Incidence and predictors of advance care planning among persons with cognitive impairment.
Open accessAbstract
Objective Persons with mild cognitive impairment (MCI) and Alzheimer disease (AD) are at heightened risk for future decisional incapacity. We sought to characterize advance care planning (ACP) rates over time in individuals who had no advance directives (living will or durable power of attorney) in place when they initially presented for a cognitive evaluation.Design Retrospective analysis of data that had been prospectively collected.Setting Alzheimer's Disease Research Center memory disorders clinic.Participants Persons (N = 127) with a diagnosis of MCI or early AD (n = 72) or moderate to severe AD (n = 55) and no advance directives upon initial presentation for a cognitive evaluation.Measurements Extraction of responses to items pertaining to ACP assessed during annual semistructured interviews.Results By 5 years of follow-up, 39% of the sample had initiated ACP, with little difference by baseline diagnosis. Younger subjects (younger than 65 years) were significantly more likely to initiate advance directives (43%) than older subjects (37%). This age effect was more pronounced in men than in women as well as in married subjects, those with a family history of dementia, those with no depressive disorder, and subjects with moderate to severe AD (versus those with MCI or early AD) at baseline.Conclusion Only a minority of subjects initiated ACP. The findings suggest the need for interventions aimed at enhancing ACP completion rates, particularly among older adults with cognitive impairment, since these individuals may have a time-limited opportunity to plan for future medical, financial, and other major life decisions.
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Integrity signals
Registry
Cites
Statistics
Claims the paper makes
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
Males with a dementia diagnosis showed a higher tendency to participate in ACP than females.
“Also, males with a dementia diagnosis showed a higher tendency to participate in ACP than females [37].”
From Acceptability of the voice your values, an advance care planning intervention in persons living with mild dementia using videoconferencing technology (2022) · cites this paper as [37]
The Results (Advance Care Planning) show an age-dependent pattern: 60% of men under 65 completed ACP, compared with 21% of women under 65, but the pattern reversed among older participants (30% of men versus 45% of women). The same section states that ACP completion rates did not vary significantly by gender overall. The claim omits the age qualification and overstates a general male–female difference. (LLM, conf=0.88)
Experimental — accuracy not yet measured
Self-check
Percentages, sums and reported differences re-computed from the paper’s own numbers.
The self-check needs the paper’s full text.
Cites
Folstein, M. F., Folstein, S. E., & McHugh, P. R. (1975) · Journal of Psychiatric Research · doi:10.1016/0022-3956(75)90026-6 · Cited by 88,282 · see citing works
McKhann, G., Drachman, D., Folstein, M., Katzman, R., Price, D., & Stadlan, E. M. (1984) · Neurology · doi:10.1212/wnl.34.7.939 · Cited by 27,915 · see citing works
Hirono, N., Mori, E., Ikejiri, Y., Imamura, T., Shimomura, T., Hashimoto, M., Yamashita, H., & Ikeda, M. (1997) · PubMed · Cited by 21,010 · see citing works
Kok, J. S., Berg, I. J., & Scherder, E. J. A. (2013) · Dementia and Geriatric Cognitive Disorders Extra · doi:10.1159/000353441 · Cited by 20,589 · see citing works
Older Adults' Reasons for Using Technology while Aging in Place
Peek, S. T. M., Luijkx, K. G., Rijnaard, M. D., Nieboer, M. E., van der Voort, C. S., Aarts, S., van Hoof, J., Vrijhoef, H. J., & Wouters, E. (2015) · Gerontology · doi:10.1159/000430949 · Cited by 19,803 · see citing works
Sensitivity and False Alarm Rate of a Fall Sensor in Long-Term Fall Detection in the Elderly
Kangas, M., Korpelainen, R., Vikman, I., Nyberg, L., & Jämsä, T. J. (2014) · Gerontology · doi:10.1159/000362720 · Cited by 19,003 · see citing works
The Clinical Course of Advanced Dementia.
