The DOI matches its Crossref record; 69 of the 69 references it cites were found in a registry or an index.
Lay experiences of health and illness: past research and future agendas
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Abstract This article presents an overview and appraisal of work published during the 25‐year history of Sociology of Health and Illness that has contributed to our understandings of lay experiences of health and illness. It highlights an important and welcome shift from an ‘outsider’ perspective as epitomised in the Parsonian concept of the ‘sick role’ to one that focuses directly upon people's subjective experiences within the contexts of their daily lives. Particular attention is paid to the ways in which early work by Bury (1982), Charmaz (1983), and Williams (1984) has helped pave the way to an understanding of lay experiences that is sensitive to a broad range of micro‐ and macro‐contextual influences. The article looks to the future as well as the past by pointing to ‘uncharted terrain’ and ‘missing voices’ within the medical sociology literature. It discusses some recently published work in the Journal that has opened the door to what may prove to be a 21 st century sociology of health and illness. It concludes with a call for medical sociologists to be more open‐minded to the use of novel and seemingly unconventional theoretical and methodological approaches.
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“Experiences of health are more intangible and elusive than experiences of illness, making the former much more challenging to study (23).”
From Concepts and definitions of health and health-related values in the knowledge landscapes of the digital society (2017) · cites this paper as [23]
Citations
Cites
Distinction: A Social Critique of the Judgement of Taste*
Bourdıeu, P. (2018) · Routledge eBooks · doi:10.4324/9781315680347-10 · Cited by 20,325
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Warner, M., Bourdieu, P., & Nice, R. (1985) · MLN · doi:10.2307/2905454 · Cited by 14,110
(1951) · Cited by 8,693
Central Problems in Social Theory
Giddens, A. (1979) · Bloomsbury Publishing Plc eBooks · doi:10.1007/978-1-349-16161-4 · Cited by 8,061
Chronic illness as biographical disruption
Bury, M. (1982) · Sociology of Health & Illness · doi:10.1111/1467-9566.ep11339939 · Cited by 3,960
Loss of self: a fundamental form of suffering in the chronically ill
Charmaz, K. (1983) · Sociology of Health & Illness · doi:10.1111/1467-9566.ep10491512 · Cited by 1,794
(1965) · Medical Entomology and Zoology · Cited by 1,510
Leder, D. (1990) · Medical Entomology and Zoology · Cited by 1,326
The Imperative of Health: Public Health and the Regulated Body
Lupton, D. A. (1995) · SAGE Publications Ltd eBooks · doi:10.4135/9781446221976 · Cited by 1,271
The New Public Health: Health and Self in the Age of Risk
Petersen, A. R., & Lupton, D. A. (2000) · SAGE Publications Ltd eBooks · doi:10.4135/9781446217429 · Cited by 1,265
Research works printed but not linked: 10
- Beck U., 1992, Risk Society
- Bury M., 1988, Living with Chronic Illness: the Experiences of Patients and their Families
- Coward R., 1989, The Whole Truth: the Myth of Alternative Health
- Friedson E., 1970, Profession of Medicine
- Giddens A., 1990, The Problems of Modernity
- Giddens A., 1991, Modernity of Self‐Identity
- Giddens A., 1994, Beyond Left and Right
- 10.1111/j.1467-9566.1997.tb00015.x · DOI
- Illich I., 1976, Medical Nemesis: the Expropriation of Heath
- Saunders C., 1993, Some challenges that face us, Palliative Medicine 7, 1, 77
Cited by
Sorted by citations
Items 301–328 of 328
Designing Publicly Justified Healthy Eating Efforts
Barnhill, A., & Bonotti, M. (2022) · Oxford University Press eBooks · doi:10.1093/oso/9780190937881.003.0008
Political Philosophy and Healthy Eating Efforts
Barnhill, A., & Bonotti, M. (2022) · Oxford University Press eBooks · doi:10.1093/oso/9780190937881.003.0003 · Cited by 1
The Ethical Dilemmas of (Un)Healthy Eating
