Patient and public engagement in research and health system decision making: A systematic review of evaluation tools

Boivin, Antoine, L'Espérance, Audrey, Gauvin, François‐Pierre, Dumez, Vincent, Macaulay, Ann C., Lehoux, Pascale, Abelson, Julia·2018·Health Expectations

Cited by (285)

Items 101–200 of 285

  1. Engaging patients in anesthesiology research: a rewarding frontier
    Michael Verret, Dean A. Fergusson, Stuart Gordon Nicholls, Megan Graham, Fiona Zivkovic, Maxime Lê, Allison Geist, Nhat Hung Lam, Ian D. Graham, Alexis F. Turgeon et al. · 2023 · Canadian Journal of Anesthesia/Journal canadien d anesthésie
  2. Evaluating the feasibility and preliminary efficacy of a Cognitive Occupation-Based programme for people with Multiple Sclerosis (COB-MS): protocol for a feasibility cluster-randomised controlled trial
    Christopher P. Dwyer, Alberto Alvarez‐Iglesias, Robert A. Joyce, Timothy J. Counihan, Dympna Casey, Sinéad M. Hynes · 2020 · Trials
  3. Using shared mental models to conceptualize patients as professionals, decision-makers, collaborators, and members of interprofessional healthcare teams
    Umair Majid · 2020 · Patient Experience Journal
  4. From intent to implementation: Factors affecting public involvement in life science research
    John A. Burns, Sinéad Holden, Kornelia Korzec, Emma Dorris · 2021 · PLoS ONE
  5. A Novel Strategy to Classify Chronic Patients at Risk: A Hybrid Machine Learning Approach
    Fabián Silva-Aravena, Hugo Núñez Delafuente, César A. Astudillo · 2022 · Mathematics
  6. Engaging Older Adults With Cancer and Their Caregivers to Set Research Priorities Through Cancer and Aging Research Discussion Sessions
    Kristen R. Haase, Margaret Tompson, Steven Hall, Schroder Sattar, Shahid Ahmed · 2021 · Oncology nursing forum
  7. Measuring co-design in global health research: methodological challenges and decolonial innovations
    Jeneviève Mannell, Nwabisa Shai, Natsayi Chimbindi, Andrew Gibbs · 2025 · The Lancet Global Health
  8. Enhancing Neurofibromatosis Clinical Trial Outcome Measures Through Patient Engagement
    Vanessa L. Merker, Andrés J Lessing, Irene Moss, Maureen Hussey, Beverly Oberlander, Traceann Rose, Raquel D. Thalheimer, Tracy Wirtanen, Pamela L. Wolters, Andrea M. Gross et al. · 2021 · Neurology
  9. Evaluating the impact of engaging older adults and service providers as research partners in the co-design of a community mobility-promoting program: a mixed methods developmental evaluation study
    Maggie MacNeil, Julia Abelson, Caroline Moore, Shazelle Lindsay, Janet Adams, Aref Alshaikhahmed, Kamal Kishore Jain, Penelope Petrie, Rebecca Ganann · 2023 · Research Involvement and Engagement
  10. #HowNotToDoPatientEngagement: the engaging with purpose patient engagement framework based on a twitter analysis of community perspectives on patient engagement
    Brianna Dunstan, Francine Buchanan, Alies Maybee, Aïsha Lofters, Ambreen Sayani · 2023 · Research Involvement and Engagement
  11. Online and Remote Community-Engaged Facilitation: Pedagogical and Ethical Considerations and Commitments
    Sarah Switzer, Andrea Vela Alarcón, Rubén Gaztambide‐Fernández, Casey Burkholder, Erin Howley, Francisco Ibáñez-Carasco · 2024 · Journal of Participatory Research Methods
  12. Towards a feminist philosophy of engagements in health-related research
    Sonja Erikainen, Ellen A. Stewart, Ângela Marques Filipe, Sarah Chan, Sarah Cunningham‐Burley, Sophie Ilson, Gabrielle King, Carol Porteous, Stephanie Sinclair, Jamie Webb · 2021 · Wellcome Open Research
