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The Threat to Medical-Records Research
Abstract
The potential for misuse of personal information by insurers and employers has heightened concern about the confidentiality of medical records. Despite the absence of documented abuses related to approved research projects,1 legislation has been passed in Minnesota that restricts access to medical records for research purposes, and similar measures are proposed in some federal legislation. Such restrictions pose an obvious threat to patient-oriented investigations, such as observational outcome studies, that are based on existing medical-records data and require personal identifiers to link initial interventions with ultimate results. Clinicians and patients alike mostly take for granted the availability of this information, . . .
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“Finally, the current data cannot be generalized to the entire US population because the racial composition of this community is predominantly white (54).”
From Psychosocial Distress and Somatic Symptoms in Community Subjects With Irritable Bowel Syndrome: A Psychological Component Is the Rule (2009) · cites this paper as [54]
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Metadata
- Authors
- Melton, L. J.
- Affiliations
- Mayo Clinic (US)
- Corresponding author
- Melton, L. Joseph
- Venue
- New England Journal of Medicine
- Publisher
- Massachusetts Medical Society
- Published
- 1997-11-13
- Volume
- 337
- Issue
- 20
- Pages
- 1466-1470
- ISSN
- 0028-4793 (ISSN-L)
- 1533-4406
- OpenAlex
- W2324682309
- Cited by
- 245
- References
- 27
- Citations by year
- 2025: 1 · 2024: 1 · 2023: 1 · 2022: 2 · 2021: 2 · 2020: 4 · 2019: 3 · 2018: 6 · 2017: 7 · 2016: 3 · 2015: 7 · 2014: 6 · 2013: 11 · 2012: 16
- FWCI
- 26.08
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- New England Journal of Medicine (publishedVersion)
- PubMed (publishedVersion)
- DigitalGeorgetown (Georgetown University Library) (submittedVersion)
- Funders
- National Institute of Arthritis and Musculoskeletal and Skin Diseases (R01AR030582, AR30582)
- Topics
- Health Sciences › Health Professions › Health Information Management › Thoreau and American Literature
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Ethics in Clinical Research
- Health Sciences › Health Professions › Health Information Management › Medical Coding and Health Information
- Keywords
- medical records confidentiality, privacy law, federal legislation, patient-oriented research, personal identifiers
- MeSH terms
- Confidentiality, Europe, Hospitals, Group Practice, Humans, Medical Records, Minnesota, Research, Research Design, Social Control, Formal, Social Justice, Selection Bias, Risk Assessment, Privacy, Personal Autonomy, Disclosure, Government Regulation, Research Subjects, Biomedical Research, History, 20th Century
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