Interviewing people with aphasia: Insights into method adjustments from a pilot study
Abstract
Background: An increasing number of researchers are using qualitative methods to study the impact of aphasia. However, there is a paucity of published research outlining if and how qualitative interview methods are altered with participants with aphasia, and how potential modifications impact on the rigour of such research. Aims: In a qualitative, pilot study we investigated (1) What services do males in Victoria with mild chronic aphasia perceive could be provided by the Australian Aphasia Association? (2) How is qualitative in‐depth interviewing method altered to accommodate the communicative difficulties experienced by people with aphasia? This paper reports on the second aim. Methods and Procedures: A qualitative phenomenological approach was adopted. Purposeful sampling was used to obtain four participants with mild chronic aphasia across the variables of geographical location and employment status at time of stroke. An interview guide was devised and refined with a fifth pilot participant. Interviews were videotaped to allow for transcription of total communication strategies and 20% of transcriptions were verified by an expert in aphasia. Outcomes and Results: When using the traditional open‐ended, non‐directive approach to qualitative interviewing, very little information was obtained from the pilot participant. The results from four further participants revealed that with participants with aphasia, the researcher is required to step out of the traditional role of the…
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Previous qualitative explorations of the lived experiences of people with aphasia have found that modifications to traditional qualitative interview approaches are required to account for the population's vulnerability and communication difficulties.
“Previous qualitative explorations of the lived experiences of PwA (Dalemans, Wade, van den Heuvel, & de Witte, 2010;Luck & Rose, 2007;Tomkins, Siyambalpitiya, & Worrall, 2013) have found that modifications to traditional qualitative interview approaches have been required to account for the vulnerability of the population and their communication difficulties.”
From “Giving yourself some breathing room…”: an exploration of group meditation for people with aphasia (2021) · cites this paper as Luck & Rose, 2007
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Stroke survivors with aphasia and their social participation
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- Authors
- Luck, A. M., & Rose, M. L.
- Affiliations
- North West Regional Hospital (AU)
- La Trobe University (AU)
- Corresponding author
- Rose, Miranda L.
- ORCID
- Rose, Miranda L.
- Venue
- Aphasiology
- Publisher
- Informa UK Limited
- Published
- 2007-02
- Volume
- 21
- Issue
- 2
- Pages
- 208-224
- ISSN
- 0268-7038 (ISSN-L)
- 1464-5041
- OpenAlex
- W2075700640
- Cited by
- 146
- References
- 33
- Citations by year
- 2026: 11 · 2025: 13 · 2024: 16 · 2023: 10 · 2022: 16 · 2021: 7 · 2020: 9 · 2019: 9 · 2018: 12 · 2017: 5 · 2016: 3 · 2015: 4 · 2014: 4 · 2013: 10 · 2012: 2
- FWCI
- 12.37
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Aphasiology (publishedVersion)
- Topics
- Social Sciences › Sociology and Political Science › Focus Groups and Qualitative Methods
- Social Sciences › Sociology and Political Science › Qualitative Research Methods and Ethics
- Social Sciences › Education › Qualitative Research Methods and Applications
- Keywords
- aphasia, qualitative interviews, stroke survivors, researcher role, videotaped interviews
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