Patient and public engagement in research and health system decision making: A systematic review of evaluation tools
Boivin, Antoine, L'Espérance, Audrey, Gauvin, François‐Pierre, Dumez, Vincent, Macaulay, Ann C., Lehoux, Pascale, Abelson, Julia·2018·Health Expectations
Cited by (285)
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- Additional file 1 of Working together in health research: a mixed-methods patient engagement evaluationStella Babatunde, Sadia Ahmed, Santana, Maria Jose, Ingrid Nielssen, Sandra Zelinsky, Anshula Ambasta · 2024 · Figshare
- Additional file 1 of A scoping review of methods to measure and evaluate citizen engagement in health researchShahid, Anmol, Inara N. Lalani, Brianna K. Rosgen, Bonnie G. Sept, Shelly Longmore, Jeanna Parsons Leigh, Stelfox, Henry T., Kirsten Marie Fiest · 2023 · Figshare
- Additional file 3 of Evaluating health service outcomes of public involvement in health service design in high-income countries: a systematic reviewNicola Lloyd, Amanda J. Kenny, Nerida Hyett · 2021 · Figshare
- Additional file 3 of Evaluation of research co-design in health: a systematic overview of reviews and development of a frameworkPeters, Sanne, Lisa Guccione, Francis, Jill, Best, Stephanie, Emma J Tavender, Curran, Janet, Davies, Katie, Stephanie Rowe, Palmer, Victoria J., Marlena Klaic · 2024 · Figshare
- Additional file 4 of Evaluation of research co-design in health: a systematic overview of reviews and development of a frameworkPeters, Sanne, Lisa Guccione, Francis, Jill, Best, Stephanie, Emma J Tavender, Curran, Janet, Davies, Katie, Stephanie Rowe, Palmer, Victoria J., Marlena Klaic · 2024 · Figshare
- Additional file 4 of Determining the benefits and drawbacks of parents using personal connections and social networks for recruitment in research projects: a qualitative studyLaesa Kim, Carrie Costello, Michael A. Golding, Chloé Janse van Rensburg, Jennifer L. P. Protudjer, Kristy D. M. Wittmeier · 2023 · Figshare
- Additional file 1 of Benefits, barriers and recommendations for youth engagement in health research: combining evidence-based and youth perspectivesKatherine Bailey, Brooke A. Allemang, Ashley Vandermorris, Munce, Sarah, Kristin Cleverley, Cassandra Chisholm, Eva Cohen, Cedar Davidson, Asil El Galad, Dahlia Leibovich et al. · 2024 · Figshare
- Additional file 2 of Determining the benefits and drawbacks of parents using personal connections and social networks for recruitment in research projects: a qualitative studyLaesa Kim, Carrie Costello, Michael A. Golding, Chloé Janse van Rensburg, Jennifer L. P. Protudjer, Kristy D. M. Wittmeier · 2023 · Figshare
- Additional file 1 of Exploring barriers and solutions to consumer involvement in health service research using a nominal group techniqueLaura Ryan, Rachel Wenke, Joan Carlini, Kelly Ann Weir, Margaret Shapiro, Noela Baglot, Georgia Tobiano, Sally J. E. Sargeant, Laetitia Hattingh · 2024 · Figshare
- Additional file 1 of How does integrated knowledge translation (IKT) compare to other collaborative research approaches to generating and translating knowledge? Learning from experts in the fieldNguyen, Tram, Ian D Graham, Kelly Mrklas, Sarah Bowen, Margaret Cargo, Estabrooks, Carole A., Kothari, Anita, Lavis, John, Ann C. Macaulay, MacLeod, Martha et al. · 2020 · Figshare
- Additional file 1 of Activities and impacts of patient engagement in CIHR SPOR funded research: a cross-sectional survey of academic researcher and patient partner experiencesAnna Maria Chudyk, Roger E. Stoddard, Nicola McCleary, Duhamel, Todd A., Carolyn Shimmin, Serena Hickes, Annette S. H. Schultz · 2022 · Figshare
- Additional file 1 of Evaluating the impact of engaging older adults and service providers as research partners in the co-design of a community mobility-promoting program: a mixed methods developmental evaluation studyMaggie MacNeil, Abelson, Julia, Moore, Caroline, Shazelle Lindsay, Janet Adams, Aref Alshaikhahmed, Jain, Kamal, Penelope Petrie, Rebecca Ganann · 2024 · Figshare
