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Is designing therapeutic? A case study exploring the experience of co-design and psychosis.
Open accessAbstract
Background A co-design project, consisting of individual and collective design activities, was organized with clients of a mental health service, in order to explore its potential to support people with psychosis. The group met for approximately two hours, weekly, for six months, participating in design activities and collectively deciding on the project purpose and outcome – a boardgame.Methods The experience of one group participant (Anthony) is explored, selected as the first case study within an Interpretative Phenomenological Analytical (IPA) framework. Following IPA’s ideographic focus, Anthony’s case was purposefully selected, as it portrayed a detailed picture, informing theoretical reflection on designing as therapeutic. The paper includes Anthony’s first-hand account, combined with an analysis of data from three semi-structured interviews, photographic evidence and a reflective diary kept by the lead researcher.Results Results suggest that, for Anthony, design activity: a) helps developing a sense of agency b) is experienced as grounding in reality c) contributes to the development of inter-personal relationships, and d) has a different sense of rhythm than artistic practice.Discussion These results are contextualized within literature on the lived experience of psychosis and suggest that designing can be beneficial for people with psychosis, providing the backdrop for further research and practice.
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“Collaborative care planning approaches, such as codesign and coproduction, have thereby become increasingly important in mental health intervention design and delivery, and have been shown to improve service quality (44–47).”
From Developing a mechanism-based therapy for acute psychiatric inpatients with psychotic symptoms: an Intervention Mapping approach (2023) · cites this paper as [47]
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Citations
Cites
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“As (Smith et al., 2009) describe, ideography, one of IPAs tenets, is an argument for a focus on the particular, which leads to a re-evaluation of the importance of the single case study.”
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BackgroundCreativity in the design process: co-evolution of problem–solution
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Generative Tools for Co-designing
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On the Brink of Genuinely Collaborative Care: Experience-Based Co-Design in Mental Health
Larkin, M., Boden, Z. V. R., & Newton, E. (2015) · Qualitative Health Research · doi:10.1177/1049732315576494 · Cited by 158 · cited 1×
“…and wellbeing (see, Petermans & Cain, 2020) and within mental health (e.g Amiri, Wagenfeld & Reynolds, 2017; Cooper et al., 2016; Craig, 2017; Larkin et al., 2015; Mulvale et al., 2016; Ospina-Pinillos et al., 2019; Tsekleves, 2020; Warwick et al., 2018), the potential of design activity per…”
BackgroundOspina‐Pinillos, L., Davenport, T. A., Diaz, A. M., Navarro-Mancilla, Á. A., Scott, E. M., & Hickie, I. B. (2019) · Journal of Medical Internet Research · doi:10.2196/14127 · Cited by 112 · cited 2×
“…2020) and within mental health (e.g Amiri, Wagenfeld & Reynolds, 2017; Cooper et al., 2016; Craig, 2017; Larkin et al., 2015; Mulvale et al., 2016; Ospina-Pinillos et al., 2019; Tsekleves, 2020; Warwick et al., 2018), the potential of design activity per se to support mental health remains…”
BackgroundMethodMulvale, A., Miatello, A., Hackett, C., & Mulvale, G. M. (2016) · Patient Experience Journal · doi:10.35680/2372-0247.1104 · Cited by 97 · cited 1×
“…Petermans & Cain, 2020) and within mental health (e.g Amiri, Wagenfeld & Reynolds, 2017; Cooper et al., 2016; Craig, 2017; Larkin et al., 2015; Mulvale et al., 2016; Ospina-Pinillos et al., 2019; Tsekleves, 2020; Warwick et al., 2018), the potential of design activity per se to support mental…”
BackgroundDesign thinking, fast and slow: A framework for Kahneman’s dual-system theory in design
Kannengiesser, U., & Gero, J. S. (2019) · Design Science · doi:10.1017/dsj.2019.9 · Cited by 97 · cited 1×
“This resonates with recent research by Kannengiesser and Gero (2019) who present an ontological model of fast and slow design thinking based on Daniel Kahneman’s model of human cognition which incorporates a fast and intuitive thinking system and a slow and tedious one.”
