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Cited by 99Dementia and Cognitive Impairment ResearchGeriatric Care and Nursing HomesPsychiatric care and mental health services

Younger people in dementia care: A review of service needs, service provision and models of good practice

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Beattie, A. M., Daker-White, G., Gilliard, J., Means, R.·2002·Aging & Mental Health
DOI 10.1080/13607860220142396
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Abstract

This paper reviews the literature on younger people (under 65 years of age) with dementia, in dementia care. Seventy-four relevant papers were identified by use of a search strategy derived from the methodology of systematic reviews, the majority of which originated in the UK (69, 93.2%). The need for specialist, flexible, age-appropriate, and dedicated services was a central theme in the literature. A person-centred approach was advocated within an individual or 'tailor made' model of care. However, the available evidence suggests that this model of good practice is not currently reflected in the majority of services provided in the United Kingdom. Overall, the literature argues that the needs of younger people with dementia are best served by inter-agency collaboration, early assessment, and an awareness of individual needs. Clearly, these proposals could usefully serve anybody with dementia, irrespective of age. However, aside from a few prevalence studies, and some exploratory work with small numbers of service users, little in the way of empirical work is available. The recommendations that have been made regarding dementia services for younger people are based largely on the practical experience of professionals and paid carers, rather than scientific evidence.

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  • Some of the support interventions required by family caregivers of persons with dementia are generic, including support at diagnostic disclosure, help managing changes, learning to assume the caregiver role, and juggling other responsibilities.

    “As suggested in the literature, 30 some of the support interventions required by family caregivers of persons with dementia are generic.These include support at the time of diagnostic disclosure, help managing changes, learning to assume the caregiver role, and juggling other responsibilities.”

    From The Unique Experience of Spouses in Early-Onset Dementia (2013) · cites this paper as [30]

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Authors
Beattie, A. M., Daker-White, G., Gilliard, J., & Means, R.
Affiliations
  • University of the West of England (GB)
  • Blackberry Hill Hospital (GB)
Venue
Aging & Mental Health
Publisher
Informa UK Limited
Published
2002-08
Volume
6
Issue
3
Pages
205-212
ISSN
  • 1360-7863 (ISSN-L)
  • 1364-6915
DOI
10.1080/13607860220142396
OpenAlex
W2049540822
Cited by
99
References
28
Citations by year
2026: 2 · 2025: 3 · 2024: 1 · 2022: 3 · 2021: 3 · 2020: 3 · 2019: 2 · 2018: 4 · 2017: 7 · 2016: 6 · 2015: 8 · 2014: 10 · 2013: 8 · 2012: 6
FWCI
0.38
Type
journal article
Language
en
Open access
Licence
cc-by
Locations
  • Aging & Mental Health (publishedVersion)
  • PubMed (publishedVersion)
  • Research Explorer (The University of Manchester) (publishedVersion)
  • UWE Research Repository (UWE Bristol) (submittedVersion, cc-by)
Funders
University of Stirling
Topics
  • Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
  • Health Sciences › Health Professions › General Health Professions › Geriatric Care and Nursing Homes
  • Social Sciences › Psychology › Clinical Psychology › Psychiatric care and mental health services
Keywords
dementia services, service needs, person-centred care, inter-agency cooperation, initial assessment, service delivery, caregivers
MeSH terms
Adult, Aged, Dementia, Forecasting, United Kingdom, Health Services Needs and Demand, Humans, Middle Aged, Patient Care Team, State Medicine, Benchmarking

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