- Additional file 2 of Evaluation of research co-design in health: a systematic overview of reviews and development of a frameworkPeters, Sanne, Lisa Guccione, Francis, Jill, Best, Stephanie, Emma J Tavender, Curran, Janet, Davies, Katie, Stephanie Rowe, Palmer, Victoria J., Marlena Klaic · 2024 · Figshare
- Additional file 3 of Towards conceptualizing patients as partners in health systems: a systematic review and descriptive synthesisMeredith G. Vanstone, Carolyn Canfield, Evans, Cara, Myles Leslie, Levasseur, Mary Anne, Maggie MacNeil, Pahwa, Manisha, Janelle Panday, Paula Rowland, Taneja, Shipra et al. · 2024 · Figshare
- Additional file 2 of Exploring barriers and solutions to consumer involvement in health service research using a nominal group techniqueLaura Ryan, Rachel Wenke, Joan Carlini, Kelly Ann Weir, Margaret Shapiro, Noela Baglot, Georgia Tobiano, Sally J. E. Sargeant, Laetitia Hattingh · 2024 · Figshare
- Additional file 4 of Activities and impacts of patient engagement in CIHR SPOR funded research: a cross-sectional survey of academic researcher and patient partner experiencesAnna Maria Chudyk, Roger E. Stoddard, Nicola McCleary, Todd Ashley Duhamel, Carolyn Shimmin, Serena Hickes, Annette S. H. Schultz · 2022 · Figshare
- Additional file 1 of A scoping review of the globally available tools for assessing health research partnership outcomes and impactsKelly Mrklas, Jamie M. Boyd, Sumair Shergill, Sera Merali, Masood Khan, Cheryl Moser, Lorelli S. Nowell, Amelia Goertzen, Liam A. Swain, Lisa Maria Pfadenhauer et al. · 2024 · Figshare
- Additional file 2 of How does integrated knowledge translation (IKT) compare to other collaborative research approaches to generating and translating knowledge? Learning from experts in the fieldNguyen, Tram, Ian D Graham, Kelly Mrklas, Sarah Bowen, Margaret Cargo, Estabrooks, Carole A., Kothari, Anita, Lavis, John, Ann C. Macaulay, MacLeod, Martha et al. · 2020 · Figshare
- Additional file 1 of How are health research partnerships assessed? A systematic review of outcomes, impacts, terminology and the use of theories, models and frameworksKelly Mrklas, Sera Merali, Masood Khan, Sumair Shergill, Jamie M. Boyd, Lorelli S. Nowell, Lisa Maria Pfadenhauer, Kevin Paúl, Amelia Goertzen, Liam A. Swain et al. · 2023 · Figshare
- Additional file 2 of Evaluating health service outcomes of public involvement in health service design in high-income countries: a systematic reviewNicola Lloyd, Amanda J. Kenny, Nerida Hyett · 2021 · Figshare
- Additional file 2 of Evaluating the quality of research co-production: Research Quality Plus for Co-Production (RQ + 4 Co-Pro)McLean, Robert K. D., Fred Carden, Alice B. Aiken, Rebecca Armstrong, Judy Bray, Cassidy, Christine E., Olivia Daub, Erica Di Ruggiero, Leslie A. Fierro, Gagnon, Michelle et al. · 2024 · Figshare
- Additional file 1 of “I think there has to be a mutual respect for there to be value”: Evaluating patient engagement in a national clinical trial on de-implementation of low value careEtchegary, Holly, Stefanie Linklater, Duquette, D.’Arcy, Gloria Wilkinson, Vanessa Francis, Erin Gionet, Andrea M. Patey, Jeremy Grimshaw · 2023 · Figshare
- Additional file 3 of Engaging patient and community stakeholders in the optimization of the Compassionate And Loving Mindset towards heart health risk (CALM Hearts) physical activity intervention: a description of initial work and protocol for future engagement activitiesAnna Maria Chudyk, Kullman, Sasha, Donna Pool, Todd Ashley Duhamel, Ashe, Maureen, Shaelyn M. Strachan · 2024 · Figshare
- Additional file 1 of The impact of patient engagement on trials and trialists in Ontario, Canada: An interview study with IMPACT awardeesStuart Gordon Nicholls, Grace Fox, Zarah Monfaredi, Evelyn Poole, Garritty, Chantelle, Alies Maybee, Presseau, Justin, Shea, Beverley, Dean A. Fergusson · 2022 · Figshare
- Additional file 3 of Patient Engagement in Research Scale (PEIRS-22): Danish translation, applicability, and user experiencesMille Guldager Christiansen, Helle Pappot, Clayon B. Hamilton, Trine Lund-Jacobsen, Anne Wilhøft Kristensen, Sara Nordentoft, Beverley Lim Høeg, Pernille Envold Bidstrup, Iben Husted Nielsen, Jane Ulstrup et al. · 2024 · Figshare
- Additional file 2 of A scoping review of the globally available tools for assessing health research partnership outcomes and impactsKelly Mrklas, Jamie M. Boyd, Sumair Shergill, Sera Merali, Masood Khan, Cheryl Moser, Lorelli S. Nowell, Amelia Goertzen, Liam A. Swain, Lisa Maria Pfadenhauer et al. · 2024 · Figshare
- Additional file 1 of Engaging patient and community stakeholders in the optimization of the Compassionate And Loving Mindset towards heart health risk (CALM Hearts) physical activity intervention: a description of initial work and protocol for future engagement activitiesAnna Maria Chudyk, Kullman, Sasha, Donna Pool, Todd Ashley Duhamel, Ashe, Maureen, Shaelyn M. Strachan · 2024 · Figshare
- Additional file 2 of “I think there has to be a mutual respect for there to be value”: Evaluating patient engagement in a national clinical trial on de-implementation of low value careEtchegary, Holly, Stefanie Linklater, Duquette, D.’Arcy, Gloria Wilkinson, Vanessa Francis, Erin Gionet, Andrea M. Patey, Grimshaw, Jeremy M. · 2023 · Figshare
- Additional file 2 of Activities and impacts of patient engagement in CIHR SPOR funded research: a cross-sectional survey of academic researcher and patient partner experiencesAnna Maria Chudyk, Roger E. Stoddard, Nicola McCleary, Duhamel, Todd A., Carolyn Shimmin, Serena Hickes, Annette S. H. Schultz · 2022 · Figshare
- Additional file 1 of Tools for assessing health research partnership outcomes and impacts: a systematic reviewKelly Mrklas, Boyd, J. M., Shergill, S., Merali, S., Khan, M., Lorelli S. Nowell, Amelia Goertzen, Pfadenhauer, L. M., Kevin Paúl, Sibley, K. M. et al. · 2024 · Figshare
- Additional file 1 of An auto-ethnographic study of co-produced health research in a patient organisation: unpacking the good, the bad, and the unspokenAstrid I.W.A. Janssens, Danielle Drachmann, Kristy Barnes-Cullen, Austin Carrigg, Christesen, Henrik Thybo, Becky Futers, Yvette Ollada Lavery, Tiffany Palms, Jacob Sten Petersen, Pratik Shah et al. · 2024 · Figshare
- Additional file 1 of Patient Engagement in Research Scale (PEIRS-22): Danish translation, applicability, and user experiencesMille Guldager Christiansen, Helle Pappot, Clayon B. Hamilton, Trine Lund-Jacobsen, Anne Wilhøft Kristensen, Sara Nordentoft, Beverley Lim Høeg, Pernille Envold Bidstrup, Iben Husted Nielsen, Jane Ulstrup et al. · 2024 · Figshare
- Additional file 2 of Exploring patient perspectives on how they can and should be engaged in the development of artificial intelligence (AI) applications in health careSamira Adus, Jillian A. Macklin, Pinto, Andrew · 2024 · Figshare
- Additional file 1 of Towards conceptualizing patients as partners in health systems: a systematic review and descriptive synthesisMeredith G. Vanstone, Carolyn Canfield, Evans, Cara, Myles Leslie, Levasseur, Mary Anne, Maggie MacNeil, Pahwa, Manisha, Janelle Panday, Paula Rowland, Taneja, Shipra et al. · 2024 · Figshare
- Additional file 3 of “I think there has to be a mutual respect for there to be value”: Evaluating patient engagement in a national clinical trial on de-implementation of low value careEtchegary, Holly, Stefanie Linklater, Duquette, D.’Arcy, Gloria Wilkinson, Vanessa Francis, Erin Gionet, Andrea M. Patey, Grimshaw, Jeremy M. · 2023 · Figshare
- Additional file 1 of Evaluating the quality of research co-production: Research Quality Plus for Co-Production (RQ + 4 Co-Pro)McLean, Robert K. D., Fred Carden, Alice B. Aiken, Rebecca Armstrong, Judy Bray, Cassidy, Christine E., Olivia Daub, Erica Di Ruggiero, Fierro, Leslie A., Gagnon, Michelle et al. · 2024 · Figshare
- Additional file 1 of Does patient and public involvement impact public health decision-making? A 10 year retrospective analysis of public consultation in BrazilDe Freitas Lopes, Ana Carolina, Hillegonda Maria Dutilh Novaes, Patrícia Coelho de Soárez · 2024 · Figshare
- Additional file 1 of Evaluation of research co-design in health: a systematic overview of reviews and development of a frameworkPeters, Sanne, Lisa Guccione, Francis, Jill, Stephanie Best, Emma J Tavender, Curran, Janet, Davies, Katie, Stephanie Rowe, Palmer, Victoria J., Marlena Klaic · 2024 · Figshare
- Additional file 2 of Engaging patient and community stakeholders in the optimization of the Compassionate And Loving Mindset towards heart health risk (CALM Hearts) physical activity intervention: a description of initial work and protocol for future engagement activitiesAnna Maria Chudyk, Kullman, Sasha, Donna Pool, Todd Ashley Duhamel, Ashe, Maureen, Shaelyn M. Strachan · 2024 · Figshare
- Additional file 1 of Co-creation of practical “how-to guides” for patient engagement in key phases of medicines development—from theory to implementationDavid Feldman, Paola Kruger, Laure Delbecque, Duenas, Ashley, Oana Bernard-Poenaru, Séverine Wollenschneider, Hicks, Nick, Janine Ann Reed, Ify Sargeant, Chi Pakarinen et al. · 2021 · Figshare
- Additional file 2 of Patient Engagement in Research Scale (PEIRS-22): Danish translation, applicability, and user experiencesMille Guldager Christiansen, Helle Pappot, Clayon B. Hamilton, Trine Lund-Jacobsen, Anne Wilhøft Kristensen, Sara Nordentoft, Beverley Lim Høeg, Pernille Envold Bidstrup, Iben Husted Nielsen, Jane Ulstrup et al. · 2024 · Figshare
- Additional file 1 of Involving parents of children treated for cancer in Sweden as public contributors to inform the design and conduct of an evaluation of internet-administered self-help for parents of children treated for cancer: a protocolJoanne Woodford, Christina Reuther, Ljungberg, Johan Lars, von Essen, Louise · 2024 · Figshare
- Additional file 1 of Determining the benefits and drawbacks of parents using personal connections and social networks for recruitment in research projects: a qualitative studyLaesa Kim, Carrie Costello, Michael A. Golding, Chloé Janse van Rensburg, Jennifer L. P. Protudjer, Kristy D. M. Wittmeier · 2023 · Figshare
- Additional file 1 of Evaluating health service outcomes of public involvement in health service design in high-income countries: a systematic reviewNicola Lloyd, Amanda J. Kenny, Nerida Hyett · 2021 · Figshare
- Additional file 1 of Exploring patient perspectives on how they can and should be engaged in the development of artificial intelligence (AI) applications in health careSamira Adus, Jillian A. Macklin, Pinto, Andrew · 2023 · Figshare
- Additional file 4 of Patient Engagement in Research Scale (PEIRS-22): Danish translation, applicability, and user experiencesMille Guldager Christiansen, Helle Pappot, Clayon B. Hamilton, Trine Lund-Jacobsen, Anne Wilhøft Kristensen, Sara Nordentoft, Beverley Lim Høeg, Pernille Envold Bidstrup, Iben Husted Nielsen, Jane Ulstrup et al. · 2024 · Figshare
- Additional file 3 of Determining the benefits and drawbacks of parents using personal connections and social networks for recruitment in research projects: a qualitative studyLaesa Kim, Carrie Costello, Michael A. Golding, Chloé Janse van Rensburg, Jennifer L. P. Protudjer, Kristy D. M. Wittmeier · 2023 · Figshare
- Additional file 2 of Towards conceptualizing patients as partners in health systems: a systematic review and descriptive synthesisMeredith G. Vanstone, Carolyn Canfield, Evans, Cara, Myles Leslie, Levasseur, Mary Anne, Maggie MacNeil, Pahwa, Manisha, Janelle Panday, Paula Rowland, Taneja, Shipra et al. · 2024 · Figshare
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