MethodJournal of Applied Youth Studies
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“In schizophrenia, the loss of the vital, embodied contact with reality may be expressed in complaints about a certain opacity of consciousness, like feeling in a fog, or a general existential feeling of being alien to the world (Fuchs & Röhricht, 2017).”
BackgroundParticipatory design of an online therapy for youth mental health
Wadley, G., Lederman, R., Gleeson, J., & Álvarez‐Jiménez, M. (2013) · Australian Conference on Computer-Human Interaction (OzCHI) · doi:10.1145/2541016.2541030 · Cited by 70 · cited 1×
“Non-pharmacological interventions, such as art or occupational therapies, are well known, however design-oriented approaches are scarce (Blake et al., 2016; Glazzard et al., 2015; Kaasgaard & Lauritsen, 1997; Kettley et al., 2016; Mužina, 2020; Nakarada-Kordic et al., 2017; Wadley et al., 2013).”
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Nakarada‐Kordic, I., Hayes, N., Reay, S., Corbet, C., & Chan, A. H. Y. (2017) · Design for Health · doi:10.1080/24735132.2017.1386954 · Cited by 44 · cited 2×
“Non-pharmacological interventions, such as art or occupational therapies, are well known, however design-oriented approaches are scarce (Blake et al., 2016; Glazzard et al., 2015; Kaasgaard & Lauritsen, 1997; Kettley et al., 2016; Mužina, 2020; Nakarada-Kordic et al., 2017; Wadley et al., 2013).”
BackgroundMethodExperience-based co-design in an adult psychological therapies service
Cooper, K., Gillmore, C., & Hogg, L. I. (2015) · Journal of Mental Health · doi:10.3109/09638237.2015.1101423 · Cited by 38 · cited 1×
“…using design in the context of health and wellbeing (see, Petermans & Cain, 2020) and within mental health (e.g Amiri, Wagenfeld & Reynolds, 2017; Cooper et al., 2016; Craig, 2017; Larkin et al., 2015; Mulvale et al., 2016; Ospina-Pinillos et al., 2019; Tsekleves, 2020; Warwick et al., 2018),…”
MethodLynch, S. B., Holttum, S., & Huet, V. (2018) · International Journal of Art Therapy · doi:10.1080/17454832.2018.1475498 · Cited by 26 · cited 1×
“Although he emphasizes on the differences between designing and art, some of his experiences, such as that of relating unselfconsciously with others, align with conclusions made by Lynch et al. (2019), who suggest art therapy may act like a buffer, giving autonomy over communicating.”
ResultPetermans, A., & Cain, R. L. (2019) · Routledge eBooks · doi:10.4324/9781315121383 · Cited by 25
The Psychopathology of Hyperreflexivity
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User wellbeing: an entry point for collaboration between occupational therapy and design
Amiri, T., Wagenfeld, A., & Reynolds, L. (2017) · Design for Health · doi:10.1080/24735132.2017.1386367 · Cited by 13 · cited 2×
“Despite a fast-growing interest in using design in the context of health and wellbeing (see, Petermans & Cain, 2020) and within mental health (e.g Amiri, Wagenfeld & Reynolds, 2017; Cooper et al., 2016; Craig, 2017; Larkin et al., 2015; Mulvale et al., 2016; Ospina-Pinillos et al., 2019; Tsekleves, 2020; Warwick et al…”
MethodWarwick, L., Tinning, A., Smith, N., & Young, R. (2018) · Proceedings of DRS · doi:10.21606/drs.2018.405 · Cited by 6 · cited 1×
“…and within mental health (e.g Amiri, Wagenfeld & Reynolds, 2017; Cooper et al., 2016; Craig, 2017; Larkin et al., 2015; Mulvale et al., 2016; Ospina-Pinillos et al., 2019; Tsekleves, 2020; Warwick et al., 2018), the potential of design activity per se to support mental health remains unexplored.”
BackgroundTangibility in e-textile participatory service design with mental health participants
Kettley, S., Sadkowska, A., & Lucas, R. (2016) · Proceedings of DRS · doi:10.21606/drs.2016.488 · Cited by 5 · cited 2×
“Non-pharmacological interventions, such as art or occupational therapies, are well known, however design-oriented approaches are scarce (Blake et al., 2016; Glazzard et al., 2015; Kaasgaard & Lauritsen, 1997; Kettley et al., 2016; Mužina, 2020; Nakarada-Kordic et al., 2017; Wadley et al., 2013).”
