Disability activisms: social model stalwarts and biological citizens
Abstract
The Disabled People’s Movement (DPM) in the UK rejects the view that disability is an illness. For the DPM it is the social processes of discrimination and oppression that create the material circumstances out of which solidarity and politicisation arise. The DPM has also been shy about impairment, arguing that it is generally irrelevant to the issue of disability and that a clear distinction between impairment and disability is necessary if disability is to be understood as a basis for identity politics. The biological citizens that support embodied health movements use impairment, genetic status, biomedical diagnosis and classification as calling cards that signal their claims to identity. Whilst the DPM has challenged medical hegemony and scientific ideas, many ‘biosocial’ groups embrace the specialised medical and scientific knowledge associated with their ‘condition’, particularly where it might be used to enhance their claims to citizenship. This paper argues that disability activism in the UK is bifurcating. It addresses the difference in perspective and action between the ‘social model stalwarts’ of the DPM and biological citizens that organise politically around particular diagnostic labels.
Integrity signals
Registry
Cites
Statistics
Claims the paper makes
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
Disability is typically a distressing experience, accompanied by stigmatization that often leads to socio-economic disparities and social exclusion.
“First, disability is a typically distressing experience, accompanied by stigmatization that often leads to socio-economic disparities and social exclusion [16].”
From The person in the disabled body: a perspective on culture and personhood from the margins (2016) · cites this paper as [16]
Cites
Oliver, M. (1990) · doi:10.1007/978-1-349-20895-1 · Cited by 4,227 · see citing works
Global assemblages: technology, politics, and ethics as anthropological problems
(2005) · Choice Reviews Online · doi:10.5860/choice.43-2283 · Cited by 2,037 · see citing works
Shakespeare, T. (2006) · Routledge eBooks · doi:10.4324/9780203640098 · Cited by 1,597 · see citing works
Rose, N. (2001) · Theory Culture & Society · doi:10.1177/02632760122052020 · Cited by 1,401 · see citing works
The social model of disability: An outdated ideology?
Shakespeare, T., & Watson, N. (2004) · Research in social science and disability · doi:10.1016/s1479-3547(01)80018-x · Cited by 1,166 · see citing works
Essays on the Anthropology of Reason
Rabinow, P. (1997) · Princeton University Press eBooks · doi:10.1515/9781400851799 · Cited by 1,108 · see citing works
Female Forms: Experiencing and Understanding Disability
Thomas, C. (1999) · Lancaster EPrints (Lancaster University) · Cited by 1,072 · see citing works
Shakespeare, T. (2007) · Scandinavian Journal of Disability Research · doi:10.1080/15017410701687543 · Cited by 1,058 · see citing works
The Social Model of Disability and the Disappearing Body: Towards a sociology of impairment
Hughes, B., & PATERSON, K. (1997) · Disability & Society · doi:10.1080/09687599727209 · Cited by 1,036 · see citing works
Self-citation(1955) · The Medical Journal of Australia · doi:10.5694/j.1326-5377.1955.tb38334.x · Cited by 891 · see citing works
Seidman, S., & Turner, B. S. (1986) · Contemporary Sociology A Journal of Reviews · doi:10.2307/2070113 · Cited by 755 · see citing works
Genetic risk and the birth of the somatic individual
Novas, C., & Rose, N. (2000) · Economy and Society · doi:10.1080/03085140050174750 · Cited by 747 · see citing works
Lash, S. M. (2002) · SAGE Publications Ltd eBooks · doi:10.4135/9781446217283 · Cited by 719 · see citing works
Biomedicalization: Technoscientific Transformations of Health, Illness, and U.S. Biomedicine
Clarke, A. E., Shim, J. K., Mamo, L., Fosket, J. R., & Fishman, J. R. (2003) · American Sociological Review · doi:10.1177/000312240306800201 · Cited by 560 · see citing works
Disability Politics: Understanding Our Past, Changing Our Future
Campbell, J., & OLIVER, M. J. (1996) · Cited by 554 · see citing works
The Body and Society : Explorations in Social Theory
