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Literature review: use of respite by carers of people with dementia
Abstract
Respite care is a cornerstone service for the home management of people with dementia. It is used by carers to mitigate the stress related to the demands of caring by allowing time for them to rest and do things for themselves, thus maintaining the caring relationship at home and perhaps forestalling long-term placement in a residential aged care facility. Despite numerous anecdotal reports in support of respite care, its uptake by carers of people with dementia remains relatively low. The aim of this paper was to examine the factors that constitute the use of respite by carers of people with dementia by reviewing quantitative and qualitative research predominantly from the years 1990 to 2012. Seventy-six international studies of different types of respite care were included for this review and their methods were critically appraised. The key topics identified were in relation to information access, the barriers to carers realising need for and seeking respite, satisfaction with respite services including the outcomes for carers and people with dementia, the characteristics of an effective respite service and the role of health workers in providing appropriate respite care. Finally, limitations with considering the literature as a whole were highlighted and recommendations made for future research.
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“However, guilt from perceptions of abandoning the person with dementia and failure in the fulfilment of their marital or familial duty often become barriers for family carers to access respite services and the literature suggests that its uptake by carers remains relatively low (Neville, Beattie, Fielding, & MacAndrew, 2015).”
From Exploring the impact of carer stressors and psychological inflexibility on depression and anxiety in family carers of people with dementia (2020) · cites this paper as Neville, Beattie, Fielding, & MacAndrew, 2015
In the citing paper
“However, guilt from perceptions of abandoning the person with dementia and failure in the fulfilment of their marital or familial duty often become barriers for family carers to access respite services and the literature suggests that its uptake by carers remains relatively low (Neville, Beattie, Fielding, & MacAndrew, 2015).”
From Exploring the impact of carer stressors and psychological inflexibility on depression and anxiety in family carers of people with dementia (2020) · cites this paper as Neville, Beattie, Fielding, & MacAndrew, 2015
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Metadata
- Authors
- Neville, C., Beattie, E., Fielding, E., & MacAndrew, M.
- Affiliations
- The University of Queensland (AU)
- Queensland University of Technology (AU)
- Venue
- Health & Social Care in the Community
- Publisher
- Hindawi Limited
- Published
- 2014-01-20
- Volume
- 23
- Issue
- 1
- Pages
- 51-63
- ISSN
- 0966-0410 (ISSN-L)
- OpenAlex
- W1489337391
- Cited by
- 103
- References
- 82
- Citations by year
- 2026: 3 · 2025: 10 · 2024: 9 · 2023: 6 · 2022: 11 · 2021: 11 · 2020: 12 · 2019: 9 · 2018: 9 · 2017: 9 · 2016: 7 · 2015: 7
- FWCI
- 1.06
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Health & Social Care in the Community (publishedVersion)
- PubMed (publishedVersion)
- QUT ePrints (Queensland University of Technology) (submittedVersion)
- Faculty of Health; Institute of Health and Biomedical Innovation
- Topics
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Health Sciences › Nursing › Research and Theory › Nursing care and research
- Health Sciences › Medicine › Geriatrics and Gerontology › Geriatric Care and Nursing Homes
- Keywords
- respite care, dementia, caregivers, caregiver stress, access to information, home care, nursing homes, healthcare workers, caregiver well-being
- MeSH terms
- Consumer Behavior, Dementia, Health Status, Interpersonal Relations, Mental Health, Respite Care, Sleep, Caregivers, Qualitative Research
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
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