BackgroundMethodParticipatory design at a psychiatric daycenter: potentials and problems.
Kaasgaard, K., & Lauritsen, P. (1997) · PubMed · Cited by 3
Navigating unchartered territory
Craig, C. (2017) · Design for Health · doi:10.1080/24735132.2017.1387002 · Cited by 2 · cited 1×
“…context of health and wellbeing (see, Petermans & Cain, 2020) and within mental health (e.g Amiri, Wagenfeld & Reynolds, 2017; Cooper et al., 2016; Craig, 2017; Larkin et al., 2015; Mulvale et al., 2016; Ospina-Pinillos et al., 2019; Tsekleves, 2020; Warwick et al., 2018), the potential of design…”
Background
Research works printed but not linked: 6
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Cited by
Sorted by citations
Veldmeijer, L., Terlouw, G., van Os, J., Dijk, O. V., Veer, J. V. ‘., & Boonstra, N. (2023) · JMIR Mental Health · doi:10.2196/46590 · Cited by 89
“A total of 18 (55%) studies of the 33 s tudies included adul t par t ic ipants [43-47,49-51,54,55,58,60-65,71,72], 6 (18%) studies described their participants as young people [6,52,53,56,59,70], 3 (9%) studies described their participants as adolescents [45,68,73], and 6 (18%) did not specify the age group of their p…”
BackgroundMethodInfluentialCo-creation experiences among adults in diverse contexts: A Health CASCADE scoping review
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Design for mental health: can design promote human-centred diagnostics?
Veldmeijer, L., Terlouw, G., Veer, J. V. ‘., van Os, J., & Boonstra, N. (2023) · Design for Health · doi:10.1080/24735132.2023.2171223 · Cited by 11
“For example, studies show that design activity could be therapeutic for some people with psychosis (Illarregi et al. 2022) and can help draw out their unique experiences and perspectives (Nakarada-Kordic et al. 2017).”
BackgroundVeldmeijer, L., Terlouw, G., Veer, J. V. ‘., van Os, J., & Boonstra, N. (2025) · Journal of Participatory Medicine · doi:10.2196/80184 · Cited by 6
“…a virtual reality intervention for people with psychosis [48], while others, much like the IPA study, emphasized that people with lived experience can be strong collaborators in a design process [49] and sometimes even touched upon the therapeutic potential of the activity of designing itself [50].”
Gussmann, E., Lucae, S., Falkai, P., Padberg, F., Egli, S., & Kopf-Beck, J. (2023) · Frontiers in Psychiatry · doi:10.3389/fpsyt.2023.1160075 · Cited by 2
Metadata
- Authors
- Illarregi, E. R., Alexiou, K., DiMalta, G., & Zamenopoulos, T.
- Affiliations
- The Open University (GB)
- Faculty of Arts & Social Sciences, The Open University, Milton Keynes, UK
- Corresponding author
- Illarregi, Erika Renedo
- Venue
- Psychosis
- Publisher
- Informa UK Limited
- Published
- 2022-04-27
- Volume
- 15
- Issue
- 3
- Pages
- 277-291
- ISSN
- 1752-2439 (ISSN-L)
- 1752-2447
- OpenAlex
- W4224989451
- Cited by
- 8
- References
- 27
- Citations by year
- 2025: 2 · 2024: 1 · 2023: 5
- FWCI
- 14.09
- Type
- journal article
- Language
- en
- Open access
- hybrid
- doi.org
- Licence
- Locations
- Psychosis (publishedVersion, cc-by)
- Open Research Online (The Open University) (submittedVersion)
- RePEc: Research Papers in Economics (submittedVersion)
- Funders
- Arts and Humanities Research Council (AH/L503770/1)
- Topics
- Social Sciences › Psychology › Clinical Psychology › Art Therapy and Mental Health
- Health Sciences › Health Professions › General Health Professions › Mental Health and Patient Involvement
- Social Sciences › Sociology and Political Science › Participatory Visual Research Methods
- Keywords
- co-design, lived experience of psychosis, board games, sense of agency, interpersonal relationships, mental health service users
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