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Cited by 23Nursing care and researchCancer survivorship and careFamily Support in Illness

The needs of carers of men with prostate cancer and barriers and enablers to meeting them: a qualitative study in England

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SINFIELD, P., BAKER, R., ALI, S., RICHARDSON, A.·2012·European Journal of Cancer Care
DOI 10.1111/j.1365-2354.2012.01341.x
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Abstract

The aim of this study was to explore the needs of carers of men with prostate cancer and to identify barriers and enablers to meeting these needs. Carers were recruited to focus groups or interviews. These were recorded, transcribed and analysed by two researchers using Nvivo QSR6 and the Framework approach to index, chart and analyse data to identify emergent themes of the needs of carers, and barriers and enablers to meeting these needs. Fifteen carers took part in focus groups and 19 were interviewed. Carers' needs varied and were often unmet because of barriers to existing services. Carers needed: information; emotional support; practical support; effective medical care for the patient. Barriers to carers meeting their needs included: lack of awareness of sources of help; lack of understanding of information; reluctance to ask for help; prioritising the patient's needs. Enablers included better signposting to information and sources of support, and assessment of their needs. Interventions to address these needs should be developed taking account of the barriers and enablers identified here, and the experience of reported interventions for carers of other cancer patients. Carers should be offered an assessment to establish their needs and directed to appropriate sources of help.

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  • Most partners do not use available interventions because they are not aware of their own health problems, lack time, or are reluctant to seek help.

    “Although some of these interventions have become available during the last decade, most partners do not use these interventions because they are not aware of their own health problems, they have a lack of time, or they are reluctant to seek help [2, 3, 8, 9].”

    From Web-based self-help intervention for partners of cancer patients based on acceptance and commitment therapy and self-compassion training: a randomized controlled trial with automated versus personal feedback (2021) · cites this paper as [9]

    The Discussion (page unavailable) says carers’ needs often remained unmet despite available resources, and that carers were often unaware of sources of help or reluctant to approach doctors. It does not establish that most partners did not use interventions, that they were unaware of their own health problems, or that their own lack of time prevented use. The Information section mentions a perceived lack of clinicians’ time, which is different. (LLM, conf=0.87)

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  • Partners of cancer patients seem to make no or only limited use of existing supportive interventions.

    “Another shortcoming of the existing interventions is that partners of cancer patients seem to make no or only limited use of them [6-8].”

    From A web-based self-help intervention for partners of cancer patients based on Acceptance and Commitment Therapy: a protocol of a randomized controlled trial. (2015) · cites this paper as [8]

    The Discussion (page not specified) reports that carers of men with prostate cancer in England often did not know about or could not access existing sources of support, leaving needs unmet. This supports limited use of available support in that group, but the paper does not establish uptake of existing supportive interventions among partners of cancer patients generally. (LLM, conf=0.83)

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Research works printed but not linked: 1

  1. Sinfield P., Baker R., Tarrant C., Agarwal S., Colman A.M., Steward W., Kockelbergh R. & Mellon J.K. (2009b) The Deve- lopment of the Prostate Care Question- naire for Carers (PCQ-C). [Online] Available at: http://www.biomedcentral. com/1472-6963/9/229/ [Accessed 12 May 2010].

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Authors
SINFIELD, P., BAKER, R., ALI, S., & RICHARDSON, A.
Affiliations
  • University of Leicester (GB)
  • University of Southampton (GB)
Corresponding author
SINFIELD, P.
ORCID
Venue
European Journal of Cancer Care
Publisher
Hindawi Limited
Published
2012-03-15
Volume
21
Issue
4
Pages
527-534
ISSN
0961-5423 (ISSN-L)
DOI
10.1111/j.1365-2354.2012.01341.x
OpenAlex
W1507275126
Cited by
23
References
19
Citations by year
2023: 1 · 2022: 2 · 2021: 1 · 2020: 4 · 2018: 3 · 2017: 1 · 2016: 1 · 2015: 7 · 2014: 2 · 2013: 1
FWCI
7.47
Type
journal article
Language
en
Open access
Licence
doi.wiley.com/10.1002/tdm_license_1.1 (tdm, 1265 d)
Locations
  • European Journal of Cancer Care (publishedVersion)
  • PubMed (publishedVersion)
  • ePrints Soton (University of Southampton) (submittedVersion)
  • Leicester Research Archive (University of Leicester) (submittedVersion)
Funders
Cancer Research UK
Topics
  • Health Sciences › Health Professions › Pharmacy › Nursing care and research
  • Health Sciences › Medicine › Oncology › Cancer survivorship and care
  • Social Sciences › Sociology and Political Science › Family Support in Illness
Keywords
prostate cancer, caregivers, caregiver needs, barriers and facilitators, emotional support, practical support, information needs, help-seeking, signposting, needs assessment, family caregivers, cancer care
MeSH terms
Adult, Aged, England, Female, Health Services Accessibility, Humans, Male, Middle Aged, Prostatic Neoplasms, Surveys and Questionnaires, Social Support, Caregivers, Focus Groups, Needs Assessment, Qualitative Research, Young Adult

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