Cited by 248Dementia and Cognitive Impairment ResearchGrief, Bereavement, and Mental HealthPalliative Care and End-of-Life Issues

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Making sense of dementia and adjusting to loss: Psychological reactions to a diagnosis of dementia in couples

Robinson, L., Clare, L., Evans, K.·2005·Aging & Mental Health

DOI 10.1080/13607860500114555

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Abstract

The current emphasis on early detection and disclosure of a diagnosis of dementia highlights the need to examine couples' shared constructions of, and responses to, the diagnosis, and to explore the appraisals that couples make about the illness at an early stage. While the experiences of carers and of people with dementia have mostly been considered separately, further investigation of the shared experience of couples where one partner is developing dementia is required. This study adopted a family systems perspective to investigate psychological reactions to a diagnosis of dementia in nine couples where one partner had received a diagnosis of either Alzheimer's disease or vascular dementia, with particular emphasis on the possible relevance of psychological responses to loss. Interpretative phenomenological analysis was used to explore participants' experiences of receiving a diagnosis of dementia, which were compared and contrasted across couples. Ten themes were subsumed under two higher-order themes, 'Not quite the same person, tell me what actually is wrong' and 'Everything's changed, we have to go from there', and linked through the overarching theme of 'Making sense and adjusting to loss'. A model is presented that encapsulates the oscillating processes couples appeared to go through in making sense of the experience of early-stage dementia and adjusting to the losses and difficulties evoked by the illness, which appeared to be similar to the process of adjustment outlined in dual-process models of grief. The findings suggest that couples who receive a diagnosis of dementia may be supported by helping them to create a joint construction that enables them to make sense of their situation, find ways of adjusting to the changes experienced in their roles and identity, and manage the losses they face in the early stages of dementia.

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“Mini-mental state”
Folstein, M. F., Folstein, S. E., & McHugh, P. R. (1975) · Journal of Psychiatric Research · doi:10.1016/0022-3956(75)90026-6 · Cited by 88,282
Journal of Clinical Psychiatry
(2018) · Journal of Clinical Psychiatry · doi:10.5505/kpd · Cited by 13,703
On death and dying.
Kübler-Ross, E. (1975) · PubMed · Cited by 4,935
9 Dementia reconsidered: the person comes first
Kitwood, T. M. (2011) · Policy Press eBooks · doi:10.56687/9781447300458-013 · Cited by 3,085
Beyond the divide between cognition and discourse: Using interpretative phenomenological analysis in health psychology
Smith, J. A. (1996) · Psychology & Health · doi:10.1080/08870449608400256 · Cited by 2,380
Dilemmas in qualitative health research
Yardley, L. (2000) · Psychology & Health · doi:10.1080/08870440008400302 · Cited by 2,310
Doing Interpretative Phenomenological Analysis
Smith, J., Jarman, M., & Osborn, M. (1999) · SAGE Publications Ltd eBooks · doi:10.4135/9781446217870.n14 · Cited by 1,904
Psychiatric and Physical Morbidity Effects of Dementia Caregiving: Prevalence, Correlates, and Causes
Schulz, R., O'Brien, A. T., Bookwala, J., & Fleissner, K. (1995) · The Gerontologist · doi:10.1093/geront/35.6.771 · Cited by 1,765
Clock-drawing: is it the ideal cognitive screening test?
Shulman, K. I. (2000) · International Journal of Geriatric Psychiatry · doi:10.1002/1099-1166(200006)15:6 · Cited by 1,354
National Service Framework for Older People
Baldwin, R. (2003) · Psychiatric Bulletin · doi:10.1192/s0955603600001781 · Cited by 1,035

Show all 61 references

Research works printed but not linked: 16

Aneshensel CS, 1995, Profiles of caregiving: The unexpected carer
Bahro M, 1995, Journal of American Geriatric Society, 93, 291
Brough BS, 1998, Alzheimer's in Love. Lismore
Clarke CL, 2002, The perspective of people with dementia: Research methods and motivations
Dempsey M, 1998, American Journal of Alzheimer's Disease, March/April, 84
Fearnley K, 1997, The right to know? Sharing the diagnosis of dementia
Harvey JH, 1998, Perspectives on loss: A sourcebook, Brunner/Mazel
Keady J, 1995, Journal of Dementia Care, 13, 15
McKillop J, 2002, The perspective of people with dementia: Research methods and motivations
Miller ED, 1998, Perspectives on loss: A sourcebook, Brunner/Mazel
Pratt R, 2001, Tell me the truth: The experience of being told the diagnosis of dementia from the perspective of the person with dementia, Mental Health Foundation
Smith JA, 1999, Qualitative health psychology: Theories & methods
Stroebe M, 1995, The dual process model of coping with loss, Paper presented at the International Work Group on Death, Dying and Bereavement, St. Catherine's College
Stroebe M, 1998, Perspectives on loss: A sourcebook, Brunner/Mazel
Tatelbaum J, 1984, The courage to grieve
West L, 2003, Early stage dementia: Reassurance for sufferers and carers

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Authors: Robinson, L., Clare, L., & Evans, K.
Affiliations: Bangor University (GB)
Oxford Health NHS Foundation Trust (GB)
Corresponding author: Clare, L.
ORCID: Robinson, L.
Clare, L.
Venue: Aging & Mental Health
Publisher: Informa UK Limited
Published: 2005-07
Volume: 9
Issue: 4
Pages: 337-347
ISSN: 1360-7863 (ISSN-L)
1364-6915
DOI: 10.1080/13607860500114555
OpenAlex: W2116506954
Cited by: 247
References: 61
Citations by year: 2026: 5 · 2025: 7 · 2024: 8 · 2023: 11 · 2022: 11 · 2021: 10 · 2020: 10 · 2019: 13 · 2018: 15 · 2017: 18 · 2016: 16 · 2015: 15 · 2014: 17 · 2013: 17 · 2012: 20
FWCI: 5.01
Type: journal article
Language: en
Open access: closed
Locations: Aging & Mental Health (publishedVersion)
PubMed (publishedVersion)
Topics: Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
Social Sciences › Psychology › Clinical Psychology › Grief, Bereavement, and Mental Health
Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
Keywords: dementia diagnosis, couples, Alzheimer's disease, vascular dementia, early-stage dementia, family systems approach, caregivers, diagnosis disclosure
MeSH terms: Adaptation, Psychological, Aged, Aged, 80 and over, Dementia, Family Relations, Female, Humans, Life Change Events, Male, Prognosis, Self Concept, Truth Disclosure, Caregivers

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Making sense of dementia and adjusting to loss: Psychological reactions to a diagnosis of dementia in couples

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