Involvement of the Dutch general population in advance care planning: a cross-sectional survey
Open accessAbstract
BACKGROUND AND OBJECTIVE: Advance care planning (ACP) is a process of communication among patients, health care providers, and relatives regarding end-of-life care. The aim of our study was to determine if a representative sample of the Dutch general public is currently involved or is inclined to be engaged in ACP, and to delineate the factors associated with greater engagement. METHODS: An online questionnaire was completed by a representative sample of the Dutch general public, derived from an established Internet panel (CentERdata, University of Tilburg, The Netherlands). RESULTS AND CONCLUSIONS: Although the majority of the Dutch population seems open to discussions about end-of-life care, our study revealed that discussions with physicians are exceedingly rare. To improve ACP as a joint process among patients, relatives, and physicians, the general public's awareness of the importance of end-of-life discussions with their physicians needs to be increased and physicians need to play a more active role by initiating conversations and dialogue regarding end-of-life care.
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Only a minority of advance euthanasia directives involved physicians at the preparation stage, consistent with other Dutch data.
“This may reflect the fact that only a minority of advance euthanasia directives involved physicians at the preparation stage, consistent with other Dutch data on physician involvement in advance euthanasia directive preparation.(35)”
From Euthanasia and Assisted Suicide of Persons With Dementia in the Netherlands (2020) · cites this paper as [35]
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- Authors
- Raijmakers, N. J. H., Rietjens, J. A. C., Kouwenhoven, P. S. C., Vezzoni, C., van Thiel, G. J. M. W., van Delden, J. J. M., & van der Heide, A.
- Affiliations
- Erasmus MC (NL)
- University Medical Center Utrecht (NL)
- University Medical Center Groningen (NL)
- Julius Center, University Medical Center Utrecht, the Netherlands.
- Department of Public Health, Erasmus MC, University Medical Center Rotterdam, the Netherlands.
- Corresponding author
- Raijmakers, Natasja J. H.
- Venue
- Journal of Palliative Medicine
- Publisher
- SAGE Publications
- Published
- 2013-09
- Volume
- 16
- Issue
- 9
- Pages
- 1055-1061
- ISSN
- 1096-6218 (ISSN-L)
- 1557-7740
- OpenAlex
- W2161776134
- Cited by
- 40
- References
- 45
- Citations by year
- 2026: 3 · 2024: 3 · 2023: 1 · 2022: 5 · 2021: 7 · 2020: 3 · 2019: 4 · 2018: 6 · 2017: 1 · 2016: 2 · 2015: 4 · 2014: 1
- FWCI
- 2.38
- Type
- journal article
- Language
- en
- Open access
- green
- www.nivel.nl
- Locations
- Journal of Palliative Medicine (publishedVersion)
- PubMed (publishedVersion)
- EUR Research Repository (Erasmus University Rotterdam) (publishedVersion)
- EUR Research Repository (Erasmus University Rotterdam) (submittedVersion)
- Data Archiving and Networked Services (DANS) (submittedVersion, other-oa)
- Institutional Research Information System (Università degli Studi di Trento) (submittedVersion)
- University of Groningen research database (University of Groningen / Centre for Information Technology) (submittedVersion, other-oa)
- Topics
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative and Oncologic Care
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Ethics and bioethics in healthcare
- Keywords
- advance care planning, end-of-life care, public awareness, physician-patient communication, public attitudes, patient engagement, relatives, Dutch population
- MeSH terms
- Adolescent, Adult, Aged, Aged, 80 and over, Cross-Sectional Studies, Decision Making, Female, Humans, Male, Middle Aged, Netherlands, Patient Participation, Physician-Patient Relations, Physician's Role, Surveys and Questionnaires, Advance Care Planning
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
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