Mitchell, S. L., Teno, J. M., Kiely, D. K., Shaffer, M. L., Jones, R. N., Prigerson, H. G., Volicer, L., Givens, J. L., & Hamel, M. B. (2009) · New England Journal of Medicine · doi:10.1056/nejmoa0902234 · Cited by 1,618 · see citing works
Quality End-of-Life Care: Patients' Perspectives
Singer, P. A., Martin, D. K., & Kelner, M. (1999) · JAMA · doi:10.1001/jama.281.2.163 · Cited by 1,287 · see citing works
Advance Directives for Medical Care — A Case for Greater Use
Emanuel, L. L., Barry, M. J., Stoeckle, J. D., Ettelson, L. M., & Emanuel, E. J. (1991) · New England Journal of Medicine · doi:10.1056/nejm199103283241305 · Cited by 775 · see citing works
Dying With Advanced Dementia in the Nursing Home
Mitchell, S. L., Kiely, D. K., & Hamel, M. B. (2004) · Archives of Internal Medicine · doi:10.1001/archinte.164.3.321 · Cited by 570 · see citing works
Death and End-of-Life Planning in One Midwestern Community
Hammes, B. J., & Rooney, B. L. (1998) · Archives of Internal Medicine · doi:10.1001/archinte.158.4.383 · Cited by 355 · see citing works
Current State of Research on Decision-Making Competence of Cognitively Impaired Elderly Persons
Kim, S. Y. H., Karlawish, J. H., & Caine, E. D. (2002) · American Journal of Geriatric Psychiatry · doi:10.1097/00019442-200203000-00006 · Cited by 314 · see citing works
Lyketsos, C. G., Colenda, C. C., Beck, C. M., Blank, K., Doraiswamy, M. P., Kalunian, D. A., & Yaffe, K. S. (2006) · American Journal of Geriatric Psychiatry · doi:10.1097/01.jgp.0000221334.65330.55 · Cited by 275 · see citing works
Schickedanz, A. D., Schillinger, D., Landefeld, C. S., Knight, S. J., Williams, B. A., & Sudore, R. L. (2008) · Journal of the American Geriatrics Society · doi:10.1111/j.1532-5415.2008.02093.x · Cited by 275 · see citing works
Completing an Advance Directive in the Primary Care Setting: What Do We Need for Success?
Ramsaroop, S., Reid, M. C., & Adelman, R. D. (2007) · Journal of the American Geriatrics Society · doi:10.1111/j.1532-5415.2007.01065.x · Cited by 250 · see citing works
Research evaluation and diagnosis of possible Alzheimer’s disease over the last two decades: II
López, O. L., Becker, J. T., Klunk, W. E., Saxton, J. A., Hamilton, R. L., Kaufer, D., Sweet, R. A., MELTZER, C. C., Wisniewski, S. R., Kamboh, M. I., et al. (2000) · Neurology · doi:10.1212/wnl.55.12.1863 · Cited by 187 · see citing works
End-of-Life Health Care Planning Among Young-Old Adults: An Assessment of Psychosocial Influences
Carr, D., & Khodyakov, D. (2007) · The Journals of Gerontology Series B · doi:10.1093/geronb/62.2.s135 · Cited by 186 · see citing works
Boissoneau, R., Sprengel, A. D., & Snell, W. E. (1999) · Health Marketing Quarterly · doi:10.1300/j026v17n01_05 · Cited by 179 · see citing works
Hopp, F. P. (2000) · The Gerontologist · doi:10.1093/geront/40.4.449 · Cited by 167 · see citing works
Research evaluation and diagnosis of probable Alzheimer’s disease over the last two decades: I
López, O. L., Becker, J. T., Klunk, W. E., Saxton, J. A., Hamilton, R. L., Kaufer, D., Sweet, R. A., MELTZER, C. C., Wisniewski, S. R., Kamboh, M. I., et al. (2000) · Neurology · doi:10.1212/wnl.55.12.1854 · Cited by 159 · see citing works
The Use of Living Wills at the End of Life
Hanson, L. C. (1996) · Archives of Internal Medicine · doi:10.1001/archinte.1996.00440090128013 · Cited by 132 · see citing works
Waters, C. M. (2001) · Qualitative Health Research · doi:10.1177/104973201129119172 · Cited by 127 · see citing works
Bravo, G., Dubois, M., & Wagneur, B. (2008) · Social Science & Medicine · doi:10.1016/j.socscimed.2008.06.006 · Cited by 111 · see citing works
Advance Directives Are More Likely Among Seniors Asked About End-of-Life Care Preferences
Gordon, N. P., & Shade, S. B. (1999) · Archives of Internal Medicine · doi:10.1001/archinte.159.7.701 · Cited by 107 · see citing works
The Effectiveness of Interventions to Increase Advance Directive Completion Rates
Jezewski, M., Meeker, M., Sessanna, L., & Finnell, D. (2007) · Journal of Aging and Health · doi:10.1177/0898264307300198 · Cited by 106 · see citing works
Dialysis Patients' Preferences for Family-Based Advance Care Planning
Hines, S. C., Glover, J. J., Holley, J. L., Babrow, A. S., Badzek, L., & Moss, A. H. (1999) · Annals of Internal Medicine · doi:10.7326/0003-4819-130-10-199905180-00016 · Cited by 103 · see citing works
Cognitive performance predicts treatment decisional abilities in mild to moderate dementia
Gurrera, R. J., Moye, J. A., Karel, M. J., Azar, A. R., & Armesto, J. C. (2006) · Neurology · doi:10.1212/01.wnl.0000210527.13661.d1 · Cited by 99 · see citing works
Identifying the Factors That Facilitate or Hinder Advance Planning by Persons With Dementia
Hirschman, K. B., Kapo, J. M., & Karlawish, J. H. (2008) · Alzheimer Disease & Associated Disorders · doi:10.1097/wad.0b013e318169d669 · Cited by 86 · see citing works
