Cited by 40Palliative Care and End-of-Life IssuesPalliative and Oncologic CareEthics and bioethics in healthcare

Involvement of the Dutch general population in advance care planning: a cross-sectional survey

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Raijmakers, Natasja J. H., Rietjens, Judith A.C., Kouwenhoven, Pauline S.C., Vezzoni, Cristiano, van Thiel, Ghislaine J.M.W., van Delden, Johannes J.M., van der Heide, Agnes·2013·Journal of Palliative Medicine

Abstract

BACKGROUND AND OBJECTIVE: Advance care planning (ACP) is a process of communication among patients, health care providers, and relatives regarding end-of-life care. The aim of our study was to determine if a representative sample of the Dutch general public is currently involved or is inclined to be engaged in ACP, and to delineate the factors associated with greater engagement. METHODS: An online questionnaire was completed by a representative sample of the Dutch general public, derived from an established Internet panel (CentERdata, University of Tilburg, The Netherlands). RESULTS AND CONCLUSIONS: Although the majority of the Dutch population seems open to discussions about end-of-life care, our study revealed that discussions with physicians are exceedingly rare. To improve ACP as a joint process among patients, relatives, and physicians, the general public's awareness of the importance of end-of-life discussions with their physicians needs to be increased and physicians need to play a more active role by initiating conversations and dialogue regarding end-of-life care.

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Crossref · 10.1089/jpm.2012.0555

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  • Only a minority of advance euthanasia directives involved physicians at the preparation stage, consistent with other Dutch data.

    “This may reflect the fact that only a minority of advance euthanasia directives involved physicians at the preparation stage, consistent with other Dutch data on physician involvement in advance euthanasia directive preparation.(35)”

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Authors
Raijmakers, N. J. H., Rietjens, J. A. C., Kouwenhoven, P. S. C., Vezzoni, C., van Thiel, G. J. M. W., van Delden, J. J. M., & van der Heide, A.
Affiliations
  • Erasmus MC (NL)
  • University Medical Center Utrecht (NL)
  • University Medical Center Groningen (NL)
  • Julius Center, University Medical Center Utrecht, the Netherlands.
  • Department of Public Health, Erasmus MC, University Medical Center Rotterdam, the Netherlands.
Corresponding author
Raijmakers, Natasja J. H.
Venue
Journal of Palliative Medicine
Published
2013-09
Volume
16
Issue
9
Pages
1055-1061
ISSN
  • 1096-6218 (ISSN-L)
  • 1557-7740
OpenAlex
W2161776134
Cited by
40
References
45
Citations by year
2026: 3 · 2024: 3 · 2023: 1 · 2022: 5 · 2021: 7 · 2020: 3 · 2019: 4 · 2018: 6 · 2017: 1 · 2016: 2 · 2015: 4 · 2014: 1
FWCI
2.38
Type
journal article
Language
en
Open access
Locations
  • Journal of Palliative Medicine (publishedVersion)
  • PubMed (publishedVersion)
  • EUR Research Repository (Erasmus University Rotterdam) (publishedVersion)
  • EUR Research Repository (Erasmus University Rotterdam) (submittedVersion)
  • Data Archiving and Networked Services (DANS) (submittedVersion, other-oa)
  • Institutional Research Information System (Università degli Studi di Trento) (submittedVersion)
  • University of Groningen research database (University of Groningen / Centre for Information Technology) (submittedVersion, other-oa)
Topics
  • Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
  • Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative and Oncologic Care
  • Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Ethics and bioethics in healthcare
Keywords
advance care planning, end-of-life care, public awareness, physician-patient communication, public attitudes, patient engagement, relatives, Dutch population
MeSH terms
Adolescent, Adult, Aged, Aged, 80 and over, Cross-Sectional Studies, Decision Making, Female, Humans, Male, Middle Aged, Netherlands, Patient Participation, Physician-Patient Relations, Physician's Role, Surveys and Questionnaires, Advance Care Planning

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