Recalibrating Privacy Protections to Promote Patient Engagement
Abstract
HIPAA regulations designed to protect patient privacy may be preventing patient-engagement tools from reaching their full potential. It may be time to reassess what levels of privacy and security are reasonable and appropriate for providing effective care.
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Opt-in systems with transparent privacy policies might be better equipped to improve patient engagement while maintaining autonomy.
“Opt-in systems with transparent privacy policies might be better equipped to improve patient engagement while maintaining autonomy112.”
From Smart wearable devices in cardiovascular care: Where we are and how to move forward (2021) · cites this paper as [112]
HIPAA/HITECH privacy and security bureaucratic requirements in the USA are considered outdated and might need to be amended to cope with increasing availability and heterogeneity of technologies that personalize and promote patient engagement.
“In the USA, HIPAA/HITECH (The Health Insurance Portability and Accountability Act of 1996/Health Information Technology for Economic and Clinical Health Act) privacy and security bureaucratic requirements are, to an extent, considered outdated and might need to be amended to cope with the increasing availability and heterogeneity of technologies that personalize and promote patient engagement112.”
From Smart wearable devices in cardiovascular care: Where we are and how to move forward (2021) · cites this paper as [112]
In Europe, the General Data Protection Regulation states that everyone has the right to control and protect their own personal data.
“In Europe, the General Data Protection Regulation states that everyone has the right to control and protect their own personal data”
From Unlocking Tomorrow’s Health Care: Expanding the Clinical Scope of Wearables by Applying Artificial Intelligence (2024) · cites this paper as [58]
In many cases, users have to opt out of certain settings to restrict the use of their information by manufacturers.
“However in many cases, users have to “opt out” of certain settings to restrict the use of their information by manufacturers.”
From Unlocking Tomorrow’s Health Care: Expanding the Clinical Scope of Wearables by Applying Artificial Intelligence (2024) · cites this paper as [58]
Cites
Full Coverage for Preventive Medications after Myocardial Infarction
Choudhry, N. K., Avorn, J., Glynn, R. J., Antman, E. M., Schneeweiß, S., Toscano, M., Reisman, L., Fernandes, J. F., Spettell, C. M., Lee, J. L.-Y., et al. (2011) · New England Journal of Medicine · doi:10.1056/nejmsa1107913 · Cited by 736 · see citing works
Self-citationMobile Telephone Text Messaging for Medication Adherence in Chronic Disease: A Meta-analysis
Thakkar, J., Kurup, R., Laba, T.-L., Santo, K., Thiagalingam, A., Rodgers, A., Woodward, M., Redfern, J., & Chow, C. K. (2016) · JAMA Internal Medicine · doi:10.1001/jamainternmed.2015.7667 · Cited by 685 · see citing works
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Smart wearable devices in cardiovascular care: Where we are and how to move forward
Bayoumy, K., Gaber, M., Elshafeey, A., Mhaimeed, O., Dineen, E. H., Marvel, F. A., Martin, S. S., Muse, E. D., Turakhia, M. P., Tarakji, K. G., et al. (2021) · Nature Reviews Cardiology · doi:10.1038/s41569-021-00522-7 · Cited by 829 · see citing works
Marvasti, T. B., Gao, Y., Murray, K. R., Hershman, S., McIntosh, C., & Moayedi, Y. (2024) · Canadian Journal of Cardiology · doi:10.1016/j.cjca.2024.07.009 · Cited by 35 · see citing works
- Authors
- Sarpatwari, A., & Choudhry, N. K.
- Affiliations
- Brigham and Women's Hospital (US)
- Venue
- New England Journal of Medicine
- Publisher
- Massachusetts Medical Society
- Published
- 2017-10-19
- Volume
- 377
- Issue
- 16
- Pages
- 1509-1511
- ISSN
- 0028-4793 (ISSN-L)
- 1533-4406
- OpenAlex
- W2766668207
- Cited by
- 9
- References
- 2
- Citations by year
- 2025: 2 · 2024: 1 · 2022: 1 · 2021: 2 · 2019: 1 · 2018: 2
- FWCI
- 1.53
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- New England Journal of Medicine (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Physical Sciences › Computer Science › Information Systems › Thoreau and American Literature
- Health Sciences › Health Professions › Health Information Management › Electronic Health Records Systems
- Social Sciences › Sociology and Political Science › Privacy, Security, and Data Protection
- Keywords
- patient privacy, HIPAA, patient engagement, health information security, privacy regulation, health information technology
- MeSH terms
- Confidentiality, Humans, Medical Records, Patient Participation, Self Care, United States, Privacy, Health Insurance Portability and Accountability Act
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