Patients' Attitudes Toward Advance Directives
Douglas, R., & Brown, H. N. (2002) · Journal of Nursing Scholarship · doi:10.1111/j.1547-5069.2002.00061.x · Cited by 85 · see citing works
Perspectives of healthy elders on advance care planning
Malcomson, H., & Bisbee, S. (2009) · Journal of the American Academy of Nurse Practitioners · doi:10.1111/j.1745-7599.2008.00369.x · Cited by 84 · see citing works
Promoting advance directives among elderly primary care patients
Wissow, L. S., Belote, A., Kramer, W., Compton-Phillips, A. L., Kritzler, R. A., & Weiner, J. P. (2004) · Journal of General Internal Medicine · doi:10.1111/j.1525-1497.2004.30117.x · Cited by 78 · see citing works
Content of Advance Directives for Individuals With Advanced Dementia
Triplett, P. T., Black, B. S., Phillips, H., Fahrendorf, S. R., Schwartz, J., Angelino, A. F., Anderson, D., & Rabins, P. V. (2008) · Journal of Aging and Health · doi:10.1177/0898264308317822 · Cited by 73 · see citing works
Advance Directives for Health Care and Research
Bravo, G., Dubois, M., & Pâquet, M. (2003) · Alzheimer Disease & Associated Disorders · doi:10.1097/00002093-200310000-00004 · Cited by 67 · see citing works
Activists and delegators: Elderly patients' preferences about control at the end of life
Kelner, M. J. (1995) · Social Science & Medicine · doi:10.1016/0277-9536(94)00381-3 · Cited by 63 · see citing works
Families' Roles in Advance Directives
High, D. M. (1994) · The Hastings Center Report · doi:10.2307/3563476 · Cited by 57 · see citing works
Frequency and Correlates of Advance Planning Among Cognitively Impaired Older Adults
Lingler, J. H., Hirschman, K. B., Garand, L., Dew, M. A., Becker, J. T., Schulz, R., & DeKosky, S. T. (2008) · American Journal of Geriatric Psychiatry · doi:10.1097/jgp.0b013e31816b7324 · Cited by 54 · see citing works
Self-citationRosnick, C. B., & Reynolds, S. L. (2003) · Journal of Aging and Health · doi:10.1177/0898264303015002005 · Cited by 48 · see citing works
Dobalian, A. (2005) · Archives of Gerontology and Geriatrics · doi:10.1016/j.archger.2005.10.007 · Cited by 47 · see citing works
Developing a Parsimonious Model for Predicting Completion of Advance Directives
Campbell, M. J., Edwards, M. J., Ward, K. S., & Weatherby, N. L. (2007) · Journal of Nursing Scholarship · doi:10.1111/j.1547-5069.2007.00162.x · Cited by 41 · see citing works
Nursing Home Resident Use of Care Directives
Suri, D. N., Egleston, B. L., Brody, J. A., & Rudberg, M. A. (1999) · The Journals of Gerontology Series A · doi:10.1093/gerona/54.5.m225 · Cited by 39 · see citing works
The Illusion of Patient Choice in End-of-Life Decisions
Sullivan, M. D. (2002) · American Journal of Geriatric Psychiatry · doi:10.1097/00019442-200207000-00003 · Cited by 37 · see citing works
Advance Directives and Community-Dwelling Older Adults
Hamel, C. F., Guse, L. W., Hawranik, P. G., & Bond, J. (2002) · Western Journal of Nursing Research · doi:10.1177/019394590202400205 · Cited by 31 · see citing works
Factors That Influence Elders' Decisions to Formulate Advance Directives
Moore, C. D., & Sherman, S. R. (1999) · Journal of Gerontological Social Work · doi:10.1300/j083v31n01_03 · Cited by 30 · see citing works
Advance Directives: Ambulatory Patients’ Knowledge and Perspectives
Freer, J. P., Eubanks, M., Parker, B., & Hershey, C. O. (2006) · The American Journal of Medicine · doi:10.1016/j.amjmed.2006.02.028 · Cited by 24 · see citing works
Troyer, J. L., & McAuley, W. J. (2006) · The Journals of Gerontology Series B · doi:10.1093/geronb/61.4.s194 · Cited by 24 · see citing works
The Illusion of Patient Choice in End-of-Life Decisions
Sullivan, M. D. (2002) · American Journal of Geriatric Psychiatry · doi:10.1176/appi.ajgp.10.4.365 · Cited by 12 · see citing works
The Desire to Control Terminal Health Care and Attitudes toward Living Wills
Rye, P. D., Wallston, K. A., Wallston, B. S., & Smith, R. A. P. (1985) · American Journal of Preventive Medicine · doi:10.1016/s0749-3797(18)31414-4 · Cited by 9 · see citing works
Advance Directives, Competency Evaluation, and Surrogate Management in Elderly Patients
Grossberg, G. T. (1998) · American Journal of Geriatric Psychiatry · doi:10.1097/00019442-199821001-00010 · Cited by 7 · see citing works
Flagged first, then by citations
Research works printed but not linked: 2
- [36]Rosnick CB Reynolds SL Thinking ahead: factors associated with executing advance directives J Aging Health 2003 18 409 429 20% non completion 12795282
- [38]Carr D Khodyakov D End-of-life care planning among young-old adults: An assessment of Psychosocial influences J of Gerontology, Social Sciences 2007 62B 2 S135 S141 17379683
Cited by
Sorted by citations
Advance care planning in dementia: recommendations for healthcare professionals.