Turner, B. (2008) · SAGE Publications Ltd eBooks · doi:10.4135/9781446214329 · Cited by 527 · see citing works
The Body in Culture, Technology and Society
Shilling, C. (2005) · SAGE Publications Ltd eBooks · doi:10.4135/9781446220818 · Cited by 441 · see citing works
Stem Cells, Tissue Cultures and the Production of Biovalue
Waldby, C. (2002) · Health An Interdisciplinary Journal for the Social Study of Health Illness and Medicine · doi:10.1177/136345930200600304 · Cited by 433 · see citing works
Social movements in health: an introduction
Brown, P., & Zavestoski, S. M. (2004) · Sociology of Health & Illness · doi:10.1111/j.0141-9889.2004.00413.x · Cited by 322 · see citing works
The rise and rise of complementary and alternative medicine: a sociological perspective
Coulter, I. D., & Willis, E. (2004) · The Medical Journal of Australia · doi:10.5694/j.1326-5377.2004.tb06099.x · Cited by 260 · see citing works
Is anybody there? Critical realism, chronic illness and the disability debate
Williams, S. J. (1999) · Sociology of Health & Illness · doi:10.1111/1467-9566.00184 · Cited by 251 · see citing works
Ikenberry, G. J., & Fukuyama, F. (2002) · Foreign Affairs · doi:10.2307/20033284 · Cited by 236 · see citing works
Biosocialities, Genetics and the Social Sciences
(2007) · Routledge eBooks · doi:10.4324/9780203945940 · Cited by 224 · see citing works
Molecular Biopolitics, Somatic Ethics and the Spirit of Biocapital
Rose, N. (2007) · Social Theory & Health · doi:10.1057/palgrave.sth.8700084 · Cited by 224 · see citing works
Biology and Social Science: Why the Return of the Repressed should be given a (Cautious) Welcome
Benton, T. (1991) · Sociology · doi:10.1177/0038038591025001002 · Cited by 204 · see citing works
Health consumer groups in the UK: a new social movement?
Allsop, J., Jones, K. L., & Baggott, R. (2004) · Sociology of Health & Illness · doi:10.1111/j.0141-9889.2004.00416.x · Cited by 193 · see citing works
Being disabled: towards a critical social ontology for disability studies
Hughes, B. (2007) · Disability & Society · doi:10.1080/09687590701659527 · Cited by 187 · see citing works
Self-citationImagenation: popular images of genetics
(1998) · Choice Reviews Online · doi:10.5860/choice.36-1554 · Cited by 184 · see citing works
Svedin, L. M., Luedtke, A., & Hall, T. E. (2010) · Palgrave Macmillan US eBooks · doi:10.1057/9780230109476_2 · Cited by 173 · see citing works
Disability and the Sociology of the Body
Turner, B. S. (2001) · Handbook of Disability Studies · doi:10.4135/9781412976251.n10 · Cited by 167 · cited 2× · see citing works
“Turner (2001, 2003) and Shakespeare and Watson (2002) have made the case that impairment is the destiny of each and every one of us.”
Backgroundvan Dijck, J. (1998) · Palgrave Macmillan UK eBooks · doi:10.1057/9780230372665 · Cited by 154 · see citing works
Illness behaviour: a selective review and synthesis
Young, J. T. (2004) · Sociology of Health & Illness · doi:10.1111/j.1467-9566.2004.00376.x · Cited by 152 · see citing works
(Inter)Dependence, Needs and Care
Watson, N., McKie, L. J., Hughes, B., Hopkins, D., & Gregory, S. (2004) · Sociology · doi:10.1177/0038038504040867 · Cited by 152 · see citing works
Self-citationDebating biology: sociological reflections on health, medicine and society
Williams, S., Birke, L. I. A., & Bendelow, G. (2003) · Cited by 134 · see citing works
Hess, D. J. (2004) · Sociology of Health & Illness · doi:10.1111/j.0141-9889.2004.00414.x · Cited by 124 · see citing works
Disability and Social Policy in Britain since 1750
Borsay, A. (2005) · doi:10.1007/978-1-137-18109-1 · Cited by 119 · see citing works
Complementary and Alternative Medicine: Challenge and Change
Verhoef, M. (2001) · Focus on Alternative and Complementary Therapies · doi:10.1111/j.2042-7166.2001.tb02956.x · Cited by 117 · see citing works
Genetic Politics: From Eugenics to Genome
Kerr, A., & Shakespeare, T. (2002) · DigitalGeorgetown (Georgetown University Library) · Cited by 116 · see citing works
Unit, H. E. (1986) · Social Science & Medicine · doi:10.1016/0277-9536(86)90060-2 · Cited by 104 · see citing works
Linton, S. S. (2005) · University of Michigan Press eBooks · doi:10.3998/mpub.164083 · Cited by 103 · see citing works
The body, culture and society: an introduction.
