The DOI matches its Crossref record; 59 of the 60 references it cites were found in a registry or an index.
Racial, Ethnic, and Cultural Differences in the Dementia Caregiving Experience
Abstract
PURPOSE: This research reviewed studies that compare two or more racial, ethnic, national, or cultural groups on aspects of the dementia caregiving experience. DESIGN AND METHODS: Electronic databases were searched to find studies published between 1996 and 2000 in peer-reviewed journals that met the above criteria. RESULTS: Twenty-one studies based on 18 samples were identified. These articles included comparisons involving the following groups of caregivers: African Americans, Chinese, Chinese Americans, Koreans, Korean Americans, Latinos, Whites, and residents of 14 European Union countries. Consistent with previous research, White caregivers were more likely to be spouses when compared to other groups. White caregivers tended to report greater depression and appraised caregiving as more stressful than African American caregivers. Findings were mixed regarding differences in coping and social support, but suggested that minority groups may not have more available support than Whites. Common methodological limitations were a lack of noncaregiving control groups and failure to test specific pathways by which the grouping variable (e.g., race) exerts its impact on outcome variables. IMPLICATIONS: Future studies in this area should use both quantitative and qualitative research methods to specify the pathways by which race, ethnicity, and culture affect the caregiving experience, and should expand their focus beyond the primary caregiver to include the effects of caregiving on families and networks.
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“however, there is limited research on whether these differences translate to more or fewer hours of care provided.25–29”
From Societal Costs of Dementia: 204 Countries, 2000–2019 (2024) · cites this paper as [26]
In the citing paper
“Cultural differences are known to affect caregiver motivation, wellbeing, and burden; however, there is limited research on whether these differences translate to more or fewer hours of care provided.25–29”
From Societal Costs of Dementia: 204 Countries, 2000–2019 (2024) · cites this paper as [26]
Citations
Cites
The CES-D Scale: A Self-Report Depression Scale for Research in the General Population
Radloff, L. S. (1977) · Applied Psychological Measurement · doi:10.1177/014662167700100306 · Cited by 53,267
Hamilton, M. (1960) · Journal of Neurology, Neurosurgery & Psychiatry · doi:10.1136/jnnp.23.1.56 · Cited by 32,817
(1970) · Cited by 24,983
Kessler, R. C. (1994) · Archives of General Psychiatry · doi:10.1001/archpsyc.1994.03950010008002 · Cited by 12,370
Relatives of the Impaired Elderly: Correlates of Feelings of Burden
Zarit, S. H., Reever, K. E., & Bach-Peterson, J. (1980) · The Gerontologist · doi:10.1093/geront/20.6.649 · Cited by 5,810
A scaled version of the General Health Questionnaire
Goldberg, D. P., & Hillier, V. F. (1979) · Psychological Medicine · doi:10.1017/s0033291700021644 · Cited by 5,637
Caregiving and the stress process: an overview of concepts and their measures
Pearlin, L. I., Mullan, J. T., Semple, S. J., & Skaff, M. M. (1990) · The Gerontologist · doi:10.1093/geront/30.5.583 · Cited by 4,810
The Hopkins Symptom Checklist (HSCL): A self-report symptom inventory
Derogatis, L. R., Lipman, R. S., Rickels, K., Uhlenhuth, E. H., & Covi, L. (1974) · Behavioral Science · doi:10.1002/bs.3830190102 · Cited by 4,604
Schulz, R., O'Brien, A. T., Bookwala, J., & Fleissner, K. (1995) · The Gerontologist · doi:10.1093/geront/35.6.771 · Cited by 1,765
Application of a multidimensional caregiver burden inventory
Novak, M., & Guest, C. (1989) · The Gerontologist · doi:10.1093/geront/29.6.798 · Cited by 1,205
Flagged first, then by citations
1 of the 60 references couldn’t be matched to a known paper.
Research works printed but not linked: 2
- Schneider J., Murray J., Banerjee S., Mann A., 1999. Eurocare: A cross-national study of co-resident spouse carers for people with Alzheimer's Disease: I—Factors associated with care burden. International Journal of Geriatric Psychiatry14:651-661. · DOI · Paper page
- Yeo G., 1996. Background. Yeo G., Gallagher-Thompson D., ed.Ethnicity and the dementias3-7. Taylor & Francis, Washington, DC.