  13. Evaluating research co-production: protocol for the Research Quality Plus for Co-Production (RQ+ 4 Co-Pro) framework
    Robert K. D. McLean, Fred Carden, Ian D. Graham, Alice B. Aiken, Rebecca Armstrong, Judy Bray, Christine E. Cassidy, Olivia Daub, Erica Di Ruggiero, Leslie A. Fierro et al. · 2022 · Implementation Science Communications
  14. Implementing public involvement throughout the research process—Experience and learning from the GPs in EDs study
    Bridie Angela Evans, Andrew Carson‐Stevens, Alison Cooper, Freya Davies, Michelle Edwards, Barbara Harrington, Julie Hepburn, Tom Hughes, Delyth Price, Aloysius Niroshan Siriwardena et al. · 2022 · Health Expectations
  15. Tracking involvement over time: a longitudinal study of experiences among refugee parents involved as public contributors in health research
    Elin Lampa, Anna Sarkadi, Fatumo A. Osman, Ulrik Kihlbom, Georgina Warner · 2022 · International Journal of Qualitative Studies on Health and Well-Being
  16. Studying How Patient Engagement Influences Research: A Mixed Methods Study
    Deborah Anne Marshall, Nitya Suryaprakash, Danielle Chauncey Lavallee, Tamara L. McCarron, Sandra Zelinsky, Karis L. Barker, Gail MacKean, Maria Santana, Paul Moayyedi, Stirling Bryan · 2024 · Patient
  17. The impact of patient engagement on trials and trialists in Ontario, Canada: An interview study with IMPACT awardees
    Stuart Gordon Nicholls, Grace Fox, Zarah Monfaredi, Evelyn Poole, Chantelle Garritty, Alies Maybee, Justin Presseau, Beverley Shea, Dean A. Fergusson · 2022 · Research Involvement and Engagement
  18. Barriers and Enablers to Evaluating Outcomes From Public Involvement in Health Service Design: An Interpretive Description
    Nicola Lloyd, Nerida Hyett, Amanda J. Kenny · 2023 · Qualitative Health Research
  19. A rocky road but worth the drive: A longitudinal qualitative study of patient innovators and researchers cocreating research
    Carolina Wannheden, Sara S. Riggare, Jamie Linnéa Luckhaus, Hanna Jansson, My Sjunnestrand, Terese Stenfors, Carl Savage, Maria Reinius, Henna Hasson · 2023 · Health Expectations
  20. “I think there has to be a mutual respect for there to be value”: Evaluating patient engagement in a national clinical trial on de-implementation of low value care
    Holly Etchegary, Stefanie Linklater, D'Arcy Duquette, Gloria Wilkinson, Vanessa Francis, Erin Gionet, Andrea M. Patey, Jeremy Grimshaw · 2023 · Research Involvement and Engagement
  21. SI‐CBPAR : Towards structural indicators of community‐based participatory action research
    Beth E. Meyerson, Danielle M. Russell, Arlene N. Mahoney, Irene Garnett, Savannah Samorano · 2023 · Drug and Alcohol Review
  22. Trends in Government-Initiated Public Engagement in Canadian Health Policy From 2000 to 2021
    Roma Dhamanaskar, Katherine Boothe, Joanna Massie, Jeonghwa You, Danielle T. Just, Grace Kuang, Julia Abelson · 2024 · Healthcare policy
  23. Ameliorating epistemic injustice in practice: Communication strategies in a research project with refugee youth coresearchers
    Elin Inge, Anna Pérez‐Aronsson, Kalid Ibrahim, Reem Aljeshy, Anna Sarkadi, Georgina Warner · 2023 · Health Expectations
  24. A Tale of Two Perspectives: Harvesting System Views and User Views to Understand Patient Portal Engagement
    Jiawei Zhou, Rosa I. Arriaga, Hongfang Liu, Ming S. Huang · 2022 · IEEE International Conference on Healthcare Informatics (ICHI)
  25. Co-developing patient and family engagement indicators for health system improvement with healthcare system stakeholders: a consensus study