Piers, R., Albers, G., Gilissen, J., De Lepeleire, J., Steyaert, J., Van Mechelen, W., Steeman, E., Dillen, L., Vanden Berghe, P., & Van den Block, L. (2018) · BMC Palliative Care · doi:10.1186/s12904-018-0332-2 · Cited by 254 · see citing works
Factors Associated with Initiation of Advance Care Planning in Dementia: A Systematic Review
van der Steen, J. T., van Soest‐Poortvliet, M. C., Hallie-Heierman, M., Onwuteaka-Philipsen, B. D., Deliëns, L., de Boer, M. E., den Block, L. V., van Uden, N., Hertogh, C. M. P. M., & de Vet, H. C. W. (2014) · Journal of Alzheimer s Disease · doi:10.3233/jad-131967 · Cited by 204 · see citing works
Sellars, M., Chung, O. S., Nolte, L., Tong, A., Pond, D. C., Fetherstonhaugh, D., McInerney, F., Sinclair, C., & Detering, K. M. (2018) · Palliative Medicine · doi:10.1177/0269216318809571 · Cited by 173 · see citing works
Strategic Targeting of Advance Care Planning Interventions
Billings, J. A., & Bernacki, R. (2014) · JAMA Internal Medicine · doi:10.1001/jamainternmed.2013.14384 · Cited by 135 · see citing works
Kuehlmeyer, K., Borasio, G. D., & Jox, R. J. (2012) · Journal of Medical Ethics · doi:10.1136/medethics-2011-100373 · Cited by 72 · see citing works
Advance Care Planning in Cognitively Impaired Older Adults
Thomas, J. D., Sanchez-Reilly, S. E., Bernacki, R., O'Neill, L. B., Morrison, L. J., Kapo, J. M., Periyakoil, V. S., & Carey, E. C. (2018) · Journal of the American Geriatrics Society · doi:10.1111/jgs.15471 · Cited by 63 · see citing works
Undetected Cognitive Impairment and Decision-Making Capacity in Patients Receiving Hospice Care
Burton, C. Z., Twamley, E. W., Lee, L. C., Palmer, B. W., Jeste, D. V., Dunn, L. B., & Irwin, S. A. (2012) · American Journal of Geriatric Psychiatry · doi:10.1097/jgp.0b013e3182436987 · Cited by 61 · see citing works
de Boer, M. E., Dröes, R., Jonker, C., Eefsting, J. A., & Hertogh, C. M. P. M. (2012) · AJOB Primary Research · doi:10.1080/21507716.2011.636784 · Cited by 54 · see citing works
Bryant, J., Turon, H., Waller, A. E., Freund, M., Mansfield, E. L., & Sanson‐Fisher, R. (2018) · Palliative Medicine · doi:10.1177/0269216318801750 · Cited by 54 · see citing works
Quality improvement in neurology
Foster, N. L., Bondi, M. W., Das, R. R., Foss, M., Hershey, L. A., Koh, S., Logan, R., Poole, C., Shega, J. W., Sood, A., et al. (2019) · Neurology · doi:10.1212/wnl.0000000000008259 · Cited by 47 · see citing works
End of life care for glioblastoma patients at a large academic cancer center
Kuchinad, K. E., Strowd, R. E., III, Evans, A., Riley, W. A., & Smith, T. J. (2017) · Journal of Neuro-Oncology · doi:10.1007/s11060-017-2487-8 · Cited by 39 · see citing works
Gabbard, J., Johnson, D., Russell, G. B., Spencer, S., Williamson, J. D., McLouth, L. E. S., Ferris, K. G., Sink, K. M., Brenes, G. A., & Yang, M. (2019) · American Journal of Hospice and Palliative Medicine® · doi:10.1177/1049909119895497 · Cited by 39 · see citing works
The role of geriatric palliative care in hospitalized older adults
Santivasi, W. L., Partain, D. K., & Whitford, K. J. (2019) · Hospital Practice · doi:10.1080/21548331.2019.1703707 · Cited by 32 · see citing works
Dementia treatment versus prevention
Perneczky, R. (2019) · Phlebolymphology · doi:10.31887/dcns.2019.21.1/rperneczky · Cited by 34 · see citing works
Geshell, L., Kwak, J., & Radhakrishnan, K. (2019) · Journal of Geriatric Psychiatry and Neurology · doi:10.1177/0891988719853040 · Cited by 29 · see citing works
Tay, S. Y., Davison, J., Jin, N. C., & Yap, P. L. K. (2015) · Journal of the American Medical Directors Association · doi:10.1016/j.jamda.2015.05.014 · Cited by 27 · see citing works
Trends in Engagement in Advance Care Planning Behaviors and the Role of Socioeconomic Status
