialysis access site, mistrust of unfamiliar health providers administering painful procedures, uncertainty whilst waiting for a transplant, and the 'unseen burden of ESKD' and its impact on social interactions with others.
“Other themes identified by qualitative research highlight specific concerns about pain and needles, the threat of complications at the dialysis access site, and mistrust of unfamiliar health providers administering painful procedures, uncertainty whilst waiting for a transplant, and the 'unseen burden of ESKD' and its impact on social interactions with others (Moran et al . 2011; Tong et al . 2013”
From Improving Distress in Dialysis (iDiD): A tailored CBT self-management treatment for patients undergoing dialysis. (2016) · cites this paper as Casey et al . 2014
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Enhancing transparency in reporting the synthesis of qualitative research: ENTREQ
Tong, A., Flemming, K., McInnes, E., Oliver, S., & Craig, J. (2012) · BMC Medical Research Methodology · doi:10.1186/1471-2288-12-181 · Cited by 3,569 · see citing works
Self-citationGiacomini, M. K., Cook, D. J., & for the Evidence-Based Medicine Working Group (2000) · JAMA · doi:10.1001/jama.284.3.357 · Cited by 931 · see citing works
Psychosocial Intervention Improves Depression, Quality of Life, and Fluid Adherence in Hemodialysis
Cukor, D., Ver Halen, N., Asher, D. R., Coplan, J. D., Weedon, J., Wyka, K. E., Saggi, S. J., & Kimmel, P. L. (2014) · Journal of the American Society of Nephrology · doi:10.1681/asn.2012111134 · Cited by 263 · see citing works
Living on dialysis: concerns of clients in a renal setting
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May, C. R., Cummings, A., Myall, M., Harvey, J., Pope, C., Griffiths, P., Roderick, P., Arber, M., Boehmer, K., Mair, F. S., et al. (2016) · BMJ Open · doi:10.1136/bmjopen-2016-011694 · Cited by 95 · see citing works
Hudson, J. L., Moss‐Morris, R., Game, D., Carroll, A., & Chilcot, J. (2016) · Journal of Renal Care · doi:10.1111/jorc.12168 · Cited by 80 · see citing works
- Authors
- Casey, J. R., Hanson, C. S., Winkelmayer, W. C., Craig, J. C., Palmer, S., Strippoli, G. F. M., & Tong, A.
- Affiliations
- The University of Sydney (AU)
- University of Otago (NZ)
- Corresponding author
- Tong, Allison
- Venue
- American Journal of Kidney Diseases
- Publisher
- Elsevier BV
- Published
- 2014-12
- Volume
- 64
- Issue
- 6
- Pages
- 937-953
- ISSN
- 0272-6386 (ISSN-L)
- OpenAlex
- W2060966612
- Cited by
- 159
- References
- 5
- Citations by year
- 2026: 18 · 2025: 13 · 2024: 12 · 2023: 14 · 2022: 19 · 2021: 17 · 2020: 7 · 2019: 17 · 2018: 12 · 2017: 11 · 2016: 13 · 2015: 3 · 2014: 1
- FWCI
- 2.03
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- American Journal of Kidney Diseases (publishedVersion)
- PubMed (publishedVersion)
- CINECA IRIS Institutional Research Information System (University of Bari Aldo Moro) (submittedVersion)
- Topics
- Health Sciences › Health Professions › Emergency Medical Services › Central Venous Catheters and Hemodialysis
- Health Sciences › Medicine › Nephrology › Dialysis and Renal Disease Management
- Health Sciences › Medicine › Nephrology › Parathyroid Disorders and Treatments
- Keywords
- hemodialysis vascular access, patient perspectives, chronic kidney disease, vascular access maintenance, patient refusal, body image, stigma, existential concerns, physician-patient trust, quality of life, patient education
- MeSH terms
- Catheterization, Renal Dialysis, Humans, Health Knowledge, Attitudes, Practice, Renal Insufficiency, Chronic, Patient Preference, Vascular Access Devices
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