    Maria Santana, Sadia Ahmed, Paul Fairie, Sandra Zelinsky, Gloria Wilkinson, Tamara L. McCarron, Mikie Mork, Jatin Patel, Tracy Wasylak · 2023 · BMJ Open
  26. Quality of patient, family, caregiver and public engagement in decision-making in healthcare systems: a scoping review protocol
    Clayon B. Hamilton, M. Elizabeth Snow, Nancy Clark, Shannon G. Gibson, Maryam Dehnadi, Michelle L. Lui, Andrew Koster, Janet McLean, LINDA C. LI · 2019 · BMJ Open
  27. Perceptions of people with respiratory problems on physician performance evaluation—A qualitative study
    Carolin Sehlbach, Marjan Govaerts, Sharon Mitchell, Truus Teunissen, Frank W.J.M. Smeenk, Erik W. Driessen, Gernot G. U. Rohde · 2019 · Health Expectations
  28. Co-design of a personalised physical activity intervention for stroke survivors
    Natalie Ann Fini, Emily R. Ramage, Julie A Bernhardt, Erin Bicknell, Chris Tzefronis, Paul Fink, Erin Godecke, Jill Francis, Rebecca Wood, Nicole Li et al. · 2025 · Physiotherapy
  29. Professional perceptions of participatory practices in green stormwater infrastructure development
    Mahsa Adib, Hong Juan Wu, Travis Flohr · 2023 · PLOS Water
  30. Early technology review: towards an expedited pathway
    Leslie Levin, Murray I. Sheldon, Robert S. McDonough, Naomi Aronson, Maroeska Mariet Rovers, Charles Michael Gibson, Sean Tunis, Richard E. Kuntz · 2024 · International Journal of Technology Assessment in Health Care
  31. Establishing a standing patient advisory board in family practice research: A qualitative evaluation from patients' and researchers' perspectives
    Jennifer Engler, Fabian Engler, Meike Gerber, Franziska Brosse, Karen Voigt, Karola Mergenthal · 2024 · Health Expectations
  32. An overview of quantitative instruments and measures for impact in coproduction
    Stephen MacGregor · 2020 · Journal of Professional Capital and Community
  33. Changing Health-Related Behaviors 1: Patient-Oriented Research and Patient Engagement in Health Research
    Catherine Street, Laurie Twells, Toni Leamon, Lynn Taylor, Holly Etchegary · 2021 · Methods in molecular biology
  34. A scoping review of the globally available tools for assessing health research partnership outcomes and impacts
    Kelly Mrklas, Jamie M. Boyd, Sumair Shergill, Sera Merali, Masood Khan, Cheryl Moser, Lorelli S. Nowell, Amelia Goertzen, Liam A. Swain, Lisa Maria Pfadenhauer et al. · 2023 · Health Research Policy and Systems
  35. Determining the benefits and drawbacks of parents using personal connections and social networks for recruitment in research projects: a qualitative study
    Laesa Kim, Carrie Costello, Michael A. Golding, Chloé Janse van Rensburg, Jennifer L. P. Protudjer, Kristy D. M. Wittmeier · 2023 · Research Involvement and Engagement
  36. Indigenous youth engagement in research: a scoping review of community-based participatory action research (CBPAR) in Canada and the USA
    Carolyn M. Melro, Amy Bombay, Margaret Robinson, Debbie H. Martin, Kira Bombay, Lisa S. Hackett · 2024 · International Journal of Adolescence and Youth
  37. Engaging People With Lived Experience of Dementia in Research: Perspectives From a Multi-disciplinary Research Network
    Lauren Bechard, Katherine S. McGilton, Laura Elizabeth Middleton, Howard Mark Chertkow, Saskia Sivananthan, Jennifer Bethell · 2022 · Canadian Geriatrics Journal
  38. Consumer Engagement in Perioperative Clinical Trials
    Sophie K. A. Wallace, Tracey K Bucknall, Paul Stewart Myles · 2022 · Anesthesia & Analgesia
  39. Protocol: Assessing the impact of interest-holder engagement on guideline development: A systematic review
