Family carers’ views of services for people with learning disabilities from Black and minority ethnic groups: a qualitative study of 30 families in a south London borough

Hubert, Jane

doi:10.1080/09687590600617451

Cited by 47Family and Disability Support ResearchFamily Caregiving in Mental IllnessDisability Rights and Representation

Family carers’ views of services for people with learning disabilities from Black and minority ethnic groups: a qualitative study of 30 families in a south London borough

Hubert, Jane·2006·Disability & Society

DOI 10.1080/09687590600617451

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Abstract

In 2001, the UK Government identified the widespread neglect of the needs of people with learning disabilities from Black and minority ethnic communities. In this qualitative study informal interviews were held with 30 family carers of adults with learning disabilities from Black and minority ethnic communities. Their views were sought regarding services received and services needed, and cultural or communication barriers faced in accessing appropriate services. The study showed that although carers were largely satisfied with services actually received, service provision was highly inadequate and ineffective. Even very elderly and ill carers and those caring for people with severe disabilities received little support. Social worker support was negligible, and future planning rare. It is clear that the needs of carers from Black and minority ethnic communities are not being met. The situation would be considerably eased by adequate social worker support. Stereotypes of supportive family networks, (especially regarding south Asian families) proved to be unfounded.

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Authors: Hubert, J.
Affiliations: St George's, University of London (GB)
Corresponding author: Hubert, Jane
Venue: Disability & Society
Publisher: Informa UK Limited
Published: 2006-05
Volume: 21
Issue: 3
Pages: 259-272
ISSN: 0267-4645 (ISSN-L)
0968-7599
1360-0508
DOI: 10.1080/09687590600617451
OpenAlex: W1991178623
Cited by: 47
References: 12
Citations by year: 2026: 1 · 2025: 2 · 2024: 6 · 2023: 1 · 2022: 2 · 2021: 4 · 2020: 4 · 2019: 1 · 2018: 4 · 2017: 1 · 2016: 4 · 2015: 1 · 2014: 2 · 2013: 3 · 2012: 1
FWCI: 0.74
Type: journal article
Language: en
Open access: closed
Locations: Disability & Society (publishedVersion)
Topics: Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
Social Sciences › Psychology › Clinical Psychology › Family Caregiving in Mental Illness
Social Sciences › Safety Research › Disability Rights and Representation
Keywords: family caregivers, learning disabilities, Black and minority ethnic communities, carer support services, social worker support, South Asian families, service needs, future planning

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Family carers’ views of services for people with learning disabilities from Black and minority ethnic groups: a qualitative study of 30 families in a south London borough

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