Returning home: Psychosocial care during the re-entry phase of cancer survivorship in rural Australia
Open accessAbstract
The purpose of this research was to highlight gaps in formal psychosocial care for cancer survivors in rural communities. The study was conducted in rural Victoria, Australia, and involved interviews with people with various stages of cancer progression, cancer diagnoses and survival times, who were interviewed about their experiences of psychosocial cancer care. Interviews focused on their experience of psychosocial care and were audio-recorded and transcribed verbatim. Data were thematically analysed to identify key themes. Findings demonstrate that psychosocial care is essentially informal within the re-entry period after cancer diagnosis and treatment. Despite current Australian clinical guidelines on psychosocial care for people with cancer, which indicate the need for the provision of formal psychosocial care, participants in this study largely cared for themselves, or received informal support from family, friends and community members. Many psychosocial needs remained unmet and professional support was lacking. While this study was conducted in rural Australia, many of our findings have been echoed in studies from other countries. The findings have implications for treatment protocols and discharge planning, health professional-patient-family relationships, and the long-term well-being of cancer survivors living in rural communities. A model for understanding the experience of formal supportive care during the re-entry phase of survivorship is proposed.
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Families in rural or remote settings have less access to psychosocial support than metropolitan families.
“Families in rural or remote settings have less access to psychosocial support [9,10] and experience more cancer-related financial impacts [11] than metropolitan families”
From Providing psychological support to parents of childhood cancer survivors: ‘cascade’ intervention trial results and lessons for the future (2021) · cites this paper as [9]
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- Authors
- Pascal, J., Johnson, N., Dickson-Swift, V., & Kenny, A.
- Affiliations
- La Trobe University (AU)
- Department of Public and Community Health; La Trobe Rural Health School; La Trobe University; Bendigo Vic. Australia
- Corresponding author
- Pascal, J.
- ORCID
- Venue
- European Journal of Cancer Care
- Publisher
- Hindawi Limited
- Published
- 2014-08-28
- Volume
- 24
- Issue
- 1
- Pages
- 39-49
- ISSN
- 0961-5423 (ISSN-L)
- OpenAlex
- W1516662396
- Cited by
- 30
- References
- 57
- Citations by year
- 2026: 2 · 2025: 1 · 2024: 3 · 2023: 2 · 2022: 4 · 2021: 6 · 2020: 2 · 2019: 1 · 2018: 4 · 2017: 1 · 2016: 3 · 2015: 1
- FWCI
- 0.81
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Locations
- European Journal of Cancer Care (publishedVersion)
- PubMed (publishedVersion)
- BGRO - Business, Governance and Religious Organisations Repository (submittedVersion)
- Topics
- Health Sciences › Medicine › Oncology › Cancer survivorship and care
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Childhood Cancer Survivors' Quality of Life
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative and Oncologic Care
- Keywords
- cancer survivorship, psychosocial care, rural health, informal support, discharge planning, patient experience, family support, rural Victoria
- MeSH terms
- Adult, Aged, Aged, 80 and over, Female, Health Services Accessibility, Humans, Male, Middle Aged, Neoplasms, Professional-Patient Relations, Rural Population, Social Support, Victoria, Survival Rate, Survivors, Rural Health Services, Qualitative Research
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