Khosla, N., Curl, A. L., & Washington, K. T. (2015) · American Journal of Hospice and Palliative Medicine® · doi:10.1177/1049909115581818 · Cited by 26 · see citing works
A national survey of memory clinics in the Republic of Ireland
Cahill, S. M., Pierce, M., & Moore, V. (2014) · International Psychogeriatrics · doi:10.1017/s104161021300238x · Cited by 25 · see citing works
Factors Associated With End-of-Life Planning in Huntington Disease
Downing, N. R., Goodnight, S. M., Chae, S., Perlmutter, J. S., McCormack, M. K., Hahn, E. A., Barton, S. K., & Carlozzi, N. E. (2017) · American Journal of Hospice and Palliative Medicine® · doi:10.1177/1049909117708195 · Cited by 23 · see citing works
Azizi, B., Tilburgs, B., van Hout, H. P. J., van der Heide, I., Verheij, R. A., Achterberg, W. P., van der Steen, J. T., & Joling, K. J. (2022) · Frontiers in Public Health · doi:10.3389/fpubh.2022.653174 · Cited by 22 · see citing works
for the AgeCoDe & AgeQualiDe study group, Luck, T., Rodriguez, F. S., Wiese, B., van der Leeden, C., Heser, K., Bickel, H., der Schmitten, J. I., König, H., Weyerer, S. B., et al. (2017) · BMC Geriatrics · doi:10.1186/s12877-017-0482-8 · Cited by 22 · see citing works
Decision-making in older people with dementia
Jiménez, M., Jaén, M. C., García, M. V., & Álvarez, H. B. (2013) · Reviews in Clinical Gerontology · doi:10.1017/s0959259813000178 · Cited by 20 · see citing works
Factors influencing advance directives among psychiatric inpatients in India.
Gowda, G. S., Noorthoorn, E., Lepping, P., Kumar, C., Nanjegowda, R. B., & Math, S. (2018) · International Journal of Law and Psychiatry · doi:10.1016/j.ijlp.2017.10.002 · Cited by 4 · see citing works
Vellani, S., Puts, M., Iaboni, A., & McGilton, K. S. (2022) · PLoS ONE · doi:10.1371/journal.pone.0266826 · Cited by 18 · see citing works
“Also, males with a dementia diagnosis showed a higher tendency to participate in ACP than females [37].”
BackgroundWhat patients want to know, and what we actually tell them: The ABIDE project
Fruijtier, A. D., Visser, L. N. C., Bouwman, F. H., Lutz, R., Schoonenboom, N. S. M., Kalisvaart, K. J., Hempenius, L., Roks, G., Boelaarts, L., Claus, J. J., et al. (2020) · Alzheimer s & Dementia Translational Research & Clinical Interventions · doi:10.1002/trc2.12113 · Cited by 17 · see citing works
Ouchi, K., Joshi, C., Kaithamattam, J., Gale, S. A., Marshall, G. A., Pietras, A., Wang, W., Boyer, E. W., Tulsky, J. A., Block, S. D., et al. (2023) · The Gerontologist · doi:10.1093/geront/gnad020 · Cited by 17 · see citing works
Advance care planning for people living with dementia
Brooke, J. M., & Kirk, M. (2014) · British Journal of Community Nursing · doi:10.12968/bjcn.2014.19.10.490 · Cited by 17 · see citing works
Lai, M., Jeon, Y., & McKenzie, H. A. (2019) · International Psychogeriatrics · doi:10.1017/s104161021900005x · Cited by 17 · see citing works
Lee, L., Hillier, L. M., Locklin, J., Lee, J., & Slonim, K. (2019) · Journal of Palliative Care · doi:10.1177/0825859718812463 · Cited by 16 · see citing works
Engaging Diverse Older Adults With Cognitive Impairment and Caregivers in Advance Care Planning
Kotwal, A., Barnes, D. E., Volow, A. M., Li, B. H., Boscardin, W. J., & Sudore, R. L. (2021) · Alzheimer Disease & Associated Disorders · doi:10.1097/wad.0000000000000465 · Cited by 16 · see citing works
Ethical Issues in the Treatment of Late-Stage Alzheimer’s Disease
Watt, A. D., Jenkins, N. L., McColl, G., Collins, S. J., & Desmond, P. M. (2018) · Journal of Alzheimer s Disease · doi:10.3233/jad-180865 · Cited by 16 · see citing works
Vellani, S., Puts, M. T. E., Iaboni, A., & McGilton, K. S. (2022) · Palliative & Supportive Care · doi:10.1017/s1478951522000475 · Cited by 16 · see citing works
Advance Directive and POLST Documentation in Decedents With Dementia at a Memory Care Center