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Sorted by citations
Items 301–391 of 391
Exploring the Iranian-Canadian Family Experience of Dementia Caregiving: A Phenomenological Study
Deljavan, S. (2013) · Scholarship@Western (Western University) · Cited by 3
Psychometric Assessment of the Depressive Cognition Scale in Caregivers of Persons with Dementia
Bekhet, A. K., & Zauszniewski, J. A. (2013) · Issues in Mental Health Nursing · doi:10.3109/01612840.2013.794180 · Cited by 3
Elsayed, Y. A. R., Sabry, W., Hendawy, H., Hegazy, D., Soultan, M., & Banna, M. E. (2019) · Middle East Current Psychiatry · doi:10.1186/s43045-019-0006-7 · Cited by 3
Development and Validation of the Self-management of Dementia by Family Carers (SMDFC) Scale
Shehadeh, A., Hunter, S., & Jeong, S. (2023) · Home Health Care Management & Practice · doi:10.1177/10848223231160273 · Cited by 3
Self-management of dementia by family carers: a hybrid concept analysis
Shehadeh, A., Hunter, S., & Jeong, S. (2024) · Working with Older People · doi:10.1108/wwop-10-2023-0041 · Cited by 3
Victor, C. R., van den Heuvel, E., Pentecost, C., Quinn, C., Charlwood, C., & Clare, L. (2024) · Health & Social Care in the Community · doi:10.1155/2024/8732644 · Cited by 3
Suffering and Compassion in Older Adult Caregiving Relationships
Schulz, R., & Monin, J. K. (2018) · Emerald Group Publishing Limited eBooks · doi:10.1108/978-1-64113-139-120251015 · Cited by 3
Chapter 15. Dementia Caregivers
Cohen, H. L., & Lee, Y. (2007) · Journal of Human Behavior in the Social Environment · doi:10.1300/j137v14n01_15 · Cited by 3
Alfonso, T., Krishnamoorthy, E. S., & Gomez, K. (2010) · Cambridge University Press eBooks · doi:10.1017/cbo9780511780615.011 · Cited by 3
Resilience of Families with Elderly Patients with Dementia
Kim, G. M., Park, E., Lee, Y. S., & Lee, J. N. (2012) · Journal of Korean Academy of Psychiatric and Mental Health Nursing · doi:10.12934/jkpmhn.2012.21.3.197 · Cited by 3
Native Hawaiian Male Caregivers: Patterns of Service Use and Their Effects on Public Policies
Lum, W., Sato, S., & Arnsberger, P. (2010) · Journal of indigenous social development · Cited by 3
Pain, Ageing and Dementia: The Crisis is Looming, but are We Ready?
Brown, C. A. (2009) · British Journal of Occupational Therapy · doi:10.1177/030802260907200808 · Cited by 3
Ethnic Differences in Perceptions of Alzheimer’s Disease
Liew, C. V., Wooldridge, J. S., Kothari, D. J., & Cronan, T. A. (2014) · Californian Journal of Health Promotion · doi:10.32398/cjhp.v12i1.1557 · Cited by 3
Midlife, Multigenerational Bonds, and Caregiving
Gonyea, J. G. (2012) · Caregiving · doi:10.1007/978-1-4614-5553-0_7 · Cited by 3
Sanders, A., Stone, R., Meador, R., & Parker, V. (2016) · SSRN Electronic Journal · Cited by 3
Noimuenwai, P. (2012) · KU ScholarWorks (The University of Kansas) · Cited by 3
Beard, R. L., & O’Connor, M. K. (2015) · Advances in psychology, mental health, and behavioral studies (APMHBS) book series · doi:10.4018/978-1-4666-8478-2.ch001 · Cited by 2
Development of an assessment measure for sexual disinhibition in dementia
Chapman, K. R., Tremont, G. N., & Spitznagel, M. B. (2021) · International Journal of Geriatric Psychiatry · doi:10.1002/gps.5552 · Cited by 2
Day, S., Laver, K., Radford, K. A., Jeon, Y., & Low, L. (2025) · American Journal of Occupational Therapy · doi:10.5014/ajot.2025.050895 · Cited by 2