Chubb, C. (2001) · Family Practice · doi:10.1093/fampra/18.6.648 · Cited by 86 · see citing works
Hughes, B. (2002) · Disability & Society · doi:10.1080/09687590220148531 · Cited by 76 · see citing works
Self-citationMorimoto, K. (2000) · Nippon Eiseigaku Zasshi (Japanese Journal of Hygiene) · doi:10.1265/jjh.54.572 · Cited by 70 · see citing works
Genetic Fundamentalism or the Cult of the Gene
Breton, D. L. (2004) · Body & Society · doi:10.1177/1357034x04047853 · Cited by 64 · see citing works
Regenerating movements: embryonic stem cells and the politics of potentiality
Ganchoff, C. (2004) · Sociology of Health & Illness · doi:10.1111/j.0141-9889.2004.00417.x · Cited by 40 · see citing works
Modern medicine and the civilising process
Pinell, P. (1996) · Sociology of Health & Illness · doi:10.1111/1467-9566.ep10934402 · Cited by 30 · see citing works
Biology, vulnerability and politics
Turner, B. S. (2005) · doi:10.4324/9780203987681-26 · Cited by 25 · see citing works
Genetics and prevention: a policy in the making
Svendsen, M. N., & Koch, L. (2006) · New Genetics and Society · doi:10.1080/14636770600603485 · Cited by 19 · see citing works
Flagged first, then by citations
Cited by
Sorted by citations
The person in the disabled body: a perspective on culture and personhood from the margins
Agmon, M., Sa’ar, A., & Araten-Bergman, T. (2016) · International Journal for Equity in Health · doi:10.1186/s12939-016-0437-2 · Cited by 49 · see citing works
“First, disability is a typically distressing experience, accompanied by stigmatization that often leads to socioeconomic disparities and social exclusion [16].”
BackgroundGendron, M., Mesquita, B., & Barrett, L. F. (2020) · Culture, Mind, and Brain · doi:10.1017/9781108695374.010 · Cited by 20 · see citing works
- Authors
- Hughes, B.
- Affiliations
- Glasgow Caledonian University (GB)
- Corresponding author
- Hughes, Bill
- Venue
- Disability & Society
- Publisher
- Informa UK Limited
- Published
- 2009-09-22
- Volume
- 24
- Issue
- 6
- Pages
- 677-688
- ISSN
- 0267-4645 (ISSN-L)
- 0968-7599
- 1360-0508
- OpenAlex
- W2096029746
- Cited by
- 140
- References
- 48
- Citations by year
- 2026: 2 · 2025: 9 · 2024: 2 · 2023: 7 · 2022: 9 · 2021: 5 · 2020: 34 · 2019: 10 · 2018: 4 · 2017: 10 · 2016: 10 · 2015: 7 · 2014: 8 · 2013: 7 · 2012: 5
- FWCI
- 14.00
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Disability & Society (publishedVersion)
- ResearchOnline (acceptedVersion)
- ResearchOnline (Glasgow Caledonian University) (submittedVersion)
- Topics
- Social Sciences › Safety Research › Disability Rights and Representation
- Social Sciences › Sociology and Political Science › Inclusion and Disability in Education and Sport
- Health Sciences › Health Professions › General Health Professions › Mental Health and Patient Involvement
- Keywords
- disability activism, social model of disability, biological citizenship, disability rights movement, impairment, diagnosis, genetic status, identity politics, medical hegemony
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review