The DOI matches its Crossref record; 77 of the 77 references it cites were found in a registry or an index.
Embodied health movements: new approaches to social movements in health
Open accessAbstract
Social movements organised around health-related issues have been studied for almost as long as they have existed, yet social movement theory has not yet been applied to these movements. Health social movements (HSMs) are centrally organised around health, and address: (a) access to or provision of health care services; (b) health inequality and inequity based on race, ethnicity, gender, class and/or sexuality; and/or (c) disease, illness experience, disability and contested illness. HSMs can be subdivided into three categories: health access movements seek equitable access to health care and improved provision of health care services; constituency-based health movements address health inequality and health inequity based on race, ethnicity, gender, class and/or sexuality differences; and embodied health movements (EHMs) address disease, disability or illness experience by challenging science on etiology, diagnosis, treatment and prevention. These groups address disproportionate outcomes and oversight by the scientific community and/or weak science. This article focuses on embodied health movements, primarily in the US. These are unique in three ways: 1) they introduce the biological body to social movements, especially with regard to the embodied experience of people with the disease; 2) they typically include challenges to existing medical/scientific knowledge and practice; and 3) they often involve activists collaborating with scientists and health professionals in pursuing treatment, prevention, research and expanded funding. This article employs various elements of social movement theory to offer an approach to understanding embodied health movements, and provides a capsule example of one such movement, the environmental breast cancer movement.
Overview
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Integrity signals
Registry
Cites
Statistics
Verification
Claims the paper makes
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
The source backs part of the claim, not all of it — or backs it for a different population, condition or comparison.
In the citing paper
“For one, global social movements have played a crucial role in shaping the intersections between the political economy and the embodiment of HIV/AIDS, other health-relates problems (Brown et al., 2004), education and other the distribution of other social goods.”
From From global discourse to local action: the makings of a sexual rights movement? (2006) · cites this paper as Brown et al., 2004
Experimental — accuracy not yet measured
Self-check
Percentages, sums and reported differences re-computed from the paper’s own numbers.
The self-check needs the paper’s full text.
Citations
Cites
Star, S. L., & Griesemer, J. R. (1989) · Social Studies of Science · doi:10.1177/030631289019003001 · Cited by 10,847
Framing Processes and Social Movements: An Overview and Assessment
Benford, R. D., & Snow, D. A. (2000) · Annual Review of Sociology · doi:10.1146/annurev.soc.26.1.611 · Cited by 9,953
Resource Mobilization and Social Movements: A Partial Theory
McCarthy, J. D., & Zald, M. N. (1977) · American Journal of Sociology · doi:10.1086/226464 · Cited by 7,381
Frame alignment processes, micromobilization, and movement participation.
Snow, D., Rochford, E., Worden, S., & Benford, R. D. (1986) · American Sociological Review · doi:10.2307/2095581 · Cited by 5,992
McAdam, D., Tarrow, S., & Tilly, C. (2001) · doi:10.1017/cbo9780511805431 · Cited by 5,558
Gieryn, T. F. (1983) · American Sociological Review · doi:10.2307/2095325 · Cited by 4,838
From Mobilization to Revolution
Stearns, P. N., & Tilly, C. (1979) · The American Historical Review · doi:10.2307/1855671 · Cited by 4,583
From Mobilization to Revolution
Tilly, C. (2017) · Routledge eBooks · doi:10.4324/9781315205021-5 · Cited by 4,010
Comparative Perspectives on Social Movements
(1996) · Cambridge University Press eBooks · doi:10.1017/cbo9780511803987 · Cited by 3,922
Political Process and the Development of Black Insurgency, 1930-1970
McAdam, D. (1999) · University of Chicago Press eBooks · doi:10.7208/chicago/9780226555553.001.0001 · Cited by 3,183
Research works printed but not linked: 8
- Ferguson S.J., 2000, Breast Cancer: Society Shapes an Epidemic
- McCarthy J.D., 1977, Resource Mobilization and Social Movements, American Journal of Sociology, 92, 64
- Myhre J.R., 2001, Breast cancer activism: A true political movement, Breast Cancer Action Newsletter, 68
- Reiss J.R., 2000, Breast Cancer 2000: An Update on the Facts, Figures and Issues
- Rosenbaum M.E., 2000, Breast Cancer: Society Shapes an Epidemic
- Silent Spring Institute, 1998, The Cape Cod Breast Cancer and Environment Study: Results of the First Three Years of Study