Naasan, G., Boyd, N. D., Harrison, K. L., Garrett, S. B., Rosa, T. D., Pérez‐Cerpa, B., McFarlane, S., Miller, B. L., & Ritchie, C. S. (2021) · Neurology Clinical Practice · doi:10.1212/cpj.0000000000001123 · Cited by 15 · see citing works
Advance care planning in neurologic illness
Macchi, Z. A., & Lum, H. D. (2022) · Handbook of clinical neurology · doi:10.1016/b978-0-323-85029-2.00004-x · Cited by 15 · see citing works
Suntai, Z., Noh, H., & Won, C. R. (2021) · Journal of Applied Gerontology · doi:10.1177/0733464821993610 · Cited by 15 · see citing works
Lo, T. J., Ha, N. H. L., Ng, C. J., Tan, G., Koh, H. M., & Yap, P. L. K. (2016) · International Psychogeriatrics · doi:10.1017/s1041610216001903 · Cited by 15 · see citing works
Bryant, J., Sellars, M., Sinclair, C., Detering, K. M., Buck, K., Waller, A. E., White, B. P., & Nolte, L. (2021) · BMJ Supportive & Palliative Care · doi:10.1136/bmjspcare-2020-002767 · Cited by 15 · see citing works
Riva, M., Caratozzolo, S., Cerea, E., Gottardi, F., Zanetti, M., Chilovi, B. V., Cristini, C., Padovani, A., & Rozzini, L. (2014) · Aging Clinical and Experimental Research · doi:10.1007/s40520-014-0195-1 · Cited by 14 · see citing works
Kim, B., Choi, J., & Lee, I. (2022) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph19073771 · Cited by 13 · see citing works
Monnet, F., Dupont, C., Smets, T., Vleminck, A. D., Audenhove, C. V., den Block, L. V., & Pivodic, L. (2023) · JMIR Research Protocols · doi:10.2196/46935 · Cited by 11 · see citing works
The Effect of Advance Directives on End-of-Life Cost Experience
Fonk, J., Davidoff, D., Lutzow, T., Chesley, N., & Mathiowetz, N. A. (2012) · Journal of Health Care for the Poor and Underserved · doi:10.1353/hpu.2012.0098 · Cited by 12 · see citing works
Song, M., Ward, S. E., Hepburn, K. W., Paul, S., Shah, R. C., & Morhardt, D. (2018) · Contemporary Clinical Trials · doi:10.1016/j.cct.2018.06.005 · Cited by 12 · see citing works
Kim, B., Lee, J., & Choi, Y. S. (2023) · BMC Palliative Care · doi:10.1186/s12904-023-01333-y · Cited by 11 · see citing works
Human-Centered Design of an Advance Care Planning Group Visit for Mild Cognitive Impairment
Daddato, A. E., Staton, E. W., Bettcher, B. M., Shanbhag, P., & Lum, H. D. (2021) · The Gerontologist · doi:10.1093/geront/gnab181 · Cited by 10 · see citing works
A qualitative study of patients' experiences of a nurse-led memory clinic
Stirling, C., Campbell, B., Bentley, M., Bucher, H., & Morrissey, M. (2013) · Dementia · doi:10.1177/1471301213512841 · Cited by 10 · see citing works
Enabling Advance Care Planning in Dementia Care: A Primary Care Approach
Lee, L. S., Hillier, L. M., Lu, S. K., & Ward, D. (2020) · Journal of Palliative Care · doi:10.1177/0825859720973937 · Cited by 10 · see citing works
Haapasalmi, S., Piili, R. P., Metsänoja, R., Kellokumpu-Lehtinen, P.-L. I., & Lehto, J. T. (2021) · BMC Palliative Care · doi:10.1186/s12904-021-00811-5 · Cited by 10 · see citing works
Do Electronic Medical Records Improve Advance Directive Documentation? A Systematic Review
Lemon, C. A., de Ridder, M., & Khadra, M. H. (2018) · American Journal of Hospice and Palliative Medicine® · doi:10.1177/1049909118796191 · Cited by 10 · see citing works
Shelton, W. N., Tenenbaum, E. M., Costello, K., & Hoffman, D. P. (2018) · American Journal of Alzheimer s Disease & Other Dementias® · doi:10.1177/1533317518817614 · Cited by 10 · see citing works
Bartley, M. M., Manggaard, J. M., Fischer, K. M., Holland, D. E., & Takahashi, P. Y. (2022) · Journal of Palliative Care · doi:10.1177/08258597221125607 · Cited by 9 · see citing works
Ethical issues in the neurology of aging and cognitive decline
Klein, E. P., & Karlawish, J. H. (2013) · Handbook of clinical neurology · doi:10.1016/b978-0-444-53501-6.00020-2 · Cited by 7 · see citing works