Personnel Recruitment and Retention in Long-Term Eldercare
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Treatment of Depressive Symptoms in a Chinese Female Dementia Caregiver
Tang, P. C. Y., & Gallagher-Thompson, D. E. (2005) · Clinical Gerontologist · doi:10.1300/j018v28n03_07 · Cited by 2
Gideon, C. A. (2007) · OhioLink ETD Center (Ohio Library and Information Network) · Cited by 2
Miyawaki, C. E. (2015) · Journal of Ethnic & Cultural Diversity in Social Work · doi:10.1080/15313204.2015.1050145 · Cited by 2
A Comparative Study on Family Care in Korea and Scotland
이현숙 (2011) · Health and Social Welfare Review · doi:10.15709/hswr.2011.31.4.345 · Cited by 2
Lee, K. W., Kim, H., & Choi, J. M. (2016) · 보건교육·건강증진학회지 · doi:10.14367/kjhep.2016.33.2.47 · Cited by 2
Cabrera, I., & Gallego‐Alberto, L. (2020) · International Psychogeriatrics · doi:10.1017/s1041610220001039 · Cited by 2
Burden and Heart Rate Variability in Bipolar Disorder Family Caregivers
Williams, E. M., & Zauszniewski, J. A. (2021) · Western Journal of Nursing Research · doi:10.1177/01939459211063660 · Cited by 2
Asian family carers of persons living with dementia: a stress and coping model
Kaewwilai, L., Duggleby, W., Salas, A. S., & O’Rourke, H. M. (2022) · International Journal of Care and Caring · doi:10.1332/239788221x16686072741415 · Cited by 2
Adapting an Alzheimer’s Disease Care Intervention for Arab American Families
Ajrouch, K. J., Janevic, M. R., & Antonucci, T. C. (2023) · Springer eBooks · doi:10.1007/978-3-031-28360-4_6 · Cited by 2
Self-citationLater Life Social Engagement and Health
Pai, M. (2008) · Cited by 2
Impact of Family Caregiving upon Caregivers of Elders with Dementia in China
Liu, Y. (2010) · UA Campus Repository (The University of Arizona) · Cited by 2
Religion and spirituality as resources for African American families in end-of-life care.
Wallace, B. R. (2009) · University of Minnesota Digital Conservancy (University of Minnesota) · Cited by 2
Academic Talk About Dementia Caregiving: A Critical Comment on Language
Kramer, M. K. (2002) · Research and theory for nursing practice · doi:10.1891/088971802780956471 · Cited by 2
The cultural whisper in our ear : intercultural dementia care in a Jewish long-term care facility
Stern, L. (2012) · cIRcle (University of British Columbia) · doi:10.14288/1.0103458 · Cited by 2
Supporting Arab-American Families Living With Dementia: Testing a Culturally Adapted Program
Ajrouch, K. J., Barada, F. M., Janevic, M. R., & Antonucci, T. C. (2024) · Journal of Applied Gerontology · doi:10.1177/07334648241281153 · Cited by 1
Self-citationWangpitipanit, S., Kittipimpanon, K., & Chankollawee, N. (2025) · Clinical Interventions in Aging · doi:10.2147/cia.s454136 · Cited by 1
Professional Gerontology and Caregiving
Chun, M., Lee, L. O., & Knight, B. G. (2013) · Caregiving · doi:10.1007/978-1-4614-8973-3_3 · Cited by 1
Kim, Y. (2014) · Journal of Digital Convergence · doi:10.14400/jdc.2014.12.8.501 · Cited by 1
Lim, S., Bryant, L., & Garnham, B. (2013) · Australian Social Work · doi:10.1080/0312407x.2012.754917 · Cited by 1
RetractedCordella, M., & Poiani, A. (2021) · International perspectives on aging · doi:10.1007/978-3-030-60071-6_3 · Cited by 1
["Appraisal and Coping: Mediators between Caregiver Stress and Psychological Wellbeing."]