Barnhill, A., & Bonotti, M. (2022) · Oxford University Press eBooks · doi:10.1093/oso/9780190937881.003.0002
Unreasonable Healthy Eating Efforts
Barnhill, A., & Bonotti, M. (2022) · Oxford University Press eBooks · doi:10.1093/oso/9780190937881.003.0007
Healthy Eating Efforts and Millian Liberalism
Barnhill, A., & Bonotti, M. (2022) · Oxford University Press eBooks · doi:10.1093/oso/9780190937881.003.0004
Barnhill, A., & Bonotti, M. (2022) · Oxford University Press eBooks · doi:10.1093/oso/9780190937881.003.0009
Healthy Eating Efforts and Paternalism
Barnhill, A., & Bonotti, M. (2022) · Oxford University Press eBooks · doi:10.1093/oso/9780190937881.003.0005
Liberalism, Public Reason, and Healthy Eating Efforts
Barnhill, A., & Bonotti, M. (2022) · Oxford University Press eBooks · doi:10.1093/oso/9780190937881.003.0006
Identification, understanding, and response
Judge, J. M. (2015) · Digital Repository Service (Northeastern University) · doi:10.17760/d20199944
Withey, A. (2016) · Manchester University Press eBooks · doi:10.7765/9780719094989.00022
Observations of health and illness from the perspective of the lay experiences
Mamatha, B. Y. (2022) · International Journal of Health Sciences · doi:10.53730/ijhs.v6ns1.8610
A Family „Affear‟: Three Generations of Agoraphobics
Green, B. A., & Elizabeth, S. (2009)
Alyazidi, F., Shakely, D., Petzold, M., Alyazidi, F., & Hussain‐Alkhateeb, L. (2023) · medRxiv · doi:10.1101/2023.02.16.23286020
Barnhill, A., & Bonotti, M. (2022) · Oxford University Press eBooks · doi:10.1093/oso/9780190937881.002.0003
Bondio, M. G., Herrmann, I. F., & Montani, M. C. (2024) · Springer eBooks · doi:10.1007/978-3-662-70039-6_18
Billias, N., & MacEachen, E. (2025) · Journal of Occupational Rehabilitation · doi:10.1007/s10926-025-10287-2
Burton, C. D., Mooney, C., Sutton, L., White, D. A., Dawson, J., Fryer, K., Greco, M., Horspool, M. J., Neilson, A. R., Rowlands, G., et al. (2025) · Health and Social Care Delivery Research · doi:10.3310/kwgx2382
Age and life stage in the experience of amyotrophic lateral sclerosis: a scoping review
Parks, A., Conn, L. G., Amog, K., Bodmer, N. S., King, J. W., McLaren, A., Reid, M., Kishibe, T., Abrahão, A., Zinman, L. H., et al. (2025) · Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration · doi:10.1080/21678421.2025.2515914 · Cited by 1
Modern Symbolic Interaction Theory and Health
Charmaz, K. C., & Belgrave, L. L. (2025) · Springer eBooks · doi:10.1007/978-3-031-92456-9_2
Salas, C. A., Núñez, L., & Márquez, F. (2025) · Social Science & Medicine · doi:10.1016/j.socscimed.2025.118679
Beckman, L. J., Hassler, S., & Hellström, L. (2024) · Figshare · doi:10.6084/m9.figshare.26617402
Calix, K. K. (2026) · Palliative & Supportive Care · doi:10.1017/s1478951526101965
Who are the experts? A study of the everyday enactment of expertise in mental health care
Kirkegaard, S. (2026) · Current Sociology · doi:10.1177/00113921261437422
Metadata
- Authors
- Julia, L.
- Venue
- Sociology of Health & Illness
- Publisher
- Wiley
- Published
- 2003-03-14
- Volume
- 25
- Issue
- 3
- Pages
- 23-40
- ISSN
- 0141-9889 (ISSN-L)
- 1467-9566
- OpenAlex
- W1504678047
- Cited by
- 328
- References
- 69
- Citations by year
- 2026: 3 · 2025: 6 · 2024: 6 · 2023: 4 · 2022: 18 · 2021: 12 · 2020: 10 · 2019: 10 · 2018: 13 · 2017: 16 · 2016: 17 · 2015: 24 · 2014: 20 · 2013: 10 · 2012: 16
- FWCI
- 10.30
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Locations
- Sociology of Health & Illness (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Social Sciences › Education › Qualitative research in health
- Health Sciences › Health Professions › General Health Professions › Health, Medicine and Society
- Social Sciences › Arts and Humanities › History and Philosophy of Science › Medicine, History, and Philosophy
- Keywords
- medical sociology, sick role, subjective experience, emic perspective, illness experience, theoretical and methodological approaches
- MeSH terms
- Attitude to Health, Chronic Disease, Humans, Research, Self Concept, Sociology, Medical
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