    Lyubov Lytvyn, Jennifer Petkovic, Joanne Khabsa, Olivia Magwood, Pauline Campbell, Ian D. Graham, Kevin C Pottie, Julia Bidonde, Heather Limburg, Danielle Pollock et al. · 2024 · Campbell Systematic Reviews
  40. Unpacking the potential of developmental evaluation in codesign work
    Alexis Buettgen, Samantha K. Micsinszki, Michelle P Phoenix, Gillian M. Mulvale, Michelle Wyndham‐West, Sean Park, Emma Bruce, Robert V. Fleisig, Karlie Rogerson, Louise Murray‐Leung et al. · 2022 · Health Expectations
  41. Evaluating public and patient involvement in interventional research – a newly developed checklist (EPPIIC) with application to the COB-MS feasibility trial
    Elise Pyne, Robert A. Joyce, Christopher P. Dwyer, Sinéad M. Hynes · 2024 · medRxiv
  42. Patient and public involvement in preclinical and medical research: Evaluation of an established programme in a Discovery‐Based Medical Research Institute
    Robyn A Smith, Judith Slocombe, Jo Cockwill, Kathy Minas, George Kiossoglou, Katya Gray, William Lawrence, Michelle Iddles, Clare L. Scott, Lorraine Ann O’Reilly · 2024 · Health Expectations
  43. Development of a self-management mobile app for bereaved adolescents: evaluating patient and public involvement
    Rebecca Rhodin, Rakel Eklund, Anneli Silvén Hagström, Atle Dyregrov, Josefin Sveen · 2024 · European Journal of Psychotraumatology
  44. Evaluating Public Participation in a Deliberative Dialogue: A Single Case Study
    Tiffany Scurr, Rebecca Ganann, Shannon L. Sibbald, Ruta Kristina Valaitis, Anita R. Kothari · 2022 · International Journal of Health Policy and Management
  45. Evaluation of parent and youth experiences in advisory groups as part of a mental healthcare clinical trial: protocol for a mixed-method study
    Jananee Rasiah, Stephen B. Freedman, Lee Macdonald, Kassi Prisnie, Mohamed Eltorki, Yaron Finkelstein, Gareth Hopkin, Maria Santana, Jennifer D. Thull‐Freedman, Antonia Schirmer Stang et al. · 2022 · BMJ Open
  46. The Report of Engagement in Community Research (REACH) Tool: A Strategy to Promote Transparency and Improve Planning in Community-Engaged Research
    Farrah Jacquez, Lisa M. Vaughn · 2025 · Journal of Participatory Research Methods
  47. A critical reflection on using the Patient Engagement In Research Scale (PEIRS) to evaluate patient and family partners' engagement in dementia research
    Joey Wong, Lillian Hung, Cates Bayabay, Karen Lok Yi Wong, Annette Berndt, Jim Mann, Lily Wong, Lynn Jackson, Mario Gregorio · 2024 · Frontiers in Dementia
  48. An auto-ethnographic study of co-produced health research in a patient organisation: unpacking the good, the bad, and the unspoken
    Astrid I.W.A. Janssens, Danielle Drachmann, Kristy Barnes-Cullen, Austin Carrigg, Henrik Thybo Christesen, Becky Futers, Yvette Ollada Lavery, Tiffany Palms, Jacob Sten Petersen, Pratik Shah et al. · 2024 · Research Involvement and Engagement
  49. Evaluating public and patient involvement in interventional research–A newly developed checklist (EPPIIC)
    Elise Pyne, Robert A. Joyce, Christopher P. Dwyer, Sinéad M. Hynes · 2024 · PLoS ONE
  50. Research Buddy partnership in a MD–PhD program: lessons learned
    Daniel J. Gould, Marion Glanville-Hearst, Samantha Bunzli, Peter Choong, Michelle M. Dowsey · 2023 · Research Involvement and Engagement
  51. Standard Involvement Is Not Enough: A Mixed Method Study of Enablers and Barriers in Research Meetings with Forced Migrants
    Elin Inge, Anna Sarkadi, A Tökés, Georgina Warner · 2023 · Journal of Refugee Studies
  52. Exploring the outcomes of research engagement using the observation method in an online setting
