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Inclusion of Caregiver Supports and Services in Home- and Community-Based Service Programs: Recent Reports from State Units on Aging
Open accessAbstract
Caregivers have an important role in assisting frail and/or disabled individuals to maintain their independence in the community. Support to assist caregivers in this often stressful and demanding role is critical to sustaining the caregivers' health and ability to provide care. This paper reviews federal policy changes since 2000 that have expanded and enhanced services for informal caregivers. Next, data collected from State Units on Aging and other state agencies are presented to describe the extent to which caregiver services are included in home- and community-based programs under three funding streams (Medicaid waivers, Centers for Medicare and Medicaid Services-funded programs, and state-funded programs). Program characteristics, such as eligibility and consumer-directed options, are included. Finally, the accomplishments and initiatives reported by state respondents related to supporting informal caregivers are also explained. Results indicate that services for informal caregivers are receiving greater attention and are frequently offered under home- and community-based service programs by the states that participated in this study.
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“Communities serve as important sites of social support (76).”
From Caring alone: older adult care burdens, practices, and structural imbalances among China's one-child generation (2025) · cites this paper as [76]
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Citations
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References 19 · Cited by 23
Research works printed but not linked: 2
- Whitlatch, C. J., & Feinberg., L. F. (2007). Family care and decision making. In C. Cox (Ed.), Dementia and social work practice (p. 144). New York: Springer Publishing Co.
- Zarit, S. H., Gaugler, J. E., & Jarrott, S. E. (1999). Useful services for families: Research findings and directions. International Journal of Geriatric Psychiatry, 14, 165-181.
Metadata
- Authors
- Castora-Binkley, M., Noelker, L. S., Ejaz, F. K., & Rose, M.
- Affiliations
- Benjamin Rose Institute on Aging (US)
- Venue
- Journal of Aging & Social Policy
- Publisher
- Informa UK Limited
- Published
- 2010-12-30
- Volume
- 23
- Issue
- 1
- Pages
- 19-33
- ISSN
- 0895-9420 (ISSN-L)
- 1545-0821
- OpenAlex
- W1980299265
- Cited by
- 23
- References
- 19
- Citations by year
- 2026: 2 · 2025: 3 · 2024: 1 · 2021: 1 · 2020: 3 · 2019: 4 · 2017: 1 · 2016: 1 · 2015: 3 · 2012: 3
- FWCI
- 2.95
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Locations
- Journal of Aging & Social Policy (publishedVersion)
- PubMed (publishedVersion)
- Funders
- U.S. Department of Health and Human Services
- U.S. Administration on Aging
- Topics
- Health Sciences › Nursing › Research and Theory › Nursing care and research
- Social Sciences › Life-span and Life-course Studies › Aging, Elder Care, and Social Issues
- Health Sciences › Medicine › Geriatrics and Gerontology › Geriatric Care and Nursing Homes
- Keywords
- informal caregivers, caregiver support services, home and community-based services, Medicaid waivers, consumer-directed services, program eligibility
- MeSH terms
- Aged, Aged, 80 and over, Attitude to Health, Health Services for the Aged, Home Nursing, Humans, Quality of Life, Social Support, State Health Plans, United States, Frail Elderly, Caregivers, Outcome Assessment, Health Care, Organizational Case Studies
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- Castora-Binkley, M., Noelker, L. S., Ejaz, F. K., & Rose, M. (2010). Inclusion of Caregiver Supports and Services in Home- and Community-Based Service Programs: Recent Reports from State Units on Aging. Journal of Aging & Social Policy. https://doi.org/10.1080/08959420.2011.532001