- Waitzkin H., 2001, At the Front Lines of Medicine: How the Health Care System Alienates Doctors and Mistreats Patients
- Zones J.S., 2000, Breast Cancer: Society Shapes an Epidemic
Cited by
Sorted by citations
Items 401–500 of 630
Męcińska, L. (2018) · Annales Universitatis Paedagogicae Cracoviensis Studia de Cultura · doi:10.24917/20837275.10.1.4 · Cited by 2
Cordner, A. (2021) · Handbooks of sociology and social research · doi:10.1007/978-3-030-77712-8_9 · Cited by 2
Boyer, K., & Wood, I. (2022) · Culture Health & Sexuality · doi:10.1080/13691058.2022.2154386 · Cited by 2
Aegerter, A. (2023) · Santé Publique · doi:10.3917/spub.hs2.0059 · Cited by 2
Folk art, storytelling, and space: Collective memory and pesticide exposure
Adams, A. E., Saville, A., & Shriver, T. E. (2023) · Environment and Planning E Nature and Space · doi:10.1177/25148486231217883 · Cited by 2
Smart, A., Williams, R., Weiner, K., Cheng, L., & Sobande, F. (2024) · Sociology of Health & Illness · doi:10.1111/1467-9566.13748 · Cited by 2
Clark, I. (2024) · Social Sciences · doi:10.3390/socsci13100528 · Cited by 2
Transforming the Patient-Provider Relationship Through Digitalized Peer Support in Japan
Hosoda, M. (2024) · Health Systems & Reform · doi:10.1080/23288604.2024.2392306 · Cited by 2
Diagnosis, visibility, and “Illnesses You Have to Fight to Get”
Sherman, M. (2024) · American Anthropologist · doi:10.1111/aman.28030 · Cited by 2
Building collectives via the Web? Information and mobilization on cancer websites
Akrich, M., Méadel, C., & Rémy, C. (2008) · HAL · Cited by 2
The Postindustrial Limits of Professionalization
Starr, P. (2023) · Oxford University Press eBooks · doi:10.1093/oxfordhb/9780190848927.013.21 · Cited by 2
Visualising Bodies Within and Beyond Laboratories and Clinics
Burri, R. V., Carusi, A., & Aspradaki, A. A. (2023) · Tecnoscienza · doi:10.6092/issn.2038-3460/17174 · Cited by 2
Health-Care Provision for Local Disadvantaged Populations: Results from a Community-Based Study
Pizmony-Levy, O., Shaddox, A. M., Thomas, B., & Wininger, B. A. (2010) · Journal of Applied Social Science · doi:10.1177/193672441000400103 · Cited by 2
Participation in Mental Health Advocacy: Results of a National Survey
Cuddy, A. (2015) · Canadian Journal of Community Mental Health · doi:10.7870/cjcmh-2015-019 · Cited by 2
Patient Advocacy: Putting the Vocabulary of Patient-Centered Care into Action
French, E. A., Gilkey, M. B., & Earp, J. A. (2009) · North Carolina Medical Journal · doi:10.18043/ncm.70.2.114 · Cited by 2
Fuller, P. C. (2011) · Advances in medical sociology · doi:10.1108/s1057-6290(2011)0000012014 · Cited by 2
Poisoned Subjects: Life Writing of DES Daughters
Johnston, E. C. (2017) · Frontiers A Journal of Women Studies · doi:10.1353/fro.2017.a653258 · Cited by 2
Tracing the Role of Gender in the History of Breast Cancer Social Movements
Sweeney, E. (2012) · TSpace (University of Toronto) · Cited by 2
KAPITTEL 3 Fra frivillig arbeid til folkehelsearbeid – om politisering av selvhjelpssaken
Feiring, M. (2019) · doi:10.23865/noasp.68.ch3 · Cited by 2
The Forms and Uses of Acquired Prostate Cancer Expertise Among Prostate Cancer Survivors
Green, R. (2020) · Sociological Research Online · doi:10.1177/1360780420905840 · Cited by 2
Account/ability: Disability and Agency in the Age of Biomedicalization
Monteleone, R. (2020) · Cited by 2
Capturing Context Is Not Enough
Lemelson, R., & Tucker, A. (2020) · Cambridge University Press eBooks · doi:10.1017/9781108695374.023 · Cited by 2
Martini, J., Traoré, A. T., & Mahieu, C. (2021) · Global Public Health · doi:10.1080/17441692.2021.2005114 · Cited by 2
Stendel, M. S., Ramstead, M. J. D., & Veissière, S. P. L. (2020) · Cambridge University Press eBooks · doi:10.1017/9781108695374.026 · Cited by 2
Medical professionals’ agency and pharmaceuticalization: Physician-industry relations in Russia
Borozdina, E., & Zvonareva, O. (2022) · Health An Interdisciplinary Journal for the Social Study of Health Illness and Medicine · doi:10.1177/13634593221116508 · Cited by 2
Nowakowski, A. C. H., Graves, K. Y., & Sumerau, J. E. (2022) · Emerald Group Publishing Limited eBooks · doi:10.1108/s1530-353520220000019001 · Cited by 2
Diverse, Emergent, Disruptive: Perspectives on and Developments in Biomedical Citizen Science
Guerrini, C. J., Kempner, J., Rasmussen, L. M., & Wexler, A. (2022) · Citizen Science Theory and Practice · doi:10.5334/cstp.598 · Cited by 3
The practice of social movement unionism: COVID-19 and the Hong Kong medical workers’ strike
Chan, C. K., Tsui, W. Y. A., & Tang, L. (2023) · Work in the Global Economy · doi:10.1332/273241721x16807754665367 · Cited by 2
KAPITTEL 1 Den nye selvhjelpsbevegelsen
Brottveit, Å., Gotaas, N., Zeiner, H. H., & Feiring, M. (2019) · doi:10.23865/noasp.68.ch1 · Cited by 2
Arthur, M. M. L. (2016) · doi:10.31235/osf.io/265ws · Cited by 2
La genèse précoce des différences sociales dans les habitudes alimentaires.
