Barriers to user involvement in mental health services for people with learning disability
Abstract
This paper explores some of the issues and barriers to service user involvement for people with learning disability in mental health settings. In particular the paper focuses on barriers to involvement including staff attitudes and the involvement of service users in their own assessment and treatment. The issue of getting people involved in their own care is addressed and is highlighted using examples of good practice.
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Poor attitudes held by both healthcare professionals and non-health professionals, across both primary and acute healthcare provider settings, is a recurring theme in the review's identified studies.
“Poor attitudes held by both healthcare professionals and non-health professionals, across both primary and acute healthcare provider settings, is a recurring theme in the review’s identified studies.22,31–33”
From Barriers and facilitators to primary health care for people with intellectual disabilities and/or autism: an integrative review (2020) · cites this paper as [33]
Cites
Valuing people: a New Strategy for Learning Disability for the 21st Century
Whitaker, S., & Porter, J. L. B. (2002) · British Journal of Learning Disabilities · doi:10.1046/j.1468-3156.2002.00205.x · Cited by 1,390 · see citing works
Valuing people now: a new three-year strategy for people with learning disabilities
Lin, H. (2009) · Cited by 336 · see citing works
Perkins, R. E. (2001) · The British Journal of Psychiatry · doi:10.1192/bjp.179.1.9 · Cited by 88 · see citing works
Clare, I. C. H., Murphy, G. H., Cox, D. L., & Chaplin, E. (1992) · Criminal Behaviour and Mental Health · doi:10.1002/cbm.1992.2.3.253 · Cited by 72 · see citing works
Self-citationLiving with risk: Mental health service user involvement in risk assessment and management
Langan, J., & Lindow, V. (2004) · Bristol Research (University of Bristol) · Cited by 70 · see citing works
Krauss, D. A., Lieberman, J. D., & Olson, J. (2004) · Behavioral Sciences & the Law · doi:10.1002/bsl.621 · Cited by 68 · see citing works
Krauss, D. A., & Lee, D. H. (2003) · International Journal of Law and Psychiatry · doi:10.1016/s0160-2527(02)00211-x · Cited by 49 · see citing works
The experiences of mental health service users as mental health professionals
Lindow, & Matthews (1998) · Bristol Research (University of Bristol) · Cited by 12 · see citing works
Langan, J. N., & Lindow, V. (2001) · Bristol Research (University of Bristol) · Cited by 1 · see citing works
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Doherty, A. J., Atherton, H., Boland, P., Hastings, R., Hives, L., Hood, K., James-Jenkinson, L., Leavey, R., Randell, E., Reed, J., et al. (2020) · BJGP Open · doi:10.3399/bjgpopen20x101030 · Cited by 244 · see citing works
‘Just look at my face’: co-production of a positive behavioural support plan
Ham, K., & Davies, B. E. L. (2018) · Learning Disability Practice · doi:10.7748/ldp.2018.e1883 · Cited by 13 · see citing works
McCarthy, J. M., Chaplin, E., & Bouras, N. (2022) · Springer eBooks · doi:10.1007/978-3-319-95720-3_35 · Cited by 5 · see citing works
Self-citationExperiences of using a health community team service for people with a learning disability
Owen, K., Evers, C., & Hewitt, O. (2018) · Learning Disability Practice · doi:10.7748/ldp.2018.e1895 · Cited by 3 · see citing works
Almas, A., Lysaght, R. M., Farrell, S., & Heffernan, L. (2025) · Journal of Applied Research in Intellectual Disabilities · doi:10.1111/jar.70033 · Cited by 2 · see citing works
Community Mental Health Services
O’Hara, J., Chaplin, E., Lockett, J., & Bouras, N. (2013) · Autism and child psychopathology series · doi:10.1007/978-1-4614-8250-5_21 · Cited by 1 · see citing works
Self-citationHill, H. (2012) · ORCA Online Research @Cardiff (Cardiff University)
- Authors
- Chaplin, E., Halls, S., Carlile, G., Hardy, S., & Joyce, T.
- Affiliations
- South London and Maudsley NHS Foundation Trust (GB)
- ORCID
- Chaplin, Eddie
- Venue
- Advances in Mental Health and Learning Disabilities
- Publisher
- Emerald
- Published
- 2009-09-23
- Volume
- 3
- Issue
- 3
- Pages
- 28-33
- ISSN
- 1753-0180 (ISSN-L)
- 2042-8332
- OpenAlex
- W2138446741
- Cited by
- 7
- References
- 9
- Citations by year
- 2025: 1 · 2022: 1 · 2020: 1 · 2018: 2 · 2013: 1 · 2012: 1
- FWCI
- 0.60
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Advances in Mental Health and Learning Disabilities (publishedVersion)
- Topics
- Health Sciences › Health Professions › General Health Professions › Mental Health and Patient Involvement
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Down syndrome and intellectual disability research
- Social Sciences › Psychology › Clinical Psychology › Psychiatric care and mental health services
- Keywords
- user participation, service user involvement, learning disabilities, mental health services, barriers to participation, employee attitudes, self-assessment, self-determination, shared decision-making, best practices
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