Schulung von Kindern mit Epilepsie und deren Eltern mit dem Modularen Schulungsprogramm Epilepsie für Familien (FAMOSES) - Ergebnisse einer Evaluationsstudie
Abstract
PURPOSE: The aim of the study was to evaluate the efficacy of the modular educational program for children with epilepsy and their parents (FAMOSES). This program was developed by an interdisciplinary project group to improve knowledge, coping, treatment outcome, emotional and practical adaptation to the condition. METHODS: A prospective, controlled, multi-center, pre-post study design was used to examine the efficacy of the program in the treatment group compared to the waiting group (control group). Questionnaires included epilepsy specific scales regarding knowledge, attitudes, restrictions in daily living, epilepsy related fears, coping with the chronic disease and generic instruments (quality of life, KINDL). 55 parents of the treatment group completed the questionnaires three months before the course and three months later; the corresponding waiting group included 48 parents. Respectively, 31 children, who participated in the program, completed the questionnaires immediately before the course and three months later; the corresponding waiting group included 19 children. RESULTS: Children, who attended the program, showed improvements in the domains perceived restrictions (significant, medium effect size), absence from school and seizure frequency. Not significantly greater compared to the control group were the improvements of knowledge, attitudes and fears regarding to the epilepsy. Parents of the treatment group showed significant enhancements in epilepsy specific knowledge (large effect size), attitudes toward the epilepsy, management of epileptic seizures and significant reductions of fears and restrictions of their child with epilepsy (small to medium effect sizes).
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Only 2 studies investigated educational interventions for children with epilepsy.
“The majority of studies examined interventions for adults with epilepsy (75%); only 2 studies investigated educational interventions for children with epilepsy. 38,42”
From Cochrane systematic review and meta-analysis of the impact of psychological treatments for people with epilepsy on health-related quality of life (2018) · cites this paper as [42]
Almost half of all study designs included a wait list control (WLC) group (n = 11, 46%).
“Almost half of all study designs included a wait list control (WLC) group (n = 11, 46%). 28,31 -33,37,38,40,42,43,45,46”
From Cochrane systematic review and meta-analysis of the impact of psychological treatments for people with epilepsy on health-related quality of life (2018) · cites this paper as [42]
Reasons for a rating as high ROB included quasi-randomized trial designs such as a matched design (n = 1, 4%), alternating assignment (n = 1, 4%), and allocation based on participants' application to 1 of 2 available courses and availability of spaces in offered courses in a WLC design (n = 2, 8%).
“Reasons for a rating as high ROB included quasirandomized trial designs such as a matched design (n = 1, 4%), 33 alternating assignment (n = 1, 4%), 45 and allocation based on participants ' application to 1 of 2 available courses and availability of spaces in offered courses in a WLC design (n = 2, 8%). 38,42”
From Cochrane systematic review and meta-analysis of the impact of psychological treatments for people with epilepsy on health-related quality of life (2018) · cites this paper as [42]
Of the 24 studies, 11 examined group therapy (46%).
“Of the 24 studies, 11 examined group therapy (46%), 20,29,30,33,37,38,40 -42,46,47”
From Cochrane systematic review and meta-analysis of the impact of psychological treatments for people with epilepsy on health-related quality of life (2018) · cites this paper as [42]
A rating of low ROB was confirmed based on document review of registered protocols provided by the authors for 9 studies (37%).
“A rating of low ROB was confirmed based on document review of registered protocols provided by the authors for 9 studies (37%). 32,36,40,42,44 -46,49,50”
From Cochrane systematic review and meta-analysis of the impact of psychological treatments for people with epilepsy on health-related quality of life (2018) · cites this paper as [42]
Five studies (55%) found no significant differences between the treatment and control groups in seizure frequency.
“whereas the other 5 studies (55%) found no significant differences between the groups. 26,27,33,35,38,42”
From Cochrane systematic review and meta-analysis of the impact of psychological treatments for people with epilepsy on health-related quality of life (2018) · cites this paper as [42]
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- Authors
- Rau, J., May, T. W., Pfäfflin, M., Heubrock, D., & Petermann, F.
- Affiliations
- University of Bremen (DE)
- Gesellschaft für Epilepsieforschung e.V. (DE)
- Venue
- Die Rehabilitation
- Publisher
- Georg Thieme Verlag KG
- Published
- 2006
- Volume
- 45
- Issue
- 01
- Pages
- 27-39
- ISSN
- 0034-3536 (ISSN-L)
- 1439-1309
- OpenAlex
- W2001094432
- Cited by
- 39
- References
- 0
- Citations by year
- 2025: 1 · 2024: 1 · 2023: 1 · 2022: 2 · 2021: 1 · 2020: 6 · 2019: 2 · 2018: 6 · 2017: 3 · 2016: 4 · 2015: 3 · 2013: 1 · 2012: 2
- FWCI
- 0.85
- Type
- journal article
- Language
- de
- Open access
- closed
- Locations
- Die Rehabilitation (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Medicine › Psychiatry and Mental health › Epilepsy research and treatment
- Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
- Health Sciences › Health Professions › Pharmacy › Nursing care and research
- Keywords
- pediatric epilepsy, parent education, modular educational programs, epilepsy knowledge, parental attitudes, seizure control, school absenteeism, seizure frequency, quality of life, coping with chronic illness
- MeSH terms
- Adolescent, Adult, Attitude to Health, Child, Educational Measurement, Epilepsy, Family, Female, Health Education, Humans, Male, Middle Aged, Patient Education as Topic, Prospective Studies, Quality of Life, Surveys and Questionnaires, Program Evaluation, Incidence, Treatment Outcome, Outcome Assessment, Health Care
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