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Cited by 467Family and Disability Support ResearchDown syndrome and intellectual disability researchBehavioral and Psychological Studies

The DOI matches its Crossref record; 53 of the 57 references it cites were found in a registry or an index.

Syndrome specificity and behavioural disorders in young adults with intellectual disability: cultural differences in family impact

Blacher, J., McIntyre, L. L.·2006·Journal of Intellectual Disability Research
DOI 10.1111/j.1365-2788.2005.00768.x
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Abstract

BACKGROUND: This study examined whether behaviour problems and adaptive behaviour of low functioning young adults, and well-being of their families, varied by diagnostic syndrome [intellectual disability (ID) only, cerebral palsy, Down syndrome, autism], as well as by cultural group. METHODS: Behaviour disorders in young adults with moderate to severe ID were assessed from information provided by 282 caregivers during in-home interviews. The sample consisted of 150 Anglo participants, and 132 Latino, primarily Spanish-speaking, participants drawn from Southern California. RESULTS: Behaviour disorders and maternal well-being showed the same pattern across disability syndromes. Autism was associated with the highest scores in multiple behaviour problem areas as well as maternal reports of lower well-being. Down syndrome was associated with the lowest behaviour problem scores and the highest maternal well-being. When behaviour problems were controlled for, diagnostic groups accounted for no additional variance in maternal stress or depression. The pattern of behaviour problems and well-being did not differ by sample (Anglo vs. Latino), although level on well-being measures did. Latina mothers reported significantly higher depression symptoms and lower morale, but also higher positive impact from their child than did Anglo mothers. CONCLUSIONS: Caregivers of young adults with autism report more maladaptive behaviour problems and lower personal well-being, or stress, relative to other diagnostic groups, regardless of cultural group. However, cultural differences exist in caregiver reports of depression, morale, and positive perceptions. Implications for service provision aimed at families of children with challenging behaviour problems are discussed in the context of culture.

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Crossref · 10.1111/j.1365-2788.2005.00768.x

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Show all 57 references

Research works printed but not linked: 10

  1. Abidin R. R., 1995, The Parenting Stress Index Professional Manual
  2. American Psychiatric Association, 2000, Diagnosis and statistical manual of mental disorders
  3. 10.1352/0895-8017(1999)104<0452:LOLCFI>2.0.CO;2 · DOI
  4. Bruininks R. H., 1996, Scales of Independent Behavior – Revised (SIB‐Royal)
  5. Gil R. M., 1996, The Maria Paradox: How Latinas Can Merge Old World Tradition with New World Self‐esteem
  6. 10.1352/0895-8017(2002)107<0116:PPIFOC>2.0.CO;2 · DOI
  7. Krauss M. W., 1999, Responding to the Challenge: International Trends and Current Issues in Developmental Disabilities, 173
  8. Magaña S. M., 1999, Puerto Rican families caring for an adult with mental retardation: role of familism, American Journal on Mental Retardation, 104, 406
  9. Reiss S., 1994, Reiss Screen for Maladaptive Behavior: Test Manual
  10. 10.1352/0895-8017(2001)106<0265:LCIOPA>2.0.CO;2 · DOI

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Metadata

Authors
Blacher, J., & McIntyre, L. L.
Affiliations
  • University of California, Riverside (US)
  • Syracuse University (US)
Corresponding author
Blacher, J.
ORCID
McIntyre, L. L.
Venue
Journal of Intellectual Disability Research
Publisher
Wiley
Published
2005-12-22
Volume
50
Issue
3
Pages
184-198
ISSN
  • 0964-2633 (ISSN-L)
  • 1365-2788
DOI
10.1111/j.1365-2788.2005.00768.x
OpenAlex
W2036592716
Cited by
467
References
57
Citations by year
2026: 6 · 2025: 13 · 2024: 13 · 2023: 18 · 2022: 23 · 2021: 18 · 2020: 34 · 2019: 18 · 2018: 26 · 2017: 28 · 2016: 25 · 2015: 31 · 2014: 37 · 2013: 36 · 2012: 34
FWCI
14.64
Type
journal article
Language
en
Open access
closed
Licence
onlinelibrary.wiley.com/termsAndConditions#vor (vor)
Locations
  • Journal of Intellectual Disability Research (publishedVersion)
  • PubMed (publishedVersion)
Funders
  • National Institutes of Health
  • University of California, Riverside
  • Eunice Kennedy Shriver National Institute of Child Health and Human Development (HD 21324, R01HD021324)
Topics
  • Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
  • Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Down syndrome and intellectual disability research
  • Social Sciences › Psychology › Developmental and Educational Psychology › Behavioral and Psychological Studies
Keywords
intellectual disability, young adults, behavioral problems, adaptive behavior, family well-being, maternal depression, maternal stress, Hispanic mothers, autism spectrum disorder, Down syndrome, cerebral palsy, cultural differences, caregiver impact
MeSH terms
Activities of Daily Living, Adolescent, Adult, Autistic Disorder, Mental Disorders, Cerebral Palsy, Cross-Cultural Comparison, Down Syndrome, Female, Hispanic or Latino, Humans, Male, Intellectual Disability, Middle Aged, Mothers, Quality of Life, Comorbidity, Caregivers, Cost of Illness, White People

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