Findings on Advance Care Plans among Cognitively Impaired Older Adults
Jeznach, A., Tuokko, H. A., García-Barrera, M. A., & Stajduhar, K. (2015) · Canadian Journal on Aging / La Revue canadienne du vieillissement · doi:10.1017/s0714980815000021 · Cited by 7 · see citing works
Treatment preferences among adults with normal cognition and cognitive impairment
Owsley, K. M., Langa, K. M., Macis, M., & Nicholas, L. H. (2022) · Journal of the American Geriatrics Society · doi:10.1111/jgs.18032 · Cited by 6 · see citing works
Lu, P., Kong, D., Lee, J., & Shelley, M. (2021) · The Journals of Gerontology Series B · doi:10.1093/geronb/gbab077 · Cited by 6 · see citing works
Chua, T. H., Foong, J. R.-J., Tan, R. R., Rukasha, P. N., & Hullick, C. (2020) · Australian Health Review · doi:10.1071/ah19238 · Cited by 6 · see citing works
The current role of advance care planning for people with dementia - A narrative review
Kuzuya, M., Hirakawa, Y., Aita, K., & Miura, H. (2023) · Nippon Ronen Igakkai Zasshi Japanese Journal of Geriatrics · doi:10.3143/geriatrics.60.201 · Cited by 5 · see citing works
Characterization of patients with brain metastases referred to palliative care
Harrison, R. A., Tang, M. J., Shih, K. K., Khan, M. R., Pham, L., de Moraes, A. R., O'Brien, B. J., Bassett, R. L., & Bruera, E. D. (2024) · BMC Palliative Care · doi:10.1186/s12904-023-01320-3 · Cited by 6 · see citing works
Promoting the use of enduring powers of attorney in older adults: A literature review
Mitchell, L. K., Pachana, N. A., Wilson, J., Vearncombe, K., Massavelli, B., Byrne, G. J., & Tilse, C. (2013) · Australian Journal on Ageing · doi:10.1111/ajag.12043 · Cited by 5 · see citing works
Flaherty, C. N., Bail, J. R., Winstead, V., Carter, P. A., Smith, L., Hooper, G. L., Lerner, N. B., & Jablonski, R. A. (2024) · Geriatric Nursing · doi:10.1016/j.gerinurse.2024.11.017 · Cited by 3 · see citing works
Updated Review of Palliative Care in Dementia
Gottesman, R., & Blinderman, C. (2021) · Current Geriatrics Reports · doi:10.1007/s13670-020-00351-5 · Cited by 2 · see citing works
Breu, A. C. (2012) · Hospital Medicine Clinics · doi:10.1016/j.ehmc.2012.03.004 · Cited by 4 · see citing works
Al-Nasser, B., Attias, A., Baghdadi, H., Baumann, A., Bazin, J. E., Beydon, L., Bizouarn, P., Claudot, F., Éon, B., Fieux, F., et al. (2015) · Anesthésie & Réanimation · doi:10.1016/j.anrea.2015.03.001 · Cited by 4 · see citing works
Community-based early dementia advance care planning in the United States: A scoping review
Flaherty, C. N., Carter, P. A., Smith, L., Lerner, N. B., Hooper, G. L., & Bail, J. R. (2023) · Geriatric Nursing · doi:10.1016/j.gerinurse.2023.05.006 · Cited by 3 · see citing works
Porteny, T., Lynch, M., Covaleski, A., Tjia, J., GAZARIAN, P. K., Reich, A. J., Perez, S. M., Kennefick, K., Weissman, J. S., & Ladin, K. (2025) · BMC Palliative Care · doi:10.1186/s12904-025-01710-9 · Cited by 3 · see citing works
Chen, A. N., Chen, K. F., Chang, P.-C., Shih, F. J., Chen, C. R., Shih, F. J., & Huang, C. (2014) · Transplantation Proceedings · doi:10.1016/j.transproceed.2014.01.008 · Cited by 3 · see citing works
Dealing with uncertainty: biomarkers for the early detection of Alzheimer's disease
Perneczky, R., & Kurz, A. (2012) · International Psychogeriatrics · doi:10.1017/s1041610212001056 · Cited by 3 · see citing works
Factors influencing dementia patients' participation in advance care planning: A meta-analysis
Zhai, S., Lu, Y., Liu, Q., Dai, C., & Chen, C. (2024) · Geriatric Nursing · doi:10.1016/j.gerinurse.2024.10.014 · Cited by 2 · see citing works
Amano, T., Inoue, M., Dixit, S., & Tarafder, A. (2025) · American Journal of Geriatric Psychiatry · doi:10.1016/j.jagp.2025.06.006 · Cited by 2 · see citing works
