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Cited by 18Palliative Care and End-of-Life IssuesChronic Obstructive Pulmonary Disease (COPD) ResearchPalliative and Oncologic Care

Palliative care understanding and end‐of‐life decisions in chronic obstructive pulmonary disease

Fahim, Ahmed, Kastelik, Jack A.·2014·The Clinical Respiratory Journal
DOI 10.1111/crj.12073
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Abstract

Introduction: Chronic obstructive pulmonary disease (COPD) is one of the leading causes of respiratory morbidity and mortality with limited data on palliative care and evidence of reluctance to end‐of‐life discussions. Objectives: The primary objective of this study was to evaluate the understanding of palliative care as an option in COPD. Moreover, we wanted to identify any barriers to resuscitation discussions in this group of patients. Methods: We developed a questionnaire addressing the aims of the study. Patients with COPD were prospectively recruited into the study and completed palliative questionnaire, L eicester cough questionnaire, B org dyspnoea index and Medical Research Council dyspnoea scale. Results: The patient population was predominantly male (60%) with mean age of 70 years (range 43–87 years). The mean forced expiratory volume in 1 s was 1.0 (range 0.3–2.3 L). The mean body mass index of the cohort was 24.3 (standard deviation 6.7, range 14.5–42). Ten patients (33%) were on home oxygen. Thirteen (43%) patients understood the term non‐invasive ventilation, and 11 of those would consider it again if needed. Only 13% of patients knew that palliative care is an option in COPD. Eleven patients understood the term cardiopulmonary resuscitation, and only five (16%) ever had a discussion regarding resuscitation. Conclusion: This study demonstrates that there is extremely limited awareness of palliative care in patients with COPD. Moreover, the barriers to the end‐of‐life discussions should be explored to improve the end‐of‐life care in this disease.

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Crossref · 10.1111/crj.12073

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  • Patients need comprehensive information on living with home mechanical ventilation, tailored to their needs, especially about adverse events.

    “Indeed, they need to receive comprehensive information on living with HMV, tailored to their needs [14–16], especially about adverse events [17].”

    From Life Experiences in Neuromuscular Tracheotomized Patients in Times of Covid-19 (2023) · cites this paper as [15]

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Authors
Fahim, A., & Kastelik, J. A.
Affiliations
  • New Cross Hospital (GB)
  • Castle Hill Hospital (GB)
Corresponding author
Fahim, Ahmed
ORCID
Venue
The Clinical Respiratory Journal
Publisher
Wiley
Published
2014-01-16
Volume
8
Issue
3
Pages
312-320
ISSN
  • 1752-6981 (ISSN-L)
  • 1752-699X
DOI
10.1111/crj.12073
OpenAlex
W1598637222
Cited by
18
References
38
Citations by year
2024: 3 · 2023: 3 · 2022: 1 · 2021: 2 · 2020: 3 · 2017: 3 · 2016: 1 · 2015: 2
FWCI
1.02
Type
journal article
Language
en
Open access
closed
Licence
onlinelibrary.wiley.com/termsAndConditions#vor (vor)
Locations
  • The Clinical Respiratory Journal (publishedVersion)
  • PubMed (publishedVersion)
Topics
  • Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
  • Health Sciences › Medicine › Pulmonary and Respiratory Medicine › Chronic Obstructive Pulmonary Disease (COPD) Research
  • Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative and Oncologic Care
Keywords
chronic obstructive pulmonary disease, palliative care, end-of-life care, end-of-life discussions, cardiopulmonary resuscitation, patient awareness, non-invasive ventilation, dyspnea, home oxygen therapy
MeSH terms
Adult, Aged, Aged, 80 and over, Decision Making, Dyspnea, Female, Forced Expiratory Volume, Humans, Health Knowledge, Attitudes, Practice, Male, Middle Aged, Palliative Care, Prospective Studies, Surveys and Questionnaires, Severity of Illness Index, Cardiopulmonary Resuscitation, Pulmonary Disease, Chronic Obstructive

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