    Deborah Anne Marshall, Nitya Suryaprakash, Danielle Chauncey Lavallee, Karis L. Barker, Gail MacKean, Sandra Zelinsky, Tamara L. McCarron, Maria Santana, Paul Moayyedi, Stirling Bryan · 2023 · BMJ Open
  53. Involving parents of children treated for cancer in Sweden as public contributors to inform the design and conduct of an evaluation of internet-administered self-help for parents of children treated for cancer: a protocol
    Joanne Woodford, Christina Reuther, Johan Lars Ljungberg, Louise von Essén · 2024 · Research Involvement and Engagement
  54. Engaging patient and community stakeholders in the optimization of the Compassionate And Loving Mindset towards heart health risk (CALM Hearts) physical activity intervention: a description of initial work and protocol for future engagement activities
    Anna Maria Chudyk, Sasha M. Kullman, Donna Pool, Todd Ashley Duhamel, Maureen C. Ashe, Shaelyn M. Strachan · 2024 · Research Involvement and Engagement
  55. Patient involvement in research within the Gynecological Cancer InterGroup: A call to action for a systematic approach: Results from a survey
    Ivana Nohová, John Andrews, Benedicte Votan, Austin Miller, Jalid Sehouli, Regina Berger · 2023 · Health Science Reports
  56. The challenges of voluntary care provision for hospitalized patients with COVID‐19: A qualitative study of the public volunteers' experiences
    Fatemeh Karami, Alireza Nikbakht Nasrabadi, Camellia Torabizadeh, Monir Mazaheri, Leila Sayadi · 2024 · Health Expectations
  57. An evaluation of patient and public involvement ( PPI ) experience in NHS Talking Therapies for anxiety and depression services: A framework analysis and practical recommendations
    Irini Laura Verbist, Hannah Fabian, Dale Huey, Helen Louise Brooks, Amy Blakemore · 2024 · Counselling and Psychotherapy Research
  58. Public Involvement in Cancer Research: Collaborative Evaluation Using Photovoice
    Piotr Teodorowski, Melanie McInnes, Glen Dale, Linda D. Galbraith, Esme Radin, Karen Gold, Erica Wirrmann Gadsby · 2025 · JMIR Cancer
  59. Engaging People With Lived Experience in Mental Health Service Co-design in Ontario, Canada
    Laura Jane Brubacher, Kobisha Rajeswaran, Katie McDonald, Steve Keczem, Warren Dodd · 2025 · Journal of Prevention and Health Promotion
  60. From engagement to evidence: a scoping review of qualitative and quantitative measures of adult patient engagement in research
    Maya Zreik, Ashley Redding, Sara Santarossa · 2025 · Research Involvement and Engagement
  61. Returning aggregate research results to participants: a scoping review of current practices, preferences and challenges
    Betina Idnay, Yiwen Zhang, Kathleen Sandra Therese, Jordan Gabriela Nestor, Wendy K. Chung, Chunhua Weng · 2025 · BMJ Open
  62. Patient, Family, Caregiver, and Community Engagement in Research: A Sensibility Evaluation of a Novel Infographic and Planning Guide
    Andrew Theodore Giannini, Megan Leong, Kelvin Chan, Arman Ghaltaei, Eden Graham, Craig Craig Robinson, Malvina Nina Skorska, Andrea Cross, Sharon Gabison · 2022 · Physiotherapy Canada
  63. Engagement in Medication Communication During Transitions of Care for Rural Aged Care Residents and Family Caregivers: A Qualitative Study
    Alison Dowling, Elizabeth Manias · 2025 · Journal of Clinical Nursing
  64. A museum for the future heritage: house of Tehran’s auction with the neo-vernacular approach
    Nima Hashemi, Hamed Mazaherian, Farnaz Emami · 2021 · HBRC Journal
  65. Patient engagement in healthcare: a preliminary set of measures to evaluate patient engagement in the European Reference Networks.
