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Cited by 5Palliative and Oncologic CareNursing care and researchPalliative Care and End-of-Life Issues

The DOI matches its Crossref record; 9 of the 9 references it cites were found in a registry or an index.

The Experiences of Nurses as Double-Duty Caregivers for a Family Member at the End of Life: Interpretive Description

Basley, Sandra A., Ferszt, Ginette G., DeSanto-Madeya, Susan·2024·Journal of Hospice & Palliative Nursing
DOI 10.1097/njh.0000000000001009
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Abstract

Increasing numbers of individuals with complex, advanced illnesses are living longer and being cared for in the home by family members. As a result, family caregivers often experience physical, emotional, psychological, and social distress. A unique subset of this population are nurses who find themselves providing care in both their family lives and work lives, a phenomenon known as "double-duty caregiving." This study explored the experiences of nurses providing end-of-life care for family members while continuing to work as a nurse and the consequences of this experience. A qualitative design, using semistructured, in-depth interviews, was used to capture the double-duty caregivers' experiences. Four overarching themes were identified: It Takes a Village, Driving the Bus, Juggling Many Hats, and Moving Through and Looking Back. These themes captured the components of a support system that are essential for the double-duty caregiver to perform this work, the multifaceted expectations placed upon the double-duty caregiver, the double-duty caregiver's relentless need to balance multiple roles, and the immediate and long-term impact of double-duty caregiving. As nurses, we must acknowledge the need for self-care during this experience, and as a profession, we must provide support for the double-duty caregiver to preserve their personal and professional well-being.

Overview

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Crossref · 10.1097/njh.0000000000001009

Cites

9 of 9 references verified0 citation errors · 0 not checkable

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Citations

Cites

Research works printed but not linked: 1

  1. 2020, Support for informal caregiver in Canada: a scoping review from a hospice and palliative/end-of-life care lens, J Palliat Care, 1

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Metadata

Authors
Basley, S. A., Ferszt, G. G., & DeSanto-Madeya, S.
Affiliations
University of Rhode Island (US)
Corresponding author
Basley, Sandra A.
ORCID
Venue
Journal of Hospice & Palliative Nursing
Publisher
Ovid Technologies (Wolters Kluwer Health)
Published
2024-01-08
Volume
26
Issue
3
Pages
132-139
ISSN
  • 1522-2179 (ISSN-L)
  • 1539-0705
DOI
10.1097/njh.0000000000001009
OpenAlex
W4390739383
Cited by
5
References
9
Citations by year
2026: 4 · 2025: 1
FWCI
2.06
Type
journal article
Language
en
Open access
closed
Locations
  • Journal of Hospice and Palliative Nursing (publishedVersion)
  • PubMed (publishedVersion)
Topics
  • Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative and Oncologic Care
  • Health Sciences › Nursing › Research and Theory › Nursing care and research
  • Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
Keywords
end-of-life care, family caregivers, home care, caregiver burden, support systems, self-care, caregiver well-being, advanced disease
MeSH terms
Adult, Family, Female, Humans, Interviews as Topic, Male, Middle Aged, Nurses, Terminal Care, Caregivers, Qualitative Research

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