Ryan, T. (2020) · International Psychogeriatrics · doi:10.1017/s1041610219001820 · Cited by 2 · see citing works
Ohanesian, N. (2023) · The Journal of Clinical Ethics · doi:10.1086/724230 · Cited by 1 · see citing works
Neuropalliative Care in the Emergency Department: Three Roles, One Goal
Hendershot, K. A., & Ouchi, K. (2025) · Neurocritical Care · doi:10.1007/s12028-025-02361-7 · Cited by 1 · see citing works
Neuropalliative Care in Dementia
Weisbrod, N. (2025) · CONTINUUM Lifelong Learning in Neurology · doi:10.1212/cont.0000000000001639 · Cited by 1 · see citing works
Transitions in Care for the Person with Dementia
Boltz, M. P. (2015) · Springer eBooks · doi:10.1007/978-3-319-18377-0_14 · Cited by 1 · see citing works
Services for People with Incipient Dementia
Lautenschlager, N. T., & Kurz, A. (2013) · Wiley eBooks · doi:10.1002/9781118378663.ch4
Emmett, C. P. (2012) · Digital Commons - University of South Florida (University of South Florida)
A Retrospective Study Describing Documentation of Advance Care Planning in a Long Term Care Setting
Linder, N. (2013) · Cedarville University eBooks · doi:10.15385/tmsn.2013.2
Lane, J. M., Zimmer, A., Quiñones-Cordero, M. M., & Sörensen, S. (2023) · Aging Neuropsychology and Cognition · doi:10.1080/13825585.2023.2223902
Palliative and Advance Care Planning in Dementia
Nagarajan, A. S., Donley, B., & Garcia-Pittman, E. C. (2024) · doi:10.1093/med/9780197690024.003.0019
Kim, J., Cho, K., Hwang, Y. Y., Lee, J., Baek, S. Y., Yang, J., Park, Y., & Heo, S. (2025) · Dementia · doi:10.1177/14713012251326463
Navigating Advance Care Planning for Individuals With Young-Onset Dementia: A Systematic Review
Yang, C., & Wu, Y. (2026) · Journal of the American Medical Directors Association · doi:10.1016/j.jamda.2025.106081
Wu, X., Zhao, W., Yao, X., Wu, J., Huang, Y., Han, Y., Zhuang, H., & Zhao, Y. (2026) · BMC Palliative Care · doi:10.1186/s12904-026-02050-y
Zhang, X., Wang, J., Chen, F., Hu, X., & Qu, Y. (2026) · Journal of Advanced Nursing · doi:10.1111/jan.70521
Dening, K. H. (2014) · UCL Discovery (University College London)
- Authors
- Garand, L., Dew, M. A., Lingler, J. H., & DeKosky, S. T.
- Affiliations
- University of Pittsburgh (US)
- Corresponding author
- Garand, Linda
- Venue
- The American Journal of Geriatric Psychiatry
- Publisher
- Elsevier BV
- Published
- 2011-08
- Volume
- 19
- Issue
- 8
- Pages
- 712-720
- ISSN
- 1064-7481 (ISSN-L)
- PMC
- PMC3145957
- OpenAlex
- W1974500301
- Cited by
- 84
- References
- 48
- Citations by year
- 2026: 3 · 2025: 5 · 2024: 4 · 2023: 7 · 2022: 7 · 2021: 8 · 2020: 4 · 2019: 6 · 2018: 9 · 2017: 4 · 2016: 1 · 2015: 6 · 2014: 7 · 2013: 6 · 2012: 7
- FWCI
- 6.27
- Type
- journal article
- Language
- en
- Open access
- green
- www.ncbi.nlm.nih.gov
- Locations
- American Journal of Geriatric Psychiatry (publishedVersion)
- PubMed (publishedVersion)
- PubMed Central (acceptedVersion)
- DigitalGeorgetown (Georgetown University Library) (submittedVersion)
- Funders
- National Institute on Aging (AG 05-133, P50AG005133)
- National Institute of Mental Health (K23MH070719, MH070719)
- Topics
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Social Sciences › Psychology › Clinical Psychology › Healthcare Decision-Making and Restraints
- Keywords
- advance care planning, advance directives, living wills, durable power of attorney, mild cognitive impairment, Alzheimer's disease, decisional incapacity, age differences, sex differences, marital status, family history of dementia, depressive disorders, older adults
- MeSH terms
- Aged, Alzheimer Disease, Cognition Disorders, Depression, Female, Follow-Up Studies, Humans, Male, Middle Aged, Pennsylvania, Retrospective Studies, Geriatric Assessment, Incidence, Advance Directives, Advance Care Planning
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review