    Diana Marinello, Ilaria Galetti, Dorica Dan, Ammi Sundqvist Andersson, Silvia Aguilera, Simone Louisse, Lenja Wiehe, Anne-Laure Aslanian, Ines Hernando Martin · 2022 · Rare Disease and Orphan Drugs Journal
  66. Collaborating with a Youth Council to Improve Chronic Pain Resources
    K. Wittmeier, Cara L. Brown, Francis Diaz, Heidi Pylypjuk, G. Restall, Polina Anang, K. Gerhold · 2023 · Canadian journal of pain = Revue canadienne de la douleur
  67. Control4Life: A randomized controlled trial protocol examining the feasibility and efficacy of a combined pelvic health rehabilitation and exercise fitness program for individuals undergoing prostatectomy.
    Stéphanie Bernard, Howard J. Evans, Nathan Y. Hoy, Kirsten Suderman, Bruce Cameron, John Sexsmith, Adam S. Kinnaird, Keith Francis Rourke, Lucas Dean, Edith Pituskin et al. · 2024 · Contemporary Clinical Trials
  68. A systematic review of co-production approaches that involve family members, loved ones, or carers in the development of mental health or substance use resources/interventions
    Jacqueline Carhoun, Raquel Nogueira‐Arjona, Richard Oliver de Visser, Pablo Romero‐Sanchiz · 2025 · Research Involvement and Engagement
  69. Defining Patient and Public Involvement and Engagement Tasks in Health Data Research: A Consensus Study
    Hayley G. Evans, Olivia Claire Robinson, Linda von Neree, Brenda Smith, Rosamund Yu, Ester Bellavia, Jan Speechley, Julia Walsh, Simon J. Stanworth, Robbie Foy · 2026 · Health Expectations
  70. Development of a 4Pi national involvement standards-based questionnaire to evaluate patient and public involvement
    Kathryn A. Watson, Richard Morton, Maria Milenova, Hema Chaplin, Erin Letbe-Holder, Fiona Hackett, Bernadette Khoshaba, Kia‐Chong Chua, Manuela Russo · 2026 · Research Involvement and Engagement
  71. Reducing tokenism in patient and public involvement by integrating the Gothenburg person-centred care framework, relational bridges and impact log – a co-produced position paper
    Jana Bergholtz, Sara Wallström, Hanna Gyllensten, Emma Forsgren, Ida Björkman, Joakim Öhlén, Inger Ekman, Axel Wolf · 2026 · Research Involvement and Engagement
  72. The Impact of COVID-19 on Patient, Family Member, and Stakeholder Research Engagement: Insights from the PREPARE NOW Study
    Teri A. Browne, Shamika Jones, Ashley Cabacungan, Katina Lang‐Lindsey, Lana Schmidt, George L. Jackson, Dori Schatell, Kelli Collins Damron, Patti L. Ephraim, Felicia Hill‐Briggs et al. · 2022 · Journal of General Internal Medicine
  73. Development and validation of a survey designed to measure patient experience of and preference for surgical wound care discharge education: A pilot study
    Georgia Tobiano, Wendy Pearl Chaboyer, Joan Carlini, Anne Maria Eskes, Elizabeth McInnes, Sharon Leanne Latimer, Rhonda J. Boorman, Zena E. H. Moore, Ann‐Mari Fagerdahl, Rachel Walker et al. · 2023 · Journal of Tissue Viability
  74. What matters to people with chronic musculoskeletal pain consulting general practice? Comparing research priorities across different sectors
    Liv Nyhave Andersen, Kristian Lyndrup Kristensen, Clara Margrethe Howell, Michael Skovdal Rathleff, Kirsten Fonager, Kristian Damgaard Lyng · 2023 · Scandinavian Journal of Pain
  75. The Consolidated Approach to Intervention Adaptation (CLARION): Developing and undertaking an empirically and theoretically driven intervention adaptation
    Lydia Ould Brahim, Sylvie Lambert, Nancy Feeley, Jane McCusker, Dan Bilsker, Mark J. Yaffe⃰, Rosetta Antonacci, Stéphanie Robins, John William Kayser, Christine Genest et al. · 2025 · Implementation Science Communications
  76. The role of stakeholder mapping and engagement in Mongolia during the implementation of the STREAM clinical trial for MDR-TB
    Bazarragchaa Tsogt, Meera Gurumurthy, Elisa Giallongo, Karen Sanders, Ganzorig Munkhjargal, Zayakhuu Khukhuukhen, Enkhjin Bolormaa, Enkhtuvshin Raash, Naranbat Nyamdavaa, Gay Bronson · 2025 · Trials
  77. Co-developing an intervention to facilitate safe and early transition to neonatal home care for very preterm infants: a mixed-method study evaluating the impact of patient and public involvement
    Sofia Arwehed, Ylva Thernström Blomqvist, Elin Carlsson Filipowicz, Anna Axelin · 2025 · Research Involvement and Engagement
  78. Community case study of patient and clinician early engagement in research on multiple chronic conditions using an implementation guide
    Constance van Eeghen, Jennifer O’Rourke Lavoie, Kairn Stetler Kelley, Georgia Brown, Beverly E. Canin, Juvena R. Hitt, Kennedy Paron, Tonica Robinson, Hanna Schweitzer, Haley Van Serke · 2025 · Frontiers in Medicine
  79. Meta-evaluation in Primary Health Care Evaluative Studies: a Scoping Review
    Osvaldo de Góes Bay, Cícera Renata Diniz Vieira Silva, Rayssa Horácio Lopes, Cláudia Santos Martiniano, Miguel Fuentealba-Torres, Ricardo Alexandre Arcêncio, Severina Alice da Costa Uchôa · 2022 · Research Square
  80. Co-Developing an impact model for evaluating the societal impact of participatory research approaches
    Magdalena Wailzer, Laura Soyer · 2022
  81. 4.3 Evaluating Research Coproduction
    Robert K. D. McLean, Ian D. Graham, Fred Carden · 2022
  82. Centering Racial Health Equity in Systematic Reviews Paper 6: Engaging racially and ethnically diverse stakeholders in evidence syntheses
    Nila A Sathe, Colleen Ovelman, Naykky Singh Ospina, Omar Dewidar, Elizabeth Terhune, Damian Francis, Vivian Andrea Welch, Patricia Cristine Heyn, Tiffany Gust Duque, Meera Viswanathan · 2024 · SSRN Electronic Journal
  83. Using a 3 stage process to create a consumer research contact list in a paediatric health setting: the PARTICIPATE project
    Fenella J. Gill, Catherine A. Pienaar, Tanya Jones · 2021 · Research Involvement and Engagement
  84. Involving Knowledge Users in Health Services Research: Collective Reflections and Learning From a National Evaluation of Recurrent Miscarriage Services
    Marita Hennessy, Rebecca Dennehy, Hannah O’Leary, Keelin O’Donoghue · 2024 · Health Expectations
  85. Patient, Family and Provider Priorities in ICU Rehabilitation: An Experience‐Based Co‐Design Study
    Jiyeon Kang, Sun Ju Chang, Mi‐Kyeong Jeon, Gee Young Suh, Chi Ryang Chung · 2025 · Nursing in Critical Care
  86. Delphi Study on the creation of a Committee of patients, caregivers, and representatives of patient associations
    Laura Gangeri, Sara Alfieri, Valeria Anselmi, Bianca Scacciati, Elena Germini, Silvia Luisa Bernardelli, Cinzia Brunelli, Claudia Borreani · 2025 · Tumori Journal
  87. Translational Genomics and Community‐Driven Research in Australia
    Fiona Russo, Keri Finlay, Isabella A. Sherburn, Tiffany F. Boughtwood, Jane M. Tiller · 2025 · Ethics & Human Research
  88. Integrating community engagement and involvement in surgical care processes in low-resource settings: a case study from Pakistan
    Almas Fasih Khattak, Syeda Shamal, Sarah Afridi, Hamza Gohar, Tom Bashford, Laura Hobbs, Yashma Sherwan, Khushbakht Shah, Charlotte Jane Whiffin, Tariq Jabbar Khan et al. · 2026 · Research Involvement and Engagement
  89. Frameworks to Evaluate the Quality of Public Involvement in Health and Social Care Research: A Scoping Review
    Rose Hutton, Alice Moult, Dereth Baker, Anthony A. Fryer, Andy Meakin, Opeyemi Babatunde · 2026 · Health Expectations
  90. Determining the destination: a co-designed chronic advanced cancer rehabilitation conceptual framework for engagement of individuals with lived experience in rehabilitation research
    Naomi D. Dolgoy, Stéphanie Bernard, Fleur Huang, Amy Driga, Debra M. Hall-Lavoie, Adam Brown, Edith Pituskin, Alysa M. Fairchild, Margaret L. McNeely · 2024 · Research Involvement and Engagement
  91. Developing an evaluation tool for the impact of consumer partnerships in healthcare governance: a coproduced mixed methods study
    Rae Parker, Jodie L. Nixon, Faiza El‐Higzi, Melanie Lynch, Ruth Cox · 2025 · BMJ Open Quality
  92. Monitoring and Evaluation of Stakeholder Engagement in Health Care Research
    Thomas W. Concannon, Marisha E. Palm · 2022 · Springer eBooks
  93. Understanding Parents’ Experiences and Information Needs to Inform a Digital Knowledge Translation Tool about Pediatric Functional Constipation
    Alison P Thompson · 2021 · ERA: Education and Research Archive (University of Alberta)
  94. The Impact of Patient Engagement on Trials and Trialists in Ontario, Canada: an Interview Study With IMPACT Awardees
    Stuart Gordon Nicholls, Grace Fox, Zarah Monfaredi, Evelyn Poole, Chantelle Garritty, Alies Maybee, Justin Presseau, Beverley Shea, Dean A. Fergusson · 2022 · Research Square
  95. WITHDRAWN: Evaluating Patient and Public Involvement (PPI) in NHS Talking Therapies for Anxiety and Depression: A Framework Analysis of PPI Experience and Development of Good Practice Guidelines
    2023 · Research Square
  96. Harnessing evidence and values in health policy implementation
    Mohammad Golam Kibria · 2020 · MacSphere (McMaster University)
  97. The tensions between healthcare providers and patient and family advisory committees (PFACs): A comparative health system analysis between England and Ontario
    Umair Majid · 2021 · Patient Experience Journal
  98. Evaluating research co-production: Protocol for the Research Quality Plus for Co-Production (RQ+ 4 Co-Pro) Framework
    Robert K. D. McLean, Fred Carden, Ian D. Graham, Alice B. Aiken, Rebecca Armstrong, Judy Bray, Christine E. Cassidy, Olivia Daub, Erica Di Ruggiero, Leslie A. Fierro et al. · 2022 · Research Square
  99. Rappresentatività ed efficacia: due dimensioni critiche della partecipazione nei sistemi sanitari. Una revisione della letteratura
    Mauro Serapioni · 2022 · SALUTE E SOCIETÀ
  100. When Combining Arts and Sciences Assists Medical Devices Uses: DeafSpace and Cochlear Implants
    Andrée-Anne Blacutt, Stéphane Roche · 2022 · Integrated science