The DOI matches its Crossref record; 82 of the 82 references it cites were found in a registry or an index.
Literature review: use of respite by carers of people with dementia
Abstract
Respite care is a cornerstone service for the home management of people with dementia. It is used by carers to mitigate the stress related to the demands of caring by allowing time for them to rest and do things for themselves, thus maintaining the caring relationship at home and perhaps forestalling long-term placement in a residential aged care facility. Despite numerous anecdotal reports in support of respite care, its uptake by carers of people with dementia remains relatively low. The aim of this paper was to examine the factors that constitute the use of respite by carers of people with dementia by reviewing quantitative and qualitative research predominantly from the years 1990 to 2012. Seventy-six international studies of different types of respite care were included for this review and their methods were critically appraised. The key topics identified were in relation to information access, the barriers to carers realising need for and seeking respite, satisfaction with respite services including the outcomes for carers and people with dementia, the characteristics of an effective respite service and the role of health workers in providing appropriate respite care. Finally, limitations with considering the literature as a whole were highlighted and recommendations made for future research.
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In the citing paper
“However, guilt from perceptions of abandoning the person with dementia and failure in the fulfilment of their marital or familial duty often become barriers for family carers to access respite services and the literature suggests that its uptake by carers remains relatively low (Neville, Beattie, Fielding, & MacAndrew, 2015).”
From Exploring the impact of carer stressors and psychological inflexibility on depression and anxiety in family carers of people with dementia (2020) · cites this paper as Neville, Beattie, Fielding, & MacAndrew, 2015
In the citing paper
“However, guilt from perceptions of abandoning the person with dementia and failure in the fulfilment of their marital or familial duty often become barriers for family carers to access respite services and the literature suggests that its uptake by carers remains relatively low (Neville, Beattie, Fielding, & MacAndrew, 2015).”
From Exploring the impact of carer stressors and psychological inflexibility on depression and anxiety in family carers of people with dementia (2020) · cites this paper as Neville, Beattie, Fielding, & MacAndrew, 2015
Citations
Cites
Why caregivers of people with dementia and memory loss don't use services
Brodaty, H., Thomson, C., Thompson, C. L., & Fine, M. D. (2005) · International Journal of Geriatric Psychiatry · doi:10.1002/gps.1322 · Cited by 486
Stress Reduction for Family Caregivers: Effects of Adult Day Care Use
Zarit, S. H., Stephens, M. A. P., Townsend, A., & Greene, R. (1998) · The Journals of Gerontology Series B · doi:10.1093/geronb/53b.5.s267 · Cited by 356
Gaugler, J. E., Kane, R. L., Kane, R. L., & Newcomer, R. (2005) · The Gerontologist · doi:10.1093/geront/45.2.177 · Cited by 290
Interventions to reduce the burden of caregiving for an adult with dementia: A meta‐analysis§
Acton, G. J., & Kang, J.-H. (2001) · Research in Nursing & Health · doi:10.1002/nur.1036 · Cited by 283
Self-identifying as a caregiver: Exploring the positioning process
O’Connor, D. (2007) · Journal of Aging Studies · doi:10.1016/j.jaging.2006.06.002 · Cited by 197
Mason, A., Weatherly, H. L. A., Spilsbury, K., Arksey, H., Golder, S., Adamson, J., Drummond, M., & Glendinning, C. (2007) · Health Technology Assessment · doi:10.3310/hta11150 · Cited by 156
Cox, C. (1997) · The Gerontologist · doi:10.1093/geront/37.4.511 · Cited by 117
Predictors of Use of Services Among Dementia Caregivers
Robinson, K. M., Buckwalter, K. C., & Reed, D. (2005) · Western Journal of Nursing Research · doi:10.1177/0193945904272453 · Cited by 111
Emotional and physical health of spouse caregivers of persons with Alzheimer’s disease and stroke
Wright, L. K., Hickey, J. V., Buckwalter, K. C., Hendrix, S. A., & Kelechi, T. J. (1999) · Journal of Advanced Nursing · doi:10.1046/j.1365-2648.1999.01124.x · Cited by 103
Mossello, E., Caleri, V., Razzi, E., Bari, M. D., Cantini, C., Tonon, E., Lopilato, E., Marini, M., Simoni, D., Cavallini, M. C., et al. (2008) · International Journal of Geriatric Psychiatry · doi:10.1002/gps.2034 · Cited by 102
Flagged first, then by citations
Research works printed but not linked: 6
- Alzheimer's Australia, 2009, Respite Care for People Living with Dementia: ‘It's more than Just a Short Break’
- Alzheimer's Disease International, 2012, World Alzheimer's Report 2012: Overcoming the Stigma of Dementia
- Australian Institute of Health and Welfare, 2011, Pathways in Aged Care: Program Use after Assessment
- Australian Institute of Health and Welfare, 2012, Dementia in Australia Cat. no. AGE 70
- Gendron, 2005, Baluchon Alzheimer: an innovative respite and support service in the home of the family caregiver of a person with Alzheimer's, Alzheimer's Care Quarterly, 6, 249
- Exel, 2008, Give me a break! Informal caregiver attitudes towards respite care, Health Policy, 88, 73
Cited by
Sorted by citations
Items 101–103 of 103
Bom, J. A. M., de Klerk, M., Plaisier, I., Gräler, L., & van Exel, J. N. A. (2026) · Health Policy · doi:10.1016/j.healthpol.2026.105721
Adult day services, leisure time satisfaction, and psychosocial well-being among dementia caregivers
Scher, C. J., Moxley, J. H., Riffin, C. A., & Czaja, S. J. (2026) · The Gerontologist · doi:10.1093/geront/gnag163
Nguyen, H., Baghini, B. Z., Abadi, P., Albuquerque-Boutilier, K., Arguelles, C., Slavescu, I., & Hoben, M. (2026) · SSRN Electronic Journal · doi:10.2139/ssrn.7273499
Metadata
- Authors
- Neville, C., Beattie, E., Fielding, E., & MacAndrew, M.
- Affiliations
- The University of Queensland (AU)
- Queensland University of Technology (AU)
- Venue
- Health & Social Care in the Community
- Publisher
- Hindawi Limited
- Published
- 2014-01-20
- Volume
- 23
- Issue
- 1
- Pages
- 51-63
- ISSN
- 0966-0410 (ISSN-L)
- OpenAlex
- W1489337391
- Cited by
- 103
- References
- 82
- Citations by year
- 2026: 3 · 2025: 10 · 2024: 9 · 2023: 6 · 2022: 11 · 2021: 11 · 2020: 12 · 2019: 9 · 2018: 9 · 2017: 9 · 2016: 7 · 2015: 7
- FWCI
- 1.06
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Health & Social Care in the Community (publishedVersion)
- PubMed (publishedVersion)
- QUT ePrints (Queensland University of Technology) (submittedVersion)
- Faculty of Health; Institute of Health and Biomedical Innovation
- Topics
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Health Sciences › Nursing › Research and Theory › Nursing care and research
- Health Sciences › Medicine › Geriatrics and Gerontology › Geriatric Care and Nursing Homes
- Keywords
- respite care, dementia, caregivers, caregiver stress, access to information, home care, nursing homes, healthcare workers, caregiver well-being
- MeSH terms
- Consumer Behavior, Dementia, Health Status, Interpersonal Relations, Mental Health, Respite Care, Sleep, Caregivers, Qualitative Research
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