Cited by 112Fibromyalgia and Chronic Fatigue Syndrome ResearchIdentity, Memory, and TherapyPsychosomatic Disorders and Their Treatments

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‘That was my old life; it's almost like a past-life now’: Identity crisis, loss and adjustment amongst people living with Chronic Fatigue Syndrome

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Dickson, Adele, Knussen, Christina, Flowers, Paul·2008·Psychology & Health

DOI 10.1080/08870440701757393

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Abstract

Individual in-depth interviews were conducted with 14 people with Chronic Fatigue Syndrome (CFS). The interviews centred on the experience of living with the condition from the participants' own perspectives. All interviews were transcribed verbatim and were analysed using Interpretative Phenomenological Analysis. Three inter-related themes were presented: 'Identity crisis: agency and embodiment'; 'Scepticism and the self' and 'Acceptance, adjustment and coping'. Participants reported an ongoing sense of personal loss characterised by diminishing personal control and agency. An inability to plan for the future and subsequent feelings of failure, worthlessness and insignificance ensued. Scepticism in the wider social environment only heightened the consequential identity crisis. The importance of acceptance for adjusting to a life with CFS was highlighted. The findings are discussed in relation to extant literature and issues for health psychology are raised.

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Authors: Dickson, A., Knussen, C., & Flowers, P.
Affiliations: Edinburgh Napier University (GB)
Glasgow Caledonian University (GB)
Corresponding author: Dickson, Adele
ORCID: Dickson, Adele
Flowers, Paul
Venue: Psychology & Health
Publisher: Informa UK Limited
Published: 2008-05
Volume: 23
Issue: 4
Pages: 459-476
ISSN: 0887-0446 (ISSN-L)
1476-8321
DOI: 10.1080/08870440701757393
OpenAlex: W2135749026
Cited by: 112
References: 81
Citations by year: 2026: 6 · 2025: 6 · 2024: 2 · 2023: 4 · 2022: 7 · 2021: 7 · 2020: 8 · 2019: 14 · 2018: 7 · 2017: 4 · 2016: 8 · 2015: 7 · 2014: 4 · 2013: 5 · 2012: 5
FWCI: 4.20
Type: journal article
Language: en
Open access: green
napier-repository.worktribe.com
Licence: cc-by
Locations: Psychology and Health (publishedVersion)
PubMed (publishedVersion)
ResearchOnline (acceptedVersion)
Edinburgh Napier Research Repository (Edinburgh Napier University) (submittedVersion)
Edinburgh Napier Research Repository (Edinburgh Napier University) (submittedVersion, cc-by)
ResearchOnline (Glasgow Caledonian University) (submittedVersion)
Topics: Health Sciences › Medicine › Psychiatry and Mental health › Fibromyalgia and Chronic Fatigue Syndrome Research
Social Sciences › Psychology › Developmental and Educational Psychology › Identity, Memory, and Therapy
Health Sciences › Medicine › Psychiatry and Mental health › Psychosomatic Disorders and Their Treatments
Keywords: chronic fatigue syndrome, identity crisis, embodiment, agency, personal loss, acceptance, coping, adjustment, personal control, lived experience, health psychology
MeSH terms: Adaptation, Psychological, Adult, Aged, Female, Humans, Identity Crisis, Male, Middle Aged, Social Environment, Fatigue Syndrome, Chronic, Qualitative Research, Young Adult

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‘That was my old life; it's almost like a past-life now’: Identity crisis, loss and adjustment amongst people living with Chronic Fatigue Syndrome

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