Projections of care for older people with dementia in England: 2015 to 2040
Open accessAbstract
Background: The number of older people with dementia and the cost of caring for them, already substantial, are expected to rise due to population ageing. Objective: This study makes projections of the number of older people with dementia receiving unpaid care or using care services and associated costs in England. Methods: The study drew on up-to-date information for England from multiple sources including data from the CFASII study, output from the PACSim dynamic microsimulation model, Office for National Statistics population projections and data from the MODEM cohort study. A simulation model was built to make the projections. Results: We project that the number of older people with dementia will more than double in the next 25 years. The number receiving unpaid or formal care is projected to rise by 124%, from 530,000 in 2015 to 1,183,000 in 2040. Total cost of dementia is projected to increase from £23.0 billion in 2015 to £80.1 billion in 2040, and average cost is projected to increase from £35,100 per person per year in 2015 to £58,900 per person per year in 2040. Total and average costs of social care are projected to increase much faster than those of healthcare and unpaid care. Conclusion: The numbers of people with dementia and associated costs of care will rise substantially in the coming decades, unless new treatments enable the progression of the condition to be prevented or slowed. Care and support for people with dementia and their family carers will need to be increased.
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Dementia is characterised by progressive cognitive impairment that impacts daily activity, and its UK prevalence is projected to increase to over 2 million by 2051.
“Dementia is characterised by progressive cognitive impairment that impacts daily activity, with prevalence in the UK projected to increase to over 2 million by 2051 [3, 4].”
From Do hospital-to-home transitions work for older adults with multiple long-term conditions including dementia? A realist review (2025) · cites this paper as [4]
The Introduction (page unavailable) reports a Dementia UK projection of over 2 million people with dementia in the UK by 2051, but specifies that it assumes age-specific prevalence remains stable. This paper's own projection concerns England through 2040, and the passages do not establish the sentence's characterization of dementia as progressive cognitive impairment affecting daily activity. (LLM, conf=0.86)
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- [2]Brookmeyer R, Johnson E, Ziegler-Graham K, Arrighi HM. Forecasting the global burden of Alzheimer’s disease. Alzheimers Dement 2007; 3: 186– 91. 19595937
- [3]Comas-Herrera A, Wittenberg R, Pickard L, Knapp M, MRC-CFAS. Cognitive impairment in older people: future demand for long-term care services and the associated costs. Int J Geriatr Psychiatry 2007; 22: 1037– 45. doi: 10.1002/gps.1830. 17603823 · DOI
- [5]Comas-Herrera A, Knapp M, Wittenberg R et al. MODEM: A comprehensive approach to modelling outcome and costs impacts of interventions for dementia. Protocol paper. BMC Health Serv Res 2017; 17: 25. 28077155 PMC5225619
- [6]Wittenberg R, Knapp M, Hu B et al. The costs of dementia in England. International Journal of Geriatric Psychiatry 2019; 34: 1095– 1103. 30950106 PMC6618309
- [8]Kingston A, Robinson L, Booth H, Knapp M, Jagger C, MODEM project. Projections of multi-morbidity in the older population in England to 2035: estimates from the population ageing and care simulation (PACSim) model. Age Ageing 2018; 47: 374– 80. doi: 10.1093/ageing/afx201. 29370339 PMC5920286 · DOI
- [12]Norton S, Matthews FE, Brayne C. A commentary on studies presenting projections of the future prevalence of dementia. BMC Public Health 2013; 13. doi: 10.1186/1471-2458-13-1. PMC3547813 23280303 · DOI · Paper page
- [13]Livingston G, Sommerlad A, Orgeta V et al. Dementia prevention, intervention, and care. The Lancet 2017; 390: 2673– 734. 28735855
Cited by
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Profyri, E., Leung, P., Huntley, J., & Orgeta, V. (2022) · Ageing Research Reviews · doi:10.1016/j.arr.2022.101758 · Cited by 30 · see citing works
Watson, J., Darlington-Pollock, F., Green, M., Giebel, C., & Akpan, A. (2021) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph182413405 · Cited by 21 · see citing works
Knapp, M., Lorenz‐Dant, K., Walbaum, M., Comas‐Herrera, A., Cyhlarova, E., Livingston, G., & Wittenberg, R. (2024) · International Journal of Geriatric Psychiatry · doi:10.1002/gps.6059 · Cited by 10 · see citing works
Self-citationLawson, L., Cooper, M., Tolley, C., Hand, A., & Nazar, H. (2025) · BMC Geriatrics · doi:10.1186/s12877-025-06123-0 · Cited by 10 · see citing works
- Authors
- Wittenberg, R., Hu, B., Jagger, C., Kingston, A., Knapp, M., Comas-Herrera, A., King, D., Rehill, A., & Banerjee, S.
- Affiliations
- London School of Economics and Political Science (GB)
- Newcastle University (GB)
- Care Policy and Evaluation Centre, London School of Economics and Political Science, London, UK
- University of Plymouth (GB)
- Corresponding author
- Wittenberg, Raphael
- ORCID
- Venue
- Age and Ageing
- Publisher
- Oxford University Press (OUP)
- Published
- 2019-12-06
- Volume
- 49
- Issue
- 2
- Pages
- 264-269
- ISSN
- 0002-0729 (ISSN-L)
- 1468-2834
- PMC
- PMC7047814
- OpenAlex
- W2985493281
- Cited by
- 149
- References
- 0
- Citations by year
- 2026: 20 · 2025: 30 · 2024: 35 · 2023: 24 · 2022: 18 · 2021: 15 · 2020: 6 · 2019: 1
- FWCI
- 7.97
- Type
- journal article
- Language
- en
- Open access
- hybrid
- doi.org
- Licence
- Locations
- Age and Ageing (publishedVersion, cc-by)
- PubMed Central (publishedVersion, cc-by)
- PubMed (publishedVersion)
- London School of Economics and Political Science Research Online (London School of Economics and Political Science) (submittedVersion)
- PEARL (University of Plymouth) (submittedVersion)
- PEARL (University of Plymouth) (submittedVersion, other-oa)
- London School of Economics and Political Science Theses Online (London School of Economics and Political Science) (submittedVersion)
- Newcastle University ePrints (Newcastle Univesity) (cc-by)
- Funders
- National Institute for Health Research (ES/L001896/1)
- Economic and Social Research Council
- Topics
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Social Sciences › Economics, Econometrics and Finance › Economics and Econometrics › Health Systems, Economic Evaluations, Quality of Life
- Health Sciences › Health Professions › General Health Professions › Geriatric Care and Nursing Homes
- Keywords
- dementia, older adults, population aging, unpaid care work, formal care services, social care costs, health care costs, family caregivers
- MeSH terms
- Aged, Aged, 80 and over, Dementia, England, Health Expenditures, Female, Forecasting, Humans, Male, Models, Statistical, Health Care Costs, Cost of Illness
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