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Cited by 754Nursing care and researchIntergenerational Family Dynamics and CaregivingFamily Caregiving in Mental Illness

The DOI matches its Crossref record; 123 of the 123 references it cites were found in a registry or an index.

Family Caregiving for Older Adults

Open access
Schulz, Richard, Beach, Scott R., Czaja, Sara J., Martire, Lynn M., Monin, Joan K.·2020·Annual Review of Psychology
DOI 10.1146/annurev-psych-010419-050754PMC PMC7291827
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Abstract

Family members are the primary source of support for older adults with chronic illness and disability. Thousands of published empirical studies and dozens of reviews have documented the psychological and physical health effects of caregiving, identified caregivers at risk for adverse outcomes, and evaluated a wide range of intervention strategies to support caregivers. Caregiving as chronic stress exposure is the conceptual driver for much of this research. We review and synthesize the literature on the impact of caregiving and intervention strategies for supporting caregivers. The impact of caregiving is highly variable, driven largely by the intensity of care provided and the suffering of the care recipient. The intervention literature is littered with many failures and some successes. Successful interventions address both the pragmatics of care and the emotional toll of caregiving. We conclude with both research and policy recommendations that address a national agenda for caregiving.

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Crossref · 10.1146/annurev-psych-010419-050754

Cites

123 of 123 references verified0 citation errors · 0 not checkable

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  • Lebanese family members are traditionally expected to assist older relatives with everyday tasks and provide emotional support and companionship.

    “Lebanese family members are traditionally expected to assist older relatives with everyday tasks, including household chores, shopping, bill payment, mobility, bathing, dressing, and medication management7,8, as well as providing emotional support and companionship7,9.”

    From Examining burden among caregivers of community-dwelling older adults in Lebanon (2025) · cites this paper as [8]

    The Introduction and Caregiving Roles sections describe family caregivers helping with daily tasks, medical care, emotional support, and social connections. They do not establish that Lebanese family members in particular are traditionally expected to provide this care. Page numbers were not available in our copy. (LLM, conf=0.86)

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  • This may be explained by greater direct involvement in informal caregiving in older compared to younger adults.

    “This may be explained by a greater direct involvement in informal caregiving in older compared to younger adults [42].”

    From Dementia is (not) a natural part of ageing: a cross-sectional study on dementia knowledge and misconceptions in Swiss and Italian young adults, adults, and older adults (2022) · cites this paper as [42]

    The Prevalence of Elder Caregiving section distinguishes older spousal caregivers from younger adult-child caregivers and says spouses are more likely to feel caregiving is an obligation. It does not say that older adults are more directly involved in informal caregiving than younger adults. Searches for age differences in direct care, caregiving hours, and involvement found no comparison establishing that claim. (LLM, conf=0.73)

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Citations

Cites

Flagged first, then by citations

Research works printed but not linked: 12

  1. Beach SR, 2019, J. Gerontol. B.
  2. Bittman M, 2007, AJSI, 42, 255
  3. Gwyther LP, 2015, Generations, 39, 105
  4. Lachs M, 2011, Under the radar: New York State Elder Abuse Prevalence Study
  5. Lopez-Hartmann M, 2012, Int. J. Integr. Care, 12, e133
  6. Natl. Alliance Caregiv. AARP Public Policy Inst, 1997, Family caregiving in the U.S.: findings from a national survey
  7. Natl. Alliance Caregiv. AARP Public Policy Inst, 2004, Caregiving in the U.S.: 2004 report
  8. Natl. Alliance Caregiv. AARP Public Policy Inst, 2009, Caregiving in the U.S.: 2009 report
  9. Natl. Alliance Caregiv. AARP Public Policy Inst, 2015, Caregiving in the U.S.: 2015 report
  10. Reinhard SC, 2012, Home alone: family caregivers providing complex chronic care
  11. Schulz R, 2010, The Role of Human Factors in Home Health Care, Workshop Summary, 117
  12. Vazeou Nieuwenhuis A, 2018, Innov. Aging, 2, igy026

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Metadata

Authors
Schulz, R., Beach, S. R., Czaja, S. J., Martire, L. M., & Monin, J. K.
Affiliations
  • University of Pittsburgh (US)
  • Cornell University (US)
  • Pennsylvania State University (US)
  • Yale University (US)
ORCID
Venue
Annual Review of Psychology
Publisher
Annual Reviews
Published
2020-01-04
Volume
71
Issue
1
Pages
635-659
ISSN
  • 0066-4308 (ISSN-L)
  • 1545-2085
DOI
10.1146/annurev-psych-010419-050754
PMC
PMC7291827
OpenAlex
W2997582259
Cited by
754
References
123
Citations by year
2026: 133 · 2025: 197 · 2024: 131 · 2023: 109 · 2022: 75 · 2021: 84 · 2020: 22
FWCI
18.38
Type
journal article
Language
en
Open access
Locations
  • Annual Review of Psychology (publishedVersion)
  • PubMed (publishedVersion)
  • PubMed Central (acceptedVersion)
Funders
National Institute of Nursing Research (R01NR009573)
Topics
  • Health Sciences › Nursing › Research and Theory › Nursing care and research
  • Social Sciences › Sociology and Political Science › Intergenerational Family Dynamics and Caregiving
  • Social Sciences › Psychology › Clinical Psychology › Family Caregiving in Mental Illness
Keywords
family caregiving, older adults, caregiver burden, chronic disease, disability, caregiver health outcomes, caregiver interventions, chronic stress, caregiver support policy
MeSH terms
Aging, Exercise Therapy, Family, Humans, Psychotherapy, Respite Care, Stress, Psychological, Caregivers

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