Stevens, E. K. (2008) · OhioLink ETD Center (Ohio Library and Information Network) · Cited by 1
Family functioning and caregiver burden in Alzheimer’s disease
Tramonti, F., Barsanti, I., Ghicopulos, I., Bogliolo, C., & Pietrini, P. (2013) · Family Science · doi:10.1080/19424620.2013.871741 · Cited by 2
Carter, K. A. E. (2010) · Open Scholarship Institutional Repository (Washington University in St. Louis) · doi:10.7936/k7qc01m1 · Cited by 1
Salehi, D., Zarani, F., Fata, L., Sharbafchi, M. R., & Lobb, E. A. (2022) · Death Studies · doi:10.1080/07481187.2022.2036270 · Cited by 1
Cognitive Assessment in Elderly African American Adults with Hypertension
Klymko, K. W. (2005) · Journal of Gerontological Nursing · doi:10.3928/0098-9134-20051101-06 · Cited by 1
The impact of family and non-family roles on caregiver health over time.
Matzek, A. E. (2011) · University of Minnesota Digital Conservancy (University of Minnesota) · Cited by 1
Burdening Care: A Study on Informal Caregivers of Frontotemporal Dementia Patients
Riedijk, S. R. (2009) · EUR Research Repository (Erasmus University Rotterdam) · Cited by 1
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Barber, N., Valoumas, I., Chunharas, C., Itthipuripat, S., & Gutchess, A. H. (2023) · Elsevier eBooks · doi:10.1016/b978-0-12-820480-1.00042-5 · Cited by 1
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Elkins, J., Holt, J., & Miles, T. P. (2014) · Springer eBooks · doi:10.1007/978-1-4939-0665-9_8
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Cothran, F. A. (2010) · Deep Blue (University of Michigan)
Diários pessoais do pesquisador como instrumento de pesquisa
Mayorga, C. F., Friedeman, M. L., Jiménez, L. D., & Chaparro-Díaz, L. (2008) · Avances en Enfermería
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Zlateva, I. (2006) · OpenCommons - UConn (University of Connecticut)
Psychometric Reevaluation of the Spiritual Support Scale
Chen, Z. (2013) · Society for Social Work and Research 17th Annual Conference: Social Work for a Just Society: Making Visible the Stakes and Stakeholders
Epidemiology of Spousal Health Concordance
Andress, J. M. (2010)
Alexánder, J., & Moreno, M. (2010) · psicología desde el caribe
Understanding friends and family members' experiences of going abroad with medical tourists
Casey, V. (2013) · Summit (Simon Fraser University)
Durkin, D. W. (2010) · ProQuest Demo Repository
Blain, J. (2013) · Brock University Digital Repository (Brock University)
The impact of an online support forum for carers of people with dementia
McKechnie, I. M. (2013) · UCL Discovery (University College London)
Cultural Beliefs and Experiences of Formal Caregivers Providing Dementia Care to American Indians
Syphers, D. G. P. (2015) · ScholarWorks (Walden University)
Post-Caregiving Transition in African American Caregivers
Ume, E. P. (2013)
Predictors of caregiver depression in Alzheimer’s disease
Dumser, H. E. (2014) · CommonKnowledge Research Repository (Pacific University Oregon)
Liew, C. V., Santoro, M. S., Kothari, D. J., Wooldridge, J. S., & Cronan, T. A. (2016) · Journal of Cross-Cultural Gerontology · doi:10.1007/s10823-016-9306-0
Racial/Ethnic Differences in Social Support
Goans, C. (2015) · doi:10.12794/metadc799548
Caregiver: Roles in Health Management
Harrington, S. E., & Curseen, K. A. (2016) · Springer eBooks · doi:10.1007/978-3-319-16558-5_9
Miyawaki, C. E. (2014) · ResearchWorks at the University of Washington (University of Washington)
Psychometric re-evaluation of the Spiritual Support Scale
Bowman, A. M. (2012) · doi:10.31390/gradschool_theses.409
Velotti, P., & Zavattini, G. C. (2009) · CINECA IRIS Institutial Research Information System (University of Genoa)
Exploring Help-Seeking Behaviours: Perspectives of Adult-Child Caregivers
Samaha, A. S. (2018) · Libraries and Cultural Resources (University of Calgary) · doi:10.11575/prism/34515
Woods, D. L. (2020) · Springer eBooks · doi:10.1007/978-1-0716-0132-7_11
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Iacobucci, M. (2021) · The Atrium (University of Guelph)
Beard, R. L., & O’Connor, M. K. (2016) · IGI Global eBooks · doi:10.4018/978-1-5225-0778-9.ch031
(2001) · International Journal of Geriatric Psychiatry · doi:10.1002/gps.378
Buckwalter, K. C., Stolder, M. E., Aaron, C. S., & Messinger, C. (2010) · Wiley eBooks · doi:10.1002/9780470669600.ch133
Beyond Private? Dementia, Family Caregiving and Public Health
Lanoix, M. (2023) · Canadian Journal of Bioethics · doi:10.7202/1108006ar
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Rocha‐Buelvas, A. (2024) · Universidad y Salud · doi:10.22267/rus.242601.321
Pak, A., Demanes, A., Wu, S. L., Ward, K., & Hess, M. (2024) · Geriatrics · doi:10.3390/geriatrics9020033
Suro, G., University Of Miami, & Suro, G. C. (2011)
Disability and Aging in US Minority Populations
Chyu, J., Cantu, P. A., & Markides, K. S. (2024) · Springer eBooks · doi:10.1007/978-3-031-40858-8_86-1
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ZEIDAN, H. M., & ZEIDAN, I. H. (2025) · Elsevier eBooks · doi:10.1016/b978-0-443-21632-9.00005-4
Valles, J. L. (2025) · The Wiley Blackwell Encyclopedia of Health, Illness, Behavior, and Society · doi:10.1002/9781118410868.wbehibs188.pub2
(2018) · Emerald Group Publishing Limited eBooks · doi:10.1108/978-1-64113-139-120251018
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(2018) · Emerald Group Publishing Limited eBooks · doi:10.1108/978-1-64113-139-120251012
Mroz, E. L., Segundo, J., Baker, Z. G., & Supporting Dementia Caregivers After Death Community Advisory Board (2026) · Alzheimer s & Dementia Behavior & Socioeconomics of Aging · doi:10.1002/bsa3.70081
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Metadata
- Authors
- Janevic, M. R., & M Connell, C.
- Affiliations
- University of Michigan (US)
- Corresponding author
- Janevic, Mary R.
- ORCID
- Janevic, Mary R.
- Venue
- The Gerontologist
- Publisher
- Oxford University Press (OUP)
- Published
- 2001-06-01
- Volume
- 41
- Issue
- 3
- Pages
- 334-347
- ISSN
- 0016-9013 (ISSN-L)
- 1758-5341
- OpenAlex
- W2123819437
- Cited by
- 391
- References
- 60
- Citations by year
- 2026: 4 · 2025: 6 · 2024: 17 · 2023: 10 · 2022: 5 · 2021: 11 · 2020: 14 · 2019: 16 · 2018: 13 · 2017: 11 · 2016: 13 · 2015: 14 · 2014: 21 · 2013: 20 · 2012: 26
- FWCI
- 9.70
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- The Gerontologist (publishedVersion)
- PubMed (publishedVersion)
- Funders
- National Institutes of Health
- U.S. Public Health Service
- National Institute on Aging (P50AG008671, P50 AG08671)
- Topics
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Social Sciences › Sociology and Political Science › Intergenerational Family Dynamics and Caregiving
- Health Sciences › Nursing › Research and Theory › Nursing care and research
- Keywords
- dementia caregiving, racial and ethnic differences, cultural differences, African American caregivers, Chinese Americans, Korean Americans, Latino caregivers, caregiver stress, caregiver depression, coping, social support, spousal caregivers
- MeSH terms
- Aged, Alzheimer Disease, Attitude, Cross-Cultural Comparison, Depression, Europe, Female, Humans, Male, Social Support, Caregivers
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