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Change Over a 12-Month Period in the Psychological Adjustment of Children and Adolescents with Cystic Fibrosis
Abstract
Found that group rates of mother-reported and child-reported adjustment problems remained relatively constant over initial and 12-month follow-up assessment points. However, there was less stability in the classification of the adjustment of individuals, in specific behavior problem patterns and diagnoses, and in child-reported adjustment than in mother-reported adjustment. With initial level of child adjustment controlled, children's perceptions of self-worth accounted for a significant increment in child-reported symptoms and mother-reported adjustment at follow-up. Maternal distress also accounted for a significant increment in child-reported symptoms. These findings add support for the role of maternal adjustment and child self-worth in the adjustment of children with cystic fibrosis.
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Even after their child has been cured, distressed parents may express more anger toward their surviving child, listen less to their children, and have more negative parent-child interactions.
“Even after their child has been cured, distressed parents may express more anger toward their surviving child [17], listen less to their children [18], and have more negative parent–child interactions [19].”
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“Thompson et al. (1994) and Thompson, Gustafson, George, and Spock (1994) examined the change over time in psychological adjustment of adolescents with chronic disease and their mothers.”
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“Specifically, Thompson and colleagues (Thompson & Gustafson, 1996; Thompson, Gustafson, George, & Spock, 1994 ) have proposed a model in which maternal adaptation processes contribute to child adjustment.”
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“Studies have tested the effectiveness of a clinical intervention on adaptation and largely demonstrate greater adaptation (22).”
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“Research has also found a relationship between parental–child distress and behavior problems among children with cancer and other chronic illnesses (Canning, Hanser, Shade, & Boyce, 1993; Thompson, Gustafson, George, & Spock, 1994 ).”
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“This measure has demonstrated good predictive utility regarding psychological distress in past pediatric research (e.g., Thompson et al., 1994).”
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Metadata
- Authors
- Thompson, R. J., Gustafson, K. E., George, L. K., & Spock, A.
- Affiliations
- Duke Medical Center (US)
- Corresponding author
- Thompson, Robert J.
- Venue
- Journal of Pediatric Psychology
- Publisher
- Oxford University Press (OUP)
- Published
- 1994
- Volume
- 19
- Issue
- 2
- Pages
- 189-203
- ISSN
- 0146-8693 (ISSN-L)
- 1465-735X
- OpenAlex
- W2104513164
- Cited by
- 74
- References
- 0
- Citations by year
- 2023: 1 · 2022: 1 · 2016: 2 · 2015: 3 · 2014: 2 · 2013: 3
- FWCI
- 3.39
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Journal of Pediatric Psychology (publishedVersion)
- PubMed (publishedVersion)
- Funders
- National Institutes of Health (5r01hl037548-04)
- National Heart, Lung, and Blood Institute (R01 HL 37548)
- Topics
- Health Sciences › Medicine › Pulmonary and Respiratory Medicine › Cystic Fibrosis Research Advances
- Social Sciences › Psychology › Clinical Psychology › Child and Adolescent Psychosocial and Emotional Development
- Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
- Keywords
- cystic fibrosis, psychological adjustment, children and adolescents, longitudinal change, self-worth, maternal distress, behavioral problems
- MeSH terms
- Adaptation, Psychological, Adolescent, Child, Child Behavior Disorders, Cystic Fibrosis, Depression, Female, Humans, Longitudinal Studies, Male, Mothers, Prospective Studies, Psychiatric Status Rating Scales, Stress, Psychological
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