Dhuot, R. (2018) · theses.fr (ABES) · doi:10.70675/dc99dd37zd191z4c14z985ez1e68b911e8b8 · Cited by 2
Miner, S. A. (2017) · International Journal of Feminist Approaches to Bioethics · doi:10.3138/ijfab.10.2.42 · Cited by 1
The Neural Mechanisms Underlying Social Norms
Mu, Y., & Gelfand, M. J. (2020) · Cambridge University Press eBooks · doi:10.1017/9781108695374.015 · Cited by 2
Macdonald, G., Leese, J., Hoens, A. M., Kerr, S., Lum, W., Gulka, L., Nimmon, L., & LI, L. C. (2023) · Journal of Health Services Research & Policy · doi:10.1177/13558196231197288 · Cited by 1
“Small Wins” for those with Lyme Disease in Canada: Patients in an Embodied Health Movement
Cox, M., & Levesque, M. (2024) · Zoonotic Diseases · doi:10.3390/zoonoticdis4010004 · Cited by 1
An exploratory lens in integrating social innovation in public healthcare ecosystem
Ngwenya, T. (2024) · International Journal of Research in Business and Social Science (2147-4478) · doi:10.20525/ijrbs.v13i7.3646 · Cited by 1
Moral Judgments Around Experiences of Health Risks
Burton‐Jeangros, C. (2024) · Critical studies in risk and uncertainty · doi:10.1007/978-3-031-65377-3_5 · Cited by 1
‘Breast Cancer on Long Island’: The Emergence of a New Object Through Mapping Practices
Diedrich, L., & Boyce, E. (2007) · BioSocieties · doi:10.1017/s1745855207005716 · Cited by 1
Edwards, C. (2014) · Health & Place · doi:10.1016/j.healthplace.2014.05.005 · Cited by 1
Integrative Leadership: An Embodied Practice
Knutson, L. (2015) · EXPLORE · doi:10.1016/j.explore.2015.07.009 · Cited by 1
The Autism Spectrum Disorders/vaccine link debate: A health social movement
Kerr, M. A. (2009) · D-Scholarship@Pitt (University of Pittsburgh) · Cited by 1
Navigating the Terrain of Medical Diagnosis and Treatment: Patient Decision Making and Uncertainty
Berger, R. J., Corroto, C., Flad, J., & Quinney, R. (2013) · Studies in symbolic interaction · doi:10.1108/s0163-2396(2013)0000040019 · Cited by 1
Exploring Intimacy in Collaborative Photographic Narratives of Breast Cancer
Sile, A. (2020) · Humanities · doi:10.3390/h9010027 · Cited by 1
Wellbeing: Alternative Policy Perspectives
Besley, T., & Bucelli, I. (2022) · LSE Press eBooks · doi:10.31389/lsepress.well · Cited by 3
Why Do Patients Protest? Collective Action Processes in People With Chronic Illnesses
Mazzoni, D., & Alberici, A. I. (2017) · IGI Global eBooks · doi:10.4018/978-1-5225-3926-1.ch060 · Cited by 1
Urban Planning and Health Equity. Integrating Global and European Perspectives in Local
Freitas, Â., & Santana, P. (2022) · Future city · doi:10.1007/978-3-030-93875-8_1 · Cited by 1
Dimond, R., Stephens, N., & Herbrand, C. (2023) · Social Science & Medicine · doi:10.1016/j.socscimed.2023.116333 · Cited by 1
Signs and symptoms: Adverse events associated with a sterilization device
Leiter, V. (2024) · Social Science & Medicine · doi:10.1016/j.socscimed.2024.116963 · Cited by 1
Aguado, M. G., Wilde, L., & Hanna, E. S. (2024) · Qualitative Health Research · doi:10.1177/10497323241293039 · Cited by 4
Radkowska-Walkowicz, M., & Kucharska, A. (2025) · Medical Anthropology · doi:10.1080/01459740.2025.2464620 · Cited by 1
Mendenhall, E., Kamau, L. W., Kenworthy, N., & Bosire, E. N. (2025) · Globalization and Health · doi:10.1186/s12992-025-01120-9 · Cited by 3
Stretched to the Limit: Organizations for Short Statured People and the Management of Stigma.
Rott, L. M. (2013) · Deep Blue (University of Michigan) · Cited by 1
Brottveit, Å. (2019) · doi:10.23865/noasp.68.ch2 · Cited by 1
Ngara, C. O. (2019) · SOCIALSCI JOURNAL · Cited by 1
Can Art Influence Global Health Policy?
Fafard, P. (2020) · Imaginations Journal of Cross-Cultural Image Studies · doi:10.17742/image.in.11.2.11 · Cited by 1
Cities, Psychosis, and Social Defeat
Sayanvala, F., Bornstein, L., Choudhury, S., Shah, J. L., Weinstock, D., & Gold, I. (2020) · Cambridge University Press eBooks · doi:10.1017/9781108695374.025 · Cited by 1
Culture, Mind, and Brain in Human Evolution
Stout, D. (2020) · Cambridge University Press eBooks · doi:10.1017/9781108695374.005 · Cited by 1
Liminal Brains in Uncertain Futures
Choudhury, S., & Berson, J. (2020) · Cambridge University Press eBooks · doi:10.1017/9781108695374.020 · Cited by 1
Dotson, M. P., Allen, B. L., & Cohen, A. K. (2020) · Environmental Justice · doi:10.1089/env.2020.0023 · Cited by 1
Breast Cancer: A Public Health Issue that is also Subject of Social Construction
Ulloa, C. S. (2020) · Novel Approaches in Cancer Study · doi:10.31031/nacs.2020.05.000605 · Cited by 1
Sticky Biomedical Objects: Affective Circulations in Twitter Discussions about Medicinal Cannabis
Kjær, K. M. (2023) · Somatechnics · doi:10.3366/soma.2023.0395 · Cited by 1
Authors, audiences, and advocates ... but athletes first : blogging and the Paralympic Movement
Bundon, A. (2013) · cIRcle (University of British Columbia) · doi:10.14288/1.0077420 · Cited by 1
Science to support toxics governance : tracking mercury and other pollutants from policy to impacts
Giang, A. (2017) · DSpace@MIT (Massachusetts Institute of Technology) · Cited by 1
Zoller, H. M. (2022) · The International Encyclopedia of Health Communication · doi:10.1002/9781119678816.iehc0865 · Cited by 1
Sobre conhecimentos e ativismos: associações canábicas nas redes sociais digitais
Rodrigues, A. P. L. D. S. (2022) · doi:10.47328/ufvbbt.2023.060 · Cited by 1
Le Ciane, un collectif hybride dans le monde de la périnatalité
Akrich, M. (2010) · Revue de médecine périnatale · doi:10.1007/s12611-010-0083-7
Health-Related Communication Behaviors of Environmental Action Gatekeepers: A Qualitative Study
Pomerantz, S. (2015) · University Libraries (University of Maryland) · doi:10.13016/m2n06t
Preventing Breast Cancer: An Analysis of Canada's Regulatory Regime for Chemicals
Sweeney, E. (2013) · YorkSpace (York University)
Activism for health: An ethical obligation of public health practice
Llewellyn, R. (2015) · Otago University Research Archive (University of Otago)
Ontology and politics: The problems of emergence and reductionism in integrative health science
Peterson, D. (2013) · Social Theory & Health · doi:10.1057/sth.2013.18
Produire de l'expertise en France et aux États-Unis (Commentaire)
Gaudillière, J. (2006) · Sciences sociales et santé · doi:10.3406/sosan.2006.1695
Body Burden Politics: How Biomonitoring Data is Influencing Chemicals Governance in the U.S.
Shamasunder, B. (2011) · eScholarship (California Digital Library)
Andersson, T. E. (2012) · OhioLink ETD Center (Ohio Library and Information Network)
Votova, K. (2012) · UVic’s Research and Learning Repository (University of Victoria)
Harris, R. F. (2011) · CU Scholar (University of Colorado Boulder)
Social Movements and Hierarchies of Evidence in Sexual Reorientation Therapy Debates
Waidzunas, T. J., Epstein, S., Lakoff, A., & Serlin, D. H. (2010)
TAKING THEIR CUT: CONSTRUCTING THE FEMALE PATIENT THROUGH AMERICAN HEALTH POLICY, 1990 - 1993
Scanlon, M. (2005) · OhioLink ETD Center (Ohio Library and Information Network)
Patient representation and the research agenda in neurodegenerative disease
Grinbergs‐Saull, A. (2015)
Smith, K. P. (2016) · CU Scholar (University of Colorado Boulder)
Walking the Talk,Talking the Walk: Embodied Health Activism in Developing Nations
Kleppe, I. A., & Caldwell, M. (2011) · ACR European Advances
Υγεία και κοινωνικά κινήματα: η αμφισβήτηση της ορθόδοξης ιατρικής
Οικονόμου, Χ. (2016) · Social Cohesion and Development · doi:10.12681/scad.8901
Australian Patient Organizations
Dugdale, A. (2012) · IGI Global eBooks · doi:10.4018/978-1-4666-2770-3.ch043
Associated Prevention Concepts and Models
James, J. E. (2015) · Elsevier eBooks · doi:10.1016/b978-0-12-802812-4.00013-8
Health Activism: Community Action for Change
Lewis, B., & Lewis, J. (2015) · doi:10.1007/978-1-137-47864-1_10
Advocacy for Healthy Public Policy
Lewis, B., & Lewis, J. (2015) · doi:10.1007/978-1-137-47864-1_11
Cunda, M. F., Zanchet, L., & Chassot, C. S. (2017) · Revista Polis e Psique · doi:10.22456/2238-152x.74587
de Saille, S. (2017) · Palgrave Macmillan UK eBooks · doi:10.1057/978-1-137-52727-1_6
Paleo body politics: re-wilding health, ecology, and diet during the Anthropocene
Leiper, C. (2024) · Library, Museums and Press - UDSpace (University of Delaware) · doi:10.58088/ajhb-sy69
Brottveit, Å., Feiring, M., Gotaas, N., & Zeiner, H. H. (2019) · doi:10.23865/noasp.68
Best, R. K. (2019) · Oxford University Press eBooks · doi:10.1093/oso/9780190918408.003.0008
Best, R. K. (2019) · Oxford University Press eBooks · doi:10.1093/oso/9780190918408.003.0001
Publicity Over Prevention, Cures Over Care
Best, R. K. (2019) · Oxford University Press eBooks · doi:10.1093/oso/9780190918408.003.0007
Health at Every Size (HAES™) as a Reform (Social) Movement within Public Health
Ingraham, N. (2019) · Oxford University Press eBooks · doi:10.1093/oxfordhb/9780190842475.013.8
Metadata
- Authors
- Brown, P., Zavestoski, S., McCormick, S., Mayer, B., Morello‐Frosch, R., & Gasior Altman, R.
- Affiliations
- Brown University (US)
- University of San Francisco (US)
- Corresponding author
- Brown, Phil
- Venue
- Sociology of Health & Illness
- Publisher
- Wiley
- Published
- 2004-01
- Volume
- 26
- Issue
- 1
- Pages
- 50-80
- ISSN
- 0141-9889 (ISSN-L)
- 1467-9566
- OpenAlex
- W2030530081
- Cited by
- 631
- References
- 76
- Citations by year
- 2026: 19 · 2025: 16 · 2024: 24 · 2023: 35 · 2022: 34 · 2021: 37 · 2020: 83 · 2019: 39 · 2018: 53 · 2017: 27 · 2016: 27 · 2015: 32 · 2014: 17 · 2013: 24 · 2012: 17
- FWCI
- 40.27
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Locations
- Sociology of Health & Illness (publishedVersion)
- PubMed (publishedVersion)
- Funders
- National Science Foundation (9975518)
- Robert Wood Johnson Foundation
- Topics
- Health Sciences › Health Professions › General Health Professions › Health, Medicine and Society
- Social Sciences › Sociology and Political Science › Social Movements and Cultural Identity
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Community Health and Development
- Keywords
- health social movements, social movement theory, illness experience, disability, contested illness, health disparities, health care access
- MeSH terms
- Breast Neoplasms, Delivery of Health Care, Politics, Social Change, Social Environment, Social Responsibility, Sociology, Medical, Health Care Rationing
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review