Patient and public engagement in research and health system decision making: A systematic review of evaluation tools

Boivin, Antoine, L'Espérance, Audrey, Gauvin, François‐Pierre, Dumez, Vincent, Macaulay, Ann C., Lehoux, Pascale, Abelson, Julia·2018·Health Expectations

Cited by (285)

Items 201–285 of 285

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  16. Reliability and Validity of the Arabic Translation of the Public and Patient Engagement Evaluation Tool
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  17. Additional file 1 of Working together in health research: a mixed-methods patient engagement evaluation
    Stella Babatunde, Sadia Ahmed, Santana, Maria Jose, Ingrid Nielssen, Sandra Zelinsky, Anshula Ambasta · 2024 · Figshare
  18. Additional file 1 of A scoping review of methods to measure and evaluate citizen engagement in health research
    Shahid, Anmol, Inara N. Lalani, Brianna K. Rosgen, Bonnie G. Sept, Shelly Longmore, Jeanna Parsons Leigh, Stelfox, Henry T., Kirsten Marie Fiest · 2023 · Figshare
  19. Additional file 3 of Evaluating health service outcomes of public involvement in health service design in high-income countries: a systematic review
    Nicola Lloyd, Amanda J. Kenny, Nerida Hyett · 2021 · Figshare
  20. Additional file 3 of Evaluation of research co-design in health: a systematic overview of reviews and development of a framework
    Peters, Sanne, Lisa Guccione, Francis, Jill, Best, Stephanie, Emma J Tavender, Curran, Janet, Davies, Katie, Stephanie Rowe, Palmer, Victoria J., Marlena Klaic · 2024 · Figshare
  21. Additional file 4 of Evaluation of research co-design in health: a systematic overview of reviews and development of a framework
    Peters, Sanne, Lisa Guccione, Francis, Jill, Best, Stephanie, Emma J Tavender, Curran, Janet, Davies, Katie, Stephanie Rowe, Palmer, Victoria J., Marlena Klaic · 2024 · Figshare
  22. Additional file 4 of Determining the benefits and drawbacks of parents using personal connections and social networks for recruitment in research projects: a qualitative study
    Laesa Kim, Carrie Costello, Michael A. Golding, Chloé Janse van Rensburg, Jennifer L. P. Protudjer, Kristy D. M. Wittmeier · 2023 · Figshare
  23. Additional file 1 of Benefits, barriers and recommendations for youth engagement in health research: combining evidence-based and youth perspectives
    Katherine Bailey, Brooke A. Allemang, Ashley Vandermorris, Munce, Sarah, Kristin Cleverley, Cassandra Chisholm, Eva Cohen, Cedar Davidson, Asil El Galad, Dahlia Leibovich et al. · 2024 · Figshare
  24. Additional file 2 of Determining the benefits and drawbacks of parents using personal connections and social networks for recruitment in research projects: a qualitative study
    Laesa Kim, Carrie Costello, Michael A. Golding, Chloé Janse van Rensburg, Jennifer L. P. Protudjer, Kristy D. M. Wittmeier · 2023 · Figshare
  25. Additional file 1 of Exploring barriers and solutions to consumer involvement in health service research using a nominal group technique
    Laura Ryan, Rachel Wenke, Joan Carlini, Kelly Ann Weir, Margaret Shapiro, Noela Baglot, Georgia Tobiano, Sally J. E. Sargeant, Laetitia Hattingh · 2024 · Figshare
  26. Additional file 1 of How does integrated knowledge translation (IKT) compare to other collaborative research approaches to generating and translating knowledge? Learning from experts in the field
    Nguyen, Tram, Ian D Graham, Kelly Mrklas, Sarah Bowen, Margaret Cargo, Estabrooks, Carole A., Kothari, Anita, Lavis, John, Ann C. Macaulay, MacLeod, Martha et al. · 2020 · Figshare
  27. Additional file 1 of Activities and impacts of patient engagement in CIHR SPOR funded research: a cross-sectional survey of academic researcher and patient partner experiences
    Anna Maria Chudyk, Roger E. Stoddard, Nicola McCleary, Duhamel, Todd A., Carolyn Shimmin, Serena Hickes, Annette S. H. Schultz · 2022 · Figshare
  28. Additional file 1 of Evaluating the impact of engaging older adults and service providers as research partners in the co-design of a community mobility-promoting program: a mixed methods developmental evaluation study
    Maggie MacNeil, Abelson, Julia, Moore, Caroline, Shazelle Lindsay, Janet Adams, Aref Alshaikhahmed, Jain, Kamal, Penelope Petrie, Rebecca Ganann · 2024 · Figshare
  29. Additional file 2 of Evaluation of research co-design in health: a systematic overview of reviews and development of a framework
    Peters, Sanne, Lisa Guccione, Francis, Jill, Best, Stephanie, Emma J Tavender, Curran, Janet, Davies, Katie, Stephanie Rowe, Palmer, Victoria J., Marlena Klaic · 2024 · Figshare
  30. Additional file 3 of Towards conceptualizing patients as partners in health systems: a systematic review and descriptive synthesis
    Meredith G. Vanstone, Carolyn Canfield, Evans, Cara, Myles Leslie, Levasseur, Mary Anne, Maggie MacNeil, Pahwa, Manisha, Janelle Panday, Paula Rowland, Taneja, Shipra et al. · 2024 · Figshare
  31. Additional file 2 of Exploring barriers and solutions to consumer involvement in health service research using a nominal group technique
    Laura Ryan, Rachel Wenke, Joan Carlini, Kelly Ann Weir, Margaret Shapiro, Noela Baglot, Georgia Tobiano, Sally J. E. Sargeant, Laetitia Hattingh · 2024 · Figshare
  32. Additional file 4 of Activities and impacts of patient engagement in CIHR SPOR funded research: a cross-sectional survey of academic researcher and patient partner experiences
    Anna Maria Chudyk, Roger E. Stoddard, Nicola McCleary, Todd Ashley Duhamel, Carolyn Shimmin, Serena Hickes, Annette S. H. Schultz · 2022 · Figshare
  33. Additional file 1 of A scoping review of the globally available tools for assessing health research partnership outcomes and impacts
    Kelly Mrklas, Jamie M. Boyd, Sumair Shergill, Sera Merali, Masood Khan, Cheryl Moser, Lorelli S. Nowell, Amelia Goertzen, Liam A. Swain, Lisa Maria Pfadenhauer et al. · 2024 · Figshare
  34. Additional file 2 of How does integrated knowledge translation (IKT) compare to other collaborative research approaches to generating and translating knowledge? Learning from experts in the field
    Nguyen, Tram, Ian D Graham, Kelly Mrklas, Sarah Bowen, Margaret Cargo, Estabrooks, Carole A., Kothari, Anita, Lavis, John, Ann C. Macaulay, MacLeod, Martha et al. · 2020 · Figshare
  35. Additional file 1 of How are health research partnerships assessed? A systematic review of outcomes, impacts, terminology and the use of theories, models and frameworks
    Kelly Mrklas, Sera Merali, Masood Khan, Sumair Shergill, Jamie M. Boyd, Lorelli S. Nowell, Lisa Maria Pfadenhauer, Kevin Paúl, Amelia Goertzen, Liam A. Swain et al. · 2023 · Figshare
  36. Additional file 2 of Evaluating health service outcomes of public involvement in health service design in high-income countries: a systematic review
    Nicola Lloyd, Amanda J. Kenny, Nerida Hyett · 2021 · Figshare
  37. Additional file 2 of Evaluating the quality of research co-production: Research Quality Plus for Co-Production (RQ + 4 Co-Pro)
    McLean, Robert K. D., Fred Carden, Alice B. Aiken, Rebecca Armstrong, Judy Bray, Cassidy, Christine E., Olivia Daub, Erica Di Ruggiero, Leslie A. Fierro, Gagnon, Michelle et al. · 2024 · Figshare
  38. Additional file 1 of “I think there has to be a mutual respect for there to be value”: Evaluating patient engagement in a national clinical trial on de-implementation of low value care
    Etchegary, Holly, Stefanie Linklater, Duquette, D.’Arcy, Gloria Wilkinson, Vanessa Francis, Erin Gionet, Andrea M. Patey, Jeremy Grimshaw · 2023 · Figshare
  39. Additional file 3 of Engaging patient and community stakeholders in the optimization of the Compassionate And Loving Mindset towards heart health risk (CALM Hearts) physical activity intervention: a description of initial work and protocol for future engagement activities
    Anna Maria Chudyk, Kullman, Sasha, Donna Pool, Todd Ashley Duhamel, Ashe, Maureen, Shaelyn M. Strachan · 2024 · Figshare
  40. Additional file 1 of The impact of patient engagement on trials and trialists in Ontario, Canada: An interview study with IMPACT awardees
    Stuart Gordon Nicholls, Grace Fox, Zarah Monfaredi, Evelyn Poole, Garritty, Chantelle, Alies Maybee, Presseau, Justin, Shea, Beverley, Dean A. Fergusson · 2022 · Figshare
  41. Additional file 3 of Patient Engagement in Research Scale (PEIRS-22): Danish translation, applicability, and user experiences
    Mille Guldager Christiansen, Helle Pappot, Clayon B. Hamilton, Trine Lund-Jacobsen, Anne Wilhøft Kristensen, Sara Nordentoft, Beverley Lim Høeg, Pernille Envold Bidstrup, Iben Husted Nielsen, Jane Ulstrup et al. · 2024 · Figshare
  42. Additional file 2 of A scoping review of the globally available tools for assessing health research partnership outcomes and impacts
    Kelly Mrklas, Jamie M. Boyd, Sumair Shergill, Sera Merali, Masood Khan, Cheryl Moser, Lorelli S. Nowell, Amelia Goertzen, Liam A. Swain, Lisa Maria Pfadenhauer et al. · 2024 · Figshare
  43. Additional file 1 of Engaging patient and community stakeholders in the optimization of the Compassionate And Loving Mindset towards heart health risk (CALM Hearts) physical activity intervention: a description of initial work and protocol for future engagement activities
    Anna Maria Chudyk, Kullman, Sasha, Donna Pool, Todd Ashley Duhamel, Ashe, Maureen, Shaelyn M. Strachan · 2024 · Figshare
  44. Additional file 2 of “I think there has to be a mutual respect for there to be value”: Evaluating patient engagement in a national clinical trial on de-implementation of low value care
    Etchegary, Holly, Stefanie Linklater, Duquette, D.’Arcy, Gloria Wilkinson, Vanessa Francis, Erin Gionet, Andrea M. Patey, Grimshaw, Jeremy M. · 2023 · Figshare
  45. Additional file 2 of Activities and impacts of patient engagement in CIHR SPOR funded research: a cross-sectional survey of academic researcher and patient partner experiences
    Anna Maria Chudyk, Roger E. Stoddard, Nicola McCleary, Duhamel, Todd A., Carolyn Shimmin, Serena Hickes, Annette S. H. Schultz · 2022 · Figshare
  46. Additional file 1 of Tools for assessing health research partnership outcomes and impacts: a systematic review
    Kelly Mrklas, Boyd, J. M., Shergill, S., Merali, S., Khan, M., Lorelli S. Nowell, Amelia Goertzen, Pfadenhauer, L. M., Kevin Paúl, Sibley, K. M. et al. · 2024 · Figshare
  47. Additional file 1 of An auto-ethnographic study of co-produced health research in a patient organisation: unpacking the good, the bad, and the unspoken
    Astrid I.W.A. Janssens, Danielle Drachmann, Kristy Barnes-Cullen, Austin Carrigg, Christesen, Henrik Thybo, Becky Futers, Yvette Ollada Lavery, Tiffany Palms, Jacob Sten Petersen, Pratik Shah et al. · 2024 · Figshare
  48. Additional file 1 of Patient Engagement in Research Scale (PEIRS-22): Danish translation, applicability, and user experiences
    Mille Guldager Christiansen, Helle Pappot, Clayon B. Hamilton, Trine Lund-Jacobsen, Anne Wilhøft Kristensen, Sara Nordentoft, Beverley Lim Høeg, Pernille Envold Bidstrup, Iben Husted Nielsen, Jane Ulstrup et al. · 2024 · Figshare
  49. Additional file 2 of Exploring patient perspectives on how they can and should be engaged in the development of artificial intelligence (AI) applications in health care
    Samira Adus, Jillian A. Macklin, Pinto, Andrew · 2024 · Figshare
  50. Additional file 1 of Towards conceptualizing patients as partners in health systems: a systematic review and descriptive synthesis
    Meredith G. Vanstone, Carolyn Canfield, Evans, Cara, Myles Leslie, Levasseur, Mary Anne, Maggie MacNeil, Pahwa, Manisha, Janelle Panday, Paula Rowland, Taneja, Shipra et al. · 2024 · Figshare
  51. Additional file 3 of “I think there has to be a mutual respect for there to be value”: Evaluating patient engagement in a national clinical trial on de-implementation of low value care
    Etchegary, Holly, Stefanie Linklater, Duquette, D.’Arcy, Gloria Wilkinson, Vanessa Francis, Erin Gionet, Andrea M. Patey, Grimshaw, Jeremy M. · 2023 · Figshare
  52. Additional file 1 of Evaluating the quality of research co-production: Research Quality Plus for Co-Production (RQ + 4 Co-Pro)
    McLean, Robert K. D., Fred Carden, Alice B. Aiken, Rebecca Armstrong, Judy Bray, Cassidy, Christine E., Olivia Daub, Erica Di Ruggiero, Fierro, Leslie A., Gagnon, Michelle et al. · 2024 · Figshare
  53. Additional file 1 of Does patient and public involvement impact public health decision-making? A 10 year retrospective analysis of public consultation in Brazil
    De Freitas Lopes, Ana Carolina, Hillegonda Maria Dutilh Novaes, Patrícia Coelho de Soárez · 2024 · Figshare
  54. Additional file 1 of Evaluation of research co-design in health: a systematic overview of reviews and development of a framework
    Peters, Sanne, Lisa Guccione, Francis, Jill, Stephanie Best, Emma J Tavender, Curran, Janet, Davies, Katie, Stephanie Rowe, Palmer, Victoria J., Marlena Klaic · 2024 · Figshare
  55. Additional file 2 of Engaging patient and community stakeholders in the optimization of the Compassionate And Loving Mindset towards heart health risk (CALM Hearts) physical activity intervention: a description of initial work and protocol for future engagement activities
    Anna Maria Chudyk, Kullman, Sasha, Donna Pool, Todd Ashley Duhamel, Ashe, Maureen, Shaelyn M. Strachan · 2024 · Figshare
  56. Additional file 1 of Co-creation of practical “how-to guides” for patient engagement in key phases of medicines development—from theory to implementation
    David Feldman, Paola Kruger, Laure Delbecque, Duenas, Ashley, Oana Bernard-Poenaru, Séverine Wollenschneider, Hicks, Nick, Janine Ann Reed, Ify Sargeant, Chi Pakarinen et al. · 2021 · Figshare
  57. Additional file 2 of Patient Engagement in Research Scale (PEIRS-22): Danish translation, applicability, and user experiences
    Mille Guldager Christiansen, Helle Pappot, Clayon B. Hamilton, Trine Lund-Jacobsen, Anne Wilhøft Kristensen, Sara Nordentoft, Beverley Lim Høeg, Pernille Envold Bidstrup, Iben Husted Nielsen, Jane Ulstrup et al. · 2024 · Figshare
  58. Additional file 1 of Involving parents of children treated for cancer in Sweden as public contributors to inform the design and conduct of an evaluation of internet-administered self-help for parents of children treated for cancer: a protocol
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  59. Additional file 1 of Determining the benefits and drawbacks of parents using personal connections and social networks for recruitment in research projects: a qualitative study
    Laesa Kim, Carrie Costello, Michael A. Golding, Chloé Janse van Rensburg, Jennifer L. P. Protudjer, Kristy D. M. Wittmeier · 2023 · Figshare
  60. Additional file 1 of Evaluating health service outcomes of public involvement in health service design in high-income countries: a systematic review
    Nicola Lloyd, Amanda J. Kenny, Nerida Hyett · 2021 · Figshare
  61. Additional file 1 of Exploring patient perspectives on how they can and should be engaged in the development of artificial intelligence (AI) applications in health care
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  62. Additional file 4 of Patient Engagement in Research Scale (PEIRS-22): Danish translation, applicability, and user experiences
    Mille Guldager Christiansen, Helle Pappot, Clayon B. Hamilton, Trine Lund-Jacobsen, Anne Wilhøft Kristensen, Sara Nordentoft, Beverley Lim Høeg, Pernille Envold Bidstrup, Iben Husted Nielsen, Jane Ulstrup et al. · 2024 · Figshare
  63. Additional file 3 of Determining the benefits and drawbacks of parents using personal connections and social networks for recruitment in research projects: a qualitative study
    Laesa Kim, Carrie Costello, Michael A. Golding, Chloé Janse van Rensburg, Jennifer L. P. Protudjer, Kristy D. M. Wittmeier · 2023 · Figshare
  64. Additional file 2 of Towards conceptualizing patients as partners in health systems: a systematic review and descriptive synthesis
    Meredith G. Vanstone, Carolyn Canfield, Evans, Cara, Myles Leslie, Levasseur, Mary Anne, Maggie MacNeil, Pahwa, Manisha, Janelle Panday, Paula Rowland, Taneja, Shipra et al. · 2024 · Figshare
  65. Additional file 1 of Health data research on sudden cardiac arrest: perspectives